Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help. Servre Cronic Canker Sores


hwmom

Recommended Posts

hwmom Newbie

HI I am new to the board. My son is being tested next week. My son is 7 years old and has debilitating canker sores. I was wondering if anyone noticed a differance in canker sores when they took their child off Gluten.

Also, does anyone know of any good snacks that are dairy free and glutten free?

Thank you so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hwmom Newbie

Hi I am new to this board. My son is being tested next week. Has anybody's child had servre canker sores? If so, did taking your child off Glutten make a difference?

Also, does anyone know of any dairy free and glutten free snacks that kids like?

THank you.

aorona Rookie

My children did not have canker sores, but I had geographic tongue. This is basically many open sores on your tongue that never seem to heal. It is very painful. Going gluten free for almost one year has almost cured this problem. It comes & goes, but is getting better.

As far as snacks. My kids love air popped popcorn with butter; cheese crisps made with corn tortillas; rice pudding; corn chips with salsa; gluten-free rice crispy treats; just to name a few. Basically anything your child liked before going gluten free can be modified to be gluten free. My kids also like "sandwiches" made with a corn tortilla toasted in the toaster. Just be sure to buy a new toaster, since the old toaster will have gluten on it. (we have 2 toasters in our kitchen) You can put anything in these "sandwiches". My kids like peanut-butter & jelly; and turkey with ranch dressing.

jmengert Enthusiast

I'm not a child, but I, too, had chronic canker sores before going gluten free. Now I don't get them at all unless I get glutened. Hopefully, your son's will clear up, too.

Ursa Major Collaborator

Hi, well, I am certainly no child either :D , but I used to get canker sores while consuming gluten, and haven't had any since going gluten-free.

kabowman Explorer

I have problems with canker sores and have had SINCE I went gluten-free. My pcp thought it was a vitamin B deficiency so now I take mega doses and but no effect...they just come (up to 10+ at a time) and go in waves (about a month at a time) but in the last few months have actually finally gotten better.

My dentist just prescribed me a mouthwash to use that is supposed to help but I haven't tried it yet - it is waiting for me to pick up at the Rx as we speak.

My son, dairy free, likes corn chips and chocolate sorbet as a treat (this is what he gets for easter and christmas now instead of chocolate).

Oh, I also have a geographic tongue and have had since I was young - mine doesn't hurt and I never notice changes but I don't spend a lot of time looking at my tongue. My DF son also has a geographic tongue.

Ursa Major Collaborator

Sorry about the double initial post, that ocurred because I merged two duplicate posts, because they had both gotten responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lindalee Enthusiast
I have problems with canker sores and have had SINCE I went gluten-free. My pcp thought it was a vitamin B deficiency so now I take mega doses and but no effect...they just come (up to 10+ at a time) and go in waves (about a month at a time) but in the last few months have actually finally gotten better.

My dentist just prescribed me a mouthwash to use that is supposed to help but I haven't tried it yet - it is waiting for me to pick up at the Rx as we speak.

My son, dairy free, likes corn chips and chocolate sorbet as a treat (this is what he gets for easter and christmas now instead of chocolate).

Oh, I also have a geographic tongue and have had since I was young - mine doesn't hurt and I never notice changes but I don't spend a lot of time looking at my tongue. My DF son also has a geographic tongue.

I had a bad cold sore before my big glutten outbreak(rash and D) Never had one before that. That was about 4 or 6 months ago. I'll find out what vit. I took. Can't remember right now. (brain fog) What's a geographic tongue? LindaLee

2kids4me Contributor

Prior to going gluten-free, my daughter would have severe canker sores - she would refuse to eat cause it hurt. They always seemed to be clearing up then a new bunch would arrive. We aave had ZERO canker sores since going gluten-free!

DeeTee33 Newbie

I stick to Crest Toothpaste and haven't had a Canker Sore in years. I forget which exact one but Colgate Toothpaste gave me horrible ulcers or Canker Sores in my mouth!

My mother's cure for Canker Sores was to put Baking Soda directly on them. You would make a paste and pat it on and had to hold your mouth funny for a few minutes though. Do it a couple times in a day. Kinda stung, but it did get rid of them much quicker. Curious if anybody else heard of this?

jerseyangel Proficient

I used to get canker sores frequently--since gluten-free, I have not had one :)

flagbabyds Collaborator

My sister used to get canker cores all the time and she took Lysine tablets, they really helped her.

lindalee Enthusiast
My sister used to get canker cores all the time and she took Lysine tablets, they really helped her.

