Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kansas Doctor Needed

troyshort

By troyshort
in Doctors

Recommended Posts

troyshort Newbie
troyshort
Posted

I was self-diagnosed with Celiac two years ago after my general doctor wasn't able to figure out what was wrong with me. After investigating my symptoms I eventually came to the conclusion that I had celiac disease and asked my doctor to refer me to a gastro doc. The biopsy confirmed my diagnosis. Since my gastro doc almost killed me by over-prescribing Dapsone to treat my HD, I haven't been back to him. I am now having some symptoms that lead me to believe that I am having some gall bladder issues. Anyway, I'd like to go to a doctor that knows more about celiac disease than me. If I have to, I'll go out of state. If anyone can recommend a doctor within one state of Kansas I would really appreciate it.

Thanks,

Troy Short

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted

Troy-

What part of Kansas are you in?

-Jessica :rolleyes:

zip2play Apprentice
zip2play
Posted

I live in KS as well. In Lawrence there is not one doctor that knows anything about Celiac. Heck, b/c my biopsy was negative, my gastro dr refuses to believe that gluten can even be an issue. Amazingly, once I gave it up, my problems have disappeared. But I had to lose my Gall bladder first and have a hernia operation. Both might have been prevented if I had been diagnosed earlier!

Monica

Babs83 Rookie
Babs83
Posted
I live in KS as well. In Lawrence there is not one doctor that knows anything about Celiac. Heck, b/c my biopsy was negative, my gastro dr refuses to believe that gluten can even be an issue. Amazingly, once I gave it up, my problems have disappeared. But I had to lose my Gall bladder first and have a hernia operation. Both might have been prevented if I had been diagnosed earlier!

Monica

My brother was dianosed about 15 years ago, his doctor is in Leavenworth, KS. His name is Dr. Diallo; I think I have celiac. I had negative blood tests, I don't need the piece of paper that actually says I have it. Have been on gluten free diet for a couple of months and Headaches have all but disappeared, brain fog is gone. I think my daughter has celiac, she also had negative blood tests but she doesn't want to do the scope yet. When she does I will take her to Dr. Diallo, his wife also is a gastronolotist in with him. (Our pediatrician suggested her but she goes by her maiden name and I can't remember it). Good luck.

ElizabethN Apprentice
ElizabethN
Posted
I was self-diagnosed with Celiac two years ago after my general doctor wasn't able to figure out what was wrong with me. After investigating my symptoms I eventually came to the conclusion that I had celiac disease and asked my doctor to refer me to a gastro doc. The biopsy confirmed my diagnosis. Since my gastro doc almost killed me by over-prescribing Dapsone to treat my HD, I haven't been back to him. I am now having some symptoms that lead me to believe that I am having some gall bladder issues. Anyway, I'd like to go to a doctor that knows more about celiac disease than me. If I have to, I'll go out of state. If anyone can recommend a doctor within one state of Kansas I would really appreciate it.

Thanks,

Troy Short

I am interested to see if you can find a good doctor!! I live in Kansas City, and over the course of 6 years I have seen four GI's and numerous general practice docs trying to find some answers as to why I had such horrible digestive troubles- not a single one of them ever suggested Celiac. I learned about it on the internet and decided to give the gluten free thing a try. I felt better immediately. And now that I feel better, I have asked the doctors about Celiac and they don't seem to have a clue about it. It is really frustrating that a disease that affects so many people seems to be so unknown in the medical community. Now my brother and some of my relatives who live in other parts of the state and have had similar problems as I have want to be tested and they can't seem to find a doctor that knows anything about it either. I wish there was a list somewhere of competent doctors in each state that have patients with celiac and know something about it!

Braunson's-mom Rookie
Braunson's-mom
Posted

We are from around Salina and we have a good ped. for my children and it helps because her best friend had celiac disease. So she is very knowledgeable. We had to go to Kansas City and see Dr SanPloblo at Children Mercy. My son was 20 mo old when we went gluten-free and our ped never suspected celiac disease but was supportive when I told her we were going gluten-free. But if you suspect gallbladder problems just call a general surgion and he should be able to help you. But if you are interested a Dr Johnson is very good in Salina as an adult gi dr. Good Luck

Green12 Enthusiast
Green12
Posted

Has anybody been to, or have any information about, the alternative health center (I don't recall the name of the facility...) in Wichita???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

I went to Joplin, Missouri. Dr. Makdisi did my endoscopy, Dr. Kamfe removed my gall bladder. I can't say how much either of them knows about celiac, though, because I already knew and was on the diet when I went to them about my gall bladder. They just said that since I knew what to do, just do it.

  • 1 month later...
Elisa Newbie
Elisa
Posted

My biopsy was done by a GI named Dr. Ellis at the Mowry Clinic in Salina, KS. She is excllent. She was both knowledgeable and warm/personable. She travels to some smaller communities (Smith Center, KS and Hays, KS, probably others as well). She also gave me info from a dietician she works with and it was very helpful. Dr. Ellis has worked with two of my friends who have other GI health problems (not Celiac) and both were quite happy with her care. There is also an internist at the Mowry Clinic who saved my husband's life. His name is Dr. Paul Johnson.

