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Son Getting Leg Pain Again

mart

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mart Contributor
mart
Posted

Hi all. I'm so frustrated. After many months of gluten free and progress with growth and weight, ds is again complaining of leg pain. Does this mean he's getting glutened? I can't tell you how hard we work to keep these kids gluten-free! We check ingredients in everything and then call the company to confirm. Ds also complained of leg pain on the same day. We don't even eat out. Coincidence or did they some how get glutened?

A few weeks ago, he got sores in his mouth again. He hadn't gotten them for months after going gluten-free. Does this also mean he got glutened, or can this still happen from time to time.

I'm sooooo frustrated. I can't find the source of what may be glutening my children though I have triple checked everything (including shampoo, toothpaste, crayons, glue, medicine, EVERYTHING!)

Tried going casein free for a while, but that didn't help. Send stool sample to Enterolab to see what they find.

Advice...please :(

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aikiducky Apprentice
aikiducky
Posted

Keep in mind that the "glutened" symptoms can sometimes go on for a couple or even three weeks after just one exposure to gluten. So the leg pain might be from one random accidental glutening last week for example. If they go away again in a couple weeks I wouldn't worry too much... if they continue though, that could mean there's an evil hidden gluten :ph34r: hiding somewhere.

Pauliina

Ursa Major Collaborator
Ursa Major
Posted

It could also be from another intolerance other than gluten. I used to get awful pains in my legs as a child (they declared them 'growing pains', too bad I never outgrew them!). When I cut out the salicylates in January, the leg pains finally stopped (50 years after they started). The gluten (and other lectins) was responsible for the joint and backpain, though.

Daniel's mom Newbie
Daniel's mom
Posted

Hi,

I came across your message searching for antacid for my gluten-free son, and thought I had written your message. I had to join so I could reply.

My son is a 9 year old Korean American- Antibody positive kiddo that acts like DH (skin presentation)-with lots of celiac disease symptoms, but genetic negative. Watching Japanese genteic studies closely. He became allergic to 14 food families... on very restrictive diet for 18 months, now just gluten-free.

Daniel also has had leg cramps since before diet- even when he was off of nightshades....

Anyway- here is how we control his leg cramps-

1. He takes a good multivitamin- we use Natures Way

2. Calcium Mag and Zinc- also Natures Way

These worked until recently- (we are hoping he is in a growth spurt)

3. We added Magnesium Citrate powder- nightly- and that has done the trick recently the label says

Natural Calm, web site is www.petergillham.com

Before adding the magnasium citrate, Daniel had horrible leg aches and charlie horses in his legs. Until we found the Magnesium, we would tank him full of potasium and calcium, tylenol, and put him in a warm tub. This usually got him back to sleep.

Tongue ulcers- :angry: We thought they were related to McDonald French Fries-i.e. Gluten

but they continued for several months- (skin lesions can take 6-24 months on gluten-free diet to clear)

We used perscription lydocain gel to numb sores at night.

We tried traditional medicine- for cold sores/herpes (no help)

We used topical Diprolene ointment to try to speed healing (may help)

and then we decided to remove all candy and pop- even though gluten-free, and sauces (ketchup, bbq etc)

We added L-Lysine daily (500mg 1-2xday) and chaged to toothpaste without SLS (Cancer sore Rembrant)

We saw a naturopath- he said that :

Bensoic acid, cinnamaldehyde, parabens, dichromatic and sorbic acid are all linked with recurrent aphthous stomatitis (tongue ulcers) he also recommended limiting citric acid.

The tongue ulcers were totally gone, :) and we started to add back sauces, and a little pop and candy- uhoh

small lesion started after a large serviing of gluten-free BBQ sauce- :(

I think some how you can email me through this list-feel free.

Hope this helps,

Julie

chrissy Collaborator
chrissy
Posted

some kids just get pains in their legs when they are growing. it is because the bones are growing faster than the muscles.(maybe that's backwards) i do not have celiac, but i go through spurts where i get a lot of sores in my mouth. i guess i am just trying to say that these things can be caused by things other than gluten----sometimes they just happen.

Ursa Major Collaborator
Ursa Major
Posted
some kids just get pains in their legs when they are growing. it is because the bones are growing faster than the muscles.(maybe that's backwards) i do not have celiac, but i go through spurts where i get a lot of sores in my mouth. i guess i am just trying to say that these things can be caused by things other than gluten----sometimes they just happen.

Well, in my opinion there is no such thing as growing pains, and this explanation was made up by doctors so they don't have to figure out what is really wrong. When our legs hurt, we don't declare it to be growing pains. So, why will they say it when kid's legs hurt? They absolutely cannot prove this theory!

key Contributor
key
Posted

Is he accidentally being gluttened at school? I know it is so hard. Do you eat out at all? I find I can't eat out. I have not had good success other then PF Chang's and eating a baked potatoe.

Like someone said supplements may help.

Just ideas. I am sure you are doing a good job keeping him gluten free, but just my only idea. It is frustrating. When I get gluttened, my legs ache.

Take care,

Monica

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