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Wheat/gluten/dairy Allergies--is It Celiac, Candida, Or Something Else?


MustLoveGoblins

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MustLoveGoblins Newbie

Hi everyone,

Newbie with a few questions, here. ;)

After two years on Prilosec for acid reflux (this was my doctor's suggestion), which was only somewhat helping, I went to a doctor that's into natural treatments and preventative medicines (as opposed to the just take a drug types). She looked at my fingernails and was able to tell I wasn't absorbing vitamins/minerals well (they have vertical ridges in them), so she suggested I be tested for food allergies and put me on B12 injections and a bunch of other B vitamins. My only other symptoms are low grade fever (this has been going on for years but was infrequent enough that I never thought much of it--it's much more common now, though) and recently (last month or so) I've had some gas and bloating, especially noticeable after something like a smoothie from Jamba Juice (all natural juice/fruit but tons of fruity sugar, of course).

I got the food allergy tests back a couple days ago and had significant allergies to gluten/gliadin, rye & wheat, everything dairy, eggs, and almonds (moderate peanuts and pineapple). Her advice was, obviously, to stay away from dairy and gluten, and she also suggested a lactobacillus supplement. I'm planning to do this, of course... I'm just wondering what it all means. Because my insurance won't cover this doctor, I'd like to wait and see before making more appts. So, I'm appealing to the collective wisdom of the board for now. ;)

Is it likely I have Celiac disease? (I am of northern European descent, but only dairy intolerance runs in my family, as far as I know.) Or could it be a Candida overgrowth, which has in turn caused the allergies? (I have not read of fever as a symptom of Celiac, but I have seen it listed with Candida and the fact that I react to sugar has me wondering.) Maybe it's both. Or neither. Is it likely I've just had these allergies all my life and never reacted strongly enough to realize it?

I suppose my plan is just to eliminate the stuff I'm allergic to and see if that alone helps. I'm wondering if I should try a Candida diet, too, though (low carbs, no yeast, no sugar, etc.). I guess I'm just already overwhelmed by the amount of food that is now off-limits that I'm having a hard time imagining cutting out even more.

So, any advice?


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GravStars Contributor
Hi everyone,

Newbie with a few questions, here. ;)

After two years on Prilosec for acid reflux (this was my doctor's suggestion), which was only somewhat helping, I went to a doctor that's into natural treatments and preventative medicines (as opposed to the just take a drug types). She looked at my fingernails and was able to tell I wasn't absorbing vitamins/minerals well (they have vertical ridges in them), so she suggested I be tested for food allergies and put me on B12 injections and a bunch of other B vitamins. My only other symptoms are low grade fever (this has been going on for years but was infrequent enough that I never thought much of it--it's much more common now, though) and recently (last month or so) I've had some gas and bloating, especially noticeable after something like a smoothie from Jamba Juice (all natural juice/fruit but tons of fruity sugar, of course).

I got the food allergy tests back a couple days ago and had significant allergies to gluten/gliadin, rye & wheat, everything dairy, eggs, and almonds (moderate peanuts and pineapple). Her advice was, obviously, to stay away from dairy and gluten, and she also suggested a lactobacillus supplement. I'm planning to do this, of course... I'm just wondering what it all means. Because my insurance won't cover this doctor, I'd like to wait and see before making more appts. So, I'm appealing to the collective wisdom of the board for now. ;)

Is it likely I have Celiac disease? (I am of northern European descent, but only dairy intolerance runs in my family, as far as I know.) Or could it be a Candida overgrowth, which has in turn caused the allergies? (I have not read of fever as a symptom of Celiac, but I have seen it listed with Candida and the fact that I react to sugar has me wondering.) Maybe it's both. Or neither. Is it likely I've just had these allergies all my life and never reacted strongly enough to realize it?

I suppose my plan is just to eliminate the stuff I'm allergic to and see if that alone helps. I'm wondering if I should try a Candida diet, too, though (low carbs, no yeast, no sugar, etc.). I guess I'm just already overwhelmed by the amount of food that is now off-limits that I'm having a hard time imagining cutting out even more.

So, any advice?

No advice, but I have similar symptoms (acid reflux, bloating, ridges on nails) and am trying to figure out what is going on with myself. It's hard to tell if I react to certain foods, almost anything seems to contribute to bloating and I always feel pretty bad regardless of what I eat (or don't). Where did you get the food allergy tests from?

Lisa Mentor

It is very possible that you have celiac disease. A blood test could confirm, but not if you have been gluten free. Or, you could go on a gluten free diet and confirm that by yourself, by feeling better. I was dx'd by a biopsy that confirmed the blunting of of villi of the small intenstines.

The board is usually slow on the weekends and with this being a holiday weekend, it may be until Tuesday that you get some really good answers.