That was it - Lysine. LLee

BRUMI1968 Collaborator
HI I am new to the board. My son is being tested next week. My son is 7 years old and has debilitating canker sores. I was wondering if anyone noticed a differance in canker sores when they took their child off Gluten.

Also, does anyone know of any good snacks that are dairy free and glutten free?

Thank you so much.

I haven't read through other answers, but I'll tell you that I immediately stopped getting canker sores when I quit gluten. I might've also quit citrus (trying to calm my gut down)...but the gluten definitely put an end to the canker sores.

As to snacks - you can make trail mix...I'm still looking for a good tortilla chip that is gluten-free.

Vinegar and citrus might also cause canker sores.

DeeTee33 Newbie

Tostitos Tortilla Chips are gluten-free. Tostitos are a product of Frito Lay. Frito Lay has a Gluten-Free list of all it's chips, dips, trail mixes etc. Check it out!

eKatherine Apprentice

I used to get canker sores regularly, but I haven't in years, which is about how long I've been gluten-free.

kaciemarie Contributor

I used to get horrible canker sores before i went gluten-free as well. Now I only get them when I eat something that I shouldn't. Also, I only use toothpaste without Sodium Laurel Sulfate in it. I use Burt's Bees. I hope this helps!

  • 1 month later...
DiPal Newbie

Even though your post is a month old now, I felt that I should reply. I am 46 an have suffered with canker sores all of my life. Neither doctors nor dentists could tell me why I got them. About 1 year ago, I went on one of those low carb diets. For the first several weeks, I could not eat any carbs except veggies. I suddenly realized that my canker sores dissapeared! I thought it was just a coinsidence so I did a little test. I took 1 bite of regular white bread and within hours, I broke out with 3 cankers. Since then I have gone gluten free and I no longer get them.

I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

penguin Community Regular
I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

No no no no no! Spelt has exactly the same kind of gluten that wheat, barley, rye, and oats have! It is definitely not safe for someone that is Celiac or gluten intolerant. Maybe, and a weak maybe at that, is that some people with wheat allergy (not celiac or gluten intolerance) might be able to handle spelt. Spelt is basically an anicient form of wheat.

  • 11 months later...
Sound Guy Newbie
Even though your post is a month old now, I felt that I should reply. I am 46 an have suffered with canker sores all of my life. Neither doctors nor dentists could tell me why I got them. About 1 year ago, I went on one of those low carb diets. For the first several weeks, I could not eat any carbs except veggies. I suddenly realized that my canker sores dissapeared! I thought it was just a coinsidence so I did a little test. I took 1 bite of regular white bread and within hours, I broke out with 3 cankers. Since then I have gone gluten free and I no longer get them.

I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

I just wanted to say as a chronic major ulcer sufferer I intend to take your advise on converting to a Gluten Free diet. I am 37 years old and have been a sufferer of Major ulcerations for years (17+). It is a shame that so little information is available among health practioners in regards to PREVENTING these little but dehabilittaing demons. I don't mean to sound harsh as I realize it's not possible to be an expert on every subject but, who is suppose to know about this area??? Not a GP or a dentist or at least the ones I've experienced. Years ago I tried to seek help on the subject but shortly realized that I already knew the usual remedies/suspects: SLS, Vitamin B-12, Folic Acid, Zinc, Iron, Lysine, Niacin, food triggers, false food triggers... Literally for me, at any given time I would be uncomfortably housing 2-3 major ulcers at a time. I have to say it goes even beyond a minor annoyance or at least in my life. Besides the pain, if I am to get one on my tongue I find it can literally cause me to be incapable of speaking (although may be great for my wife, it's definately not for my business). I literally once reached a point in my early years where I felt like I would rather not even be, then to go through this painful lonely cycle over and over with no end in sight. I say lonely because I always felt the average person could not relate to what the pain actually felt like. However I did come up with a comparison for my wife (who does not suffer from canker sores thankfully) to relate how it makes me feel. It feels as if someone has taken a pair of pliers to the inside of your mouth that is wherever the ulcer decides to take up residency in your mouth (tongue, lip, cheek...). In a perfect world I would like to write a comprehensive book from the understanding of the canker sore sufferer that provides tangible plottable steps to clearly identify the root cause supported with content based on proven facts... All I know is that I would like to figure it out so I can potentially help others PREVENT this from happening to them... Anyway, thanks for reading my input and If you would like to share a remedy with me I would love to hear from you... Thanks. chris_maynard@lycos.com

wowzer Community Regular

I used to get a lot of canker sores as a child. I never would have thought it was caused by gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...