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Could This Be Side Effect Of celiac disease?

misgiss

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misgiss Apprentice
misgiss
Posted

Ds is a little over 3y, some food allergies (dairy, casein, mult. nuts), has never had solid bm and has blood dripping from anus while pooping.

He had an ultrasound and CT scan a couple days ago and I got the results today. His liver is on the big side (doc doesn't know why) but his colon is very big. Very open. Everything just goes right through it. Not much, if anything, gets absorbed and nothing is "formed".

Everytime I get to reading other posts on this site I think "he's definately celiac". I feel so wishy washy about this. Probably because I feel like I'm always guessing. Tests come back negative but "what if" it's a false negative? Everything's always what if. I'm getting quite irritated.

I guess I just needed to vent a little, thanks. But any insight or knowledge any of you would like to pass along would be greatly appreciated.

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darlindeb25 Collaborator
darlindeb25
Posted

There are many false negatives out there that are just that, false. Have you tried gluten free--it can't hurt. Give the diet a chance, but you must remove all gluten, not just a little here or there. I wish you luck. DEb

Ursa Major Collaborator
Ursa Major
Posted

I agree with Deb. Just try the gluten-free diet and see if it helps. Something obviously needs to be done!

wolfie Enthusiast
wolfie
Posted

Poor little guy!! I agree with the others, give the gluten-free diet a try and see if he improves.

Some say that testing on kids so young is not reliable also.

Chako Apprentice
Chako
Posted

Wow. Does he bleed every time he goes potty? And how long has that been going on? Have they ruled out fissures, hemorroids, etc? Are his stools just HUGE?

Really, I am not going to be much help as I am new here and searching for answers too. My son is 4 and has had diarrhea stools for 2.5 years now and we are finally with a GI who cares. My son is allergic to dairy, peanuts and treenuts but seems to be reacting now to soy and corn as well. It is a lot of fun to go shopping as we read everything. Do you watch for milk, milk ingredients, casein and whey? It is so hard to look at everything but you would be surprised where you find milk as I sure was. One shocker was it is in luncheon meat from the deli counter and some soups like Liptons chicken noodle *may have been in contact with* and such so be careful. He may still be exposed and that may be part of his problem. Just a guess but I sure hope you find the answers soon.

samsam Newbie
samsam
Posted

My daughters blood test come back negative when she was exactly a year old. 3mons later we had to be admitted to hospital when she got very sick. After a biopsy she was confirmed as having celiac. May want to talk to the GI more and also try the diet. Doesn't hurt eventhough it may seem tough at first. Wish you the very best. I know it is frustating but hopefully you will have an answer soon.

Guest nini
Guest nini
Posted

after my daughters blood tests came back negative and the pediatric gi basically dismissed me and said "oh she just has IBS, feed her more whole wheat", I got her pediatrician to support me in a three week gluten-free trial to see if it helped her. She had never had a formed stool in her life and she was three... she had so many other horrible symptoms too... within ONE week, I had a totally different child! Today she is six years old and very healthy, and she LOVES the gluten-free diet.

You do not need a Dr.s permission to try the diet, although it will be easier on you if you can get your pediatricians support. Good luck and feel free to pm me or e-mail me with any questions. I also believe the tests in children are highly innaccurate.

e-mail is nisla@comcast.net

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      By Dora77 · Posted

      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it rules out pancreatic insufficiency because, according to them, elastase levels would always stay low if that were the issue. However, could the 236 have been a false result? My doctor also thinks I don’t have pancreatic insufficiency because I’m able to gain weight. I also get hgh injections as my bone age is younger than my real age, this also contributes to weight gain, so I dont know if weight gain can rule out malabsorption. But maybe if I had real malabsorption I wouldnt gain any weight even with hgh? For celiac, I’m on a gluten-free diet, but there might b small cross-contamination from things like pepper labeled as “may contain gluten.” or sausages which dont have gluten ingredient but say may contain. My doctor said that small amounts like this wouldn’t harm me and even mentioned that an occasional small exposure to gluten may not do much damage (which seems questionable since I thought even tiny amounts could be harmful). She also said that when Im older (Im m17) I could try eating small amounts of gluten and do antibody blood tests to see if I can tolerate small amounts or not. For reference, I’m asymptomatic when it comes to celiac, so I have no idea if I’ve been “glutened” or not. My first concerning celiac blood test was semi high IgA, then 3 months later we did a check up and my IgA was high so it was confirmed celiac. Since than I’ve had celiac antibody tests done yearly to see how my diet is going, and they’ve been negative, but I’ve heard those aren’t always reliable. I’ve never had a follow-up endoscopy to confirm healing. I also always kept eating „may contain gluten“ food. (I live in Germany so I dont know if „may contain gluten“ is as risky as in the usa but I suppose both are as risky) These stool issues started around the same time I was doing excessive heavy lifting at the gym. Could stress or lifting have triggered this, or is that less likely since the symptoms persist even after I stopped lifting? Occasionally, I’ll feel very mild stomach discomfort, but it’s rare and not severe. My doctor (also a dietist) said floating, undigested stools could still be “normal,” but that doesn’t seem realistic to me. Could this be impacting my vitamin or protein absorption? I also did a fructose intolerance breath test and had a high baseline of 20 ppm, but it never increased—only decreased over time. I fasted for 12 hours and didn’t eat fructose beforehand, but my stomach didn’t feel completely empty during the test. Could this mean the test was inaccurate? For lactose intolerance, I did the breath test but only fasted 10 hours and had eaten lactose prior because I wasn’t aware of the proper diet restrictions. My results were: 14, 12, 15, 25, 35, 40, 40 ppm—which would be considered positive. But given that I didn’t fast long enough or follow the right diet, could this result be unreliable? Has anyone else dealt with similar symptoms? What ended up being the cause for you? And sorry for the long text!
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