Your have options:

1. Go gluten fee - which includes, shampoo, face lotion, lipsticks..or any thing that can get into your mouth.

2. Eat gluten as usual for a month and have a blood test, or the gold standard is the Endoscopy exam.

3. Try a blood test to check for Celiac (others will post for the exact test, as I have not done that)

Hope that will get you started.

Lisa

MustLoveGoblins Newbie
It is very possible that you have celiac disease. A blood test could confirm, but not if you have been gluten free. Or, you could go on a gluten free diet and confirm that by yourself, by feeling better. I was dx'd by a biopsy that confirmed the blunting of of villi of the small intenstines.

The board is usually slow on the weekends and with this being a holiday weekend, it may be until Tuesday that you get some really good answers.

Your have options:

1. Go gluten fee - which includes, shampoo, face lotion, lipsticks..or any thing that can get into your mouth.

2. Eat gluten as usual for a month and have a blood test, or the gold standard is the Endoscopy exam.

3. Try a blood test to check for Celiac (others will post for the exact test, as I have not done that)

Hope that will get you started.

Lisa

Thanks, Lisa. I think I'll stick with option 1 for now and see what happens. I'm not a big fan of having things inserted into any of my orifices (or paying for it). :P

Mike, I had the food allergy testing done at the Tahoma Clinic, in Renton, WA. They drew blood and tested for something like 95 things. I noticed that everything that came up as severe were things that are in my diet every day (with the exception of goat's milk), which has me thinking the whole Leaky Gut Syndrome thing is at the root. I just don't know whether it's from Celiac or Candida or something else. Mmm, the Internet is great for self-diagnosing yourself with things :P

aikiducky Apprentice

Just my personal opinion, but if you did happen to have a candida problem, there would have to be an underlying cause for it, that made it easier for the candida to spread. So it would in the end probably still come down to cutting out foods that you are intolerant or allergic to.

Pauliina

Guest cassidy

I had reflux my entire life. I had surgery when I was 10 and felt much better. I have had celiac symptoms my whole life but didn't realize they were unusual because that was how I always felt. I thought I had a "funny tummy" because of my reflux and never realized bloating and D were unusual. My reflux came back last November and I was scheduled for another surgery in February because the first one had come undone. I found out about Celiac and went gluten-free in January. I cancelled my surgery 3 days before it was going to happen because my reflux was gone. I figured all this out myself, my doctors laughed at my self-imposed gluten-free diet and thought I needed the surgery.

I felt great for a month or so and then started feeling bad again. My heart was pounding, I had a rash and was getting headaches back, I still had some D, but not like when I am glutened. So, I found a doctor who deals with supplements. She did a three day stool test and found out some nasty stuff. Because of the reflux medicine, I had had reduced stomach acid. This lack of acid caused amoebas and bad bacteria to get through the stomach acid barrier and make a home in my intestines. I also had candida overgrowth. I finished two horrible antibiotics to get rid of the bacteria and amoebas. I was so upset that traditional doctors gave me medicine that was treating a symptom of celiac (reflux) and causing more problems (bacteria, amoeba) and none of them could figure out what was wrong with me (celiac).

For candida I'm taking Nystatin and I'm on a low carb diet. I'm doing the best I can on the diet, but it is challenging. I'm supposed to stay on the nystatin for 3 months. Already, my rash is gone and I've been taking my temp every morning because we want to get pregnant as soon as I'm well. My temp had been higher than normal. After a week on nystatin, it is finally where it is suppposed to be.

So, if gluten came up positive on your test, I would definitely eliminate it. The stool test I did was very expensive and worth every penny. The lab that did it is www.doctorsdata.com. I had the three day comprehensive stool test with parasitology. It would make sense that you have a problem with candida if you have gluten issues. I was becoming more "allergic" to safe foods before I found out about the candida. Now I take probiotics and digestive enzymes and I can tolerate a lot more food.

I would start changing your diet and adding supplements slowly. I keep a journal of how I feel and what I took each day so I can try to figure out what is helping and what isn't. My doctor did tell me that food allergy/intolerance tests aren't very accurate. She said to see how I feel when I eat things and keep track of it that way because the tests don't always work well.

shai76 Explorer

If I were you I would concentrate on eliminating just the things you tested positive for. After a few months try introducing one at a time into your diet and then you will know what you are reacting to and how badly. If you reactions are really life threatening make sure you talk to your doctor before doing anything! Food allergies can be very dangerous. I would not do anything extra right now like the candida thing. You should concentrate all your efforts on reducing the allergens, and also living healthy lifestyle.


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MustLoveGoblins Newbie

Thanks for the responses everyone. I scoured all the local organic food stores this weekend for things I can eat beyond fruit, veggies, and plain meat. ;) It would be great if the gluten/dairy-free diet alone would solve things. I guess I'll just have to see how I feel after a few months.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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