The phone number for the Mowry Clinic in Salina, KS is: 785-827-7261

  • 2 years later...
Drama-Queen Rookie
Drama-Queen
Posted

Anyone know about a good GI doctor in Wichita, KS? And a family physician?

I need to be monitored closely for now because I had extensive damage, including a bleeding ulcer in the intestine at the time of my diagnosis. My malabsorption rate is still at 964 according to my last fecal fat cell test (originally 2, 863), and is supposed to be down below 200, so I still have a long way to go.

I just moved here from Minneapolis, MN.

I have been discouraged so far about the lack of knowledge in the area about the need to be gluten-free! Everyone I have encountered so far, including my husband's family physician, look at me like I am an alien. Of course I suppose that this is what I should expect moving into the "bread basket" of our country, from a progressive state like Minnesota.

I also need a good allergist. For the past 3 years I have had chronic hives everyday, and was told by my last doctor "good luck, I hope they go away eventually". Fortunately I am on a cocktail of medicines that keep them under control, but I avoid alcohol, spicy food and coffee, as they aggravate my symptoms.

thanks

Katrina

  • 2 years later...
Cheyenne Green Newbie
Cheyenne Green
Posted

We are from around Salina and we have a good ped. for my children and it helps because her best friend had celiac disease. So she is very knowledgeable. We had to go to Kansas City and see Dr SanPloblo at Children Mercy. My son was 20 mo old when we went gluten-free and our ped never suspected celiac disease but was supportive when I told her we were going gluten-free. But if you suspect gallbladder problems just call a general surgion and he should be able to help you. But if you are interested a Dr Johnson is very good in Salina as an adult gi dr. Good Luck

I am moving to Salina over Labor Day weekend and would love to know the name of the pediatrician you recommend! My daughter and I have Celiac. I don't know about my son because he always eats gluten-free with the rest of the family. Also, I know there is a store in Abilene that sells gluten-free and that they apparently have a branch in Salina too, but do the local Walmart or Dillon's have any gluten-free items. Here in Indy all the major chains have started carrying gluten-free sections within the last 2 years. Also, do you know of any buying co-ops for gluten-free foods to try to lower shipping costs? Do there seem to be a lot of people in Salina with Celiac or gluten sensitivities. I found it very hard to eat out there in May and last weekend when I visited. Thanks for any info you can provide.

Cheyenne Green Newbie
Cheyenne Green
Posted

I am interested to see if you can find a good doctor!! I live in Kansas City, and over the course of 6 years I have seen four GI's and numerous general practice docs trying to find some answers as to why I had such horrible digestive troubles- not a single one of them ever suggested Celiac. I learned about it on the internet and decided to give the gluten free thing a try. I felt better immediately. And now that I feel better, I have asked the doctors about Celiac and they don't seem to have a clue about it. It is really frustrating that a disease that affects so many people seems to be so unknown in the medical community. Now my brother and some of my relatives who live in other parts of the state and have had similar problems as I have want to be tested and they can't seem to find a doctor that knows anything about it either. I wish there was a list somewhere of competent doctors in each state that have patients with celiac and know something about it!

I know it is quite a distance, but UIC in Chicago does FREE testing once a year as part of their ongoing studies. Open Original Shared Link is the site to visit.

kareng Grand Master
kareng
Posted

I am moving to Salina over Labor Day weekend and would love to know the name of the pediatrician you recommend! My daughter and I have Celiac. I don't know about my son because he always eats gluten-free with the rest of the family. Also, I know there is a store in Abilene that sells gluten-free and that they apparently have a branch in Salina too, but do the local Walmart or Dillon's have any gluten-free items. Here in Indy all the major chains have started carrying gluten-free sections within the last 2 years. Also, do you know of any buying co-ops for gluten-free foods to try to lower shipping costs? Do there seem to be a lot of people in Salina with Celiac or gluten sensitivities. I found it very hard to eat out there in May and last weekend when I visited. Thanks for any info you can provide.

I am just now driving past Salina on 70. Taking a kid to Colorado for college. Don't know what's available, sorry. HyVee have a lot of gluten-free things, usually, but the closest one is Manhattan to you.

The original poster posted 5 years ago. You might try to personal message them as those may be connected to an email. Click their picture and under the pic in the profile it should say message ( unless they turned that option off).

  • 7 months later...
Sunny600 Rookie
Sunny600
Posted

Still no recommendations for doctors in Lawrence, KS (or even Kansas City)? I would appreciate suggestions from anyone.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,866
    • Most Online (within 30 mins)
      7,748
    Brian Hans
    Newest Member
    Brian Hans
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find it in like soy sauce and canned tomato soup, just to site two examples. This might help:  
    • jnstefan
      How long after being diagnosed with Celiac do you feel better?

      By jnstefan · Posted

      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
×
×
  • Create New...