Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Explanation For Unexplained


Lister

Recommended Posts

Lister Rising Star

So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



odcdinah Contributor

[i've been gluten-free for 2 months, and have had similar ups and then downs...I've had the same "kind of like gas experience). I've finally given up trying to figure it all out and chalking it up to the healing process - it's really helped my peace of mind. My gas production seems to have increased since going gluten-free. Go figure!

quote name='Lister' date='Jun 8 2006, 09:14 AM' post='150274']

So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts

Guhlia Rising Star

Celiac can cause canker sores. And gosh are they painful. I hope it goes away for you quickly.

As far as the gas-like thing you describe. I used to get that all the time. I still do sometimes. I think it's pretty normal.

Has your doctor checked you for other intolerances? Other intolerances can impede your progress immensly.

Lister Rising Star

nope not sure how to check. hes trying to do anything he can without using money as he already racked me up 3k in bills since i dont have insurance, and i dont seem to have a problem with anything besides dairy but from what i read that may go away with time

canker sore acually already went away, only lasted about 7 hours

ravenwoodglass Mentor
So im trying to figure out whats going on but my doctor looked at me like im crazy, basically it keeps feeling and sounding like im passing gas, but instead of coming from my rectum its coming from inside of me like close to the rectum or my left side, it literaly feels like im passing gas but its inside of me, anyone know about this??

also the farther i get into this diet the more i think maybe the doctor missed somethign to test for and maybe the one thing that makes him think im gluten sensative (subsaren folds in small intestine) may be caused by something else, as everything is back to how it was im no longer a 4 on the poop scale and am back down to a 2 with mucus, all the healing i had come along with has reverted, i know you all say it can take time but when there is no evedince of healing anymore it really makes me feel unsertain that this is doing anything for me besides making me depressed. my stomic hurts and i feel like im going to throw up all day long lately. i have isolated anything that may contain gluten and i know for a fact that im doing nothing wrong i wont even go out to eat as much as my girlfriend wants to and i just keep cooking my own meals so i know thats safe, all my house prodcuts are safe and same with persnol care products

also what causes canker sores, i have a white little bump on the inside of my lip and it really hurts

Lister does your girlfreind wear lipsticks or glosses? Does she wear makeup, or use lotions in places you like to get close to?

Lister Rising Star

yeah but she already went to this site and reaserched her makeup and gloss's, everything she uses is either avon or blistex made, and everything is gluten-free

penguin Community Regular
yeah but she already went to this site and reaserched her makeup and gloss's, everything she uses is either avon or blistex made, and everything is gluten-free

Keep in mind that since she isn't gluten-free, her makeup isn't either, especially lip glosses. For example, she eats a big gluteny slice of pizza, and then puts on her blistex and gluten gets into her lip gloss. Just a thought. I had issues with old chapstick after going gluten-free.

The canker sore you had was probably an allergic reaction to something, since it only lasted 7 hours. I'm allergic to tree nuts and get a rash on the inside of my mouth from it that lasts anywhere from a few hours to a few days.

As far as that gassy feeling, I get that too and I normally attribute it to bowel contractions and noises.

I know it sucks so far, but give it time and it will get better! About a month in I felt great, and then I started being worse off than I was before, but I got better again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice

I often experience the same gas stuff :ph34r:

Lister Rising Star

i was wrong about the caker sore, i just happend to pop the head with my teeth and did not notice i still got it, trying not to fiddle it with my tounge

Guhlia Rising Star

Is Orajel gluten free? If so, that may give you temporary relief. I have a prescription from my doctor for some barrier steroid cream. I get ulcers all the time when I get glutened. It's miserable!!!

Lister Rising Star

does the steroid cream also work for caker sores?

Guhlia Rising Star

I'm not sure how big of a difference there actually is between canker sores and ulcers. I always thought they were kind of the same thing. I'm sure it would, but you'd have to ask your doctor. It works really well. It tastes horrible though, so if he prescribes you something, make sure it doesn't touch your tongue until it dries. Eck... I made that mistake once.

Lister Rising Star

i thought a ulcer was a bleeding inside of you???

talked to my doctro about my stomic grumbles that i get if i dont eat every 40 minutes he says im starving myself and my body is going to starvation mode, i explained that i literaly eat every 40 minutes and he said it does not matter your body is going into starvation mode well wtfam i suppsoed to do lol

Guest nini

I guess you might have to snack constantly! It's called "grazing"... just keep picking at snacky stuff all day, if you want to have a meal meal, eat til you are feeling full

Guest Robbin

Lister, I get canker sores, sore throat and mouth rashes from dairy products. My son gets mouth sores from anything he is allergic to. Maybe you should keep a food journal and write down everything you eat including all the ingredients in the food, then record your symptoms. Try not to eat new things until you get to the bottom of it. It could be one of the common allergy- causing foods (nuts, soy, corn, dairy, eggs). I know this sounds like a broken record, but it could also be the healing process or hidden gluten. I was sicker feeling sometimes than before I cut out gluten for the first couple of months. The gluten seems to slowly "work its way out" like some weird alien!!! :blink: Take care and keep us posted.

Lister Rising Star

i think the canker sore was just random, i used to get them alot as a kid have not had one for a very long time, its in the worst spot right infront of my front teeth, so i keep rubbing it with my teeth ripping it open so its gonna take a bit for it to heal, i dont think it had anything to do with a reaction to anything i think it either is part of the healing or just random, this healing is really started to f me up, my hands look like a 80 year old from all the extra wrinkles and cracking thats happening

Lister Rising Star

im acually doing farly better atleast parshaly, can the stomic a grumbls and pain be assoseated with healing because for the past 3 days now the pain and grouble is getting worse and lasts longer i had a groumble today last over a minute of none stop groumboling, also im getten bad bad cramps on my left side, but i know im not glutened because i can still see strait and think proporly

Lister Rising Star

talked to my doctor today, about my stomic grumbles and exactly what they feel like and sound like, he says im starving myself, i told him about the fact that i eat every 40 minutes to keep it calml he says it does not matter i just need to snack like every 30 on something like vegetables and still eat whole meals, for some reason during my healing process my body is going into a starvation mode aparently im not abosorbing as much food as i thought i was :(

i personaly think that the reason it goes away if i eat really often is because, its just what my bowls do if there not busy digesting, so the second im not digesting food my stomic starts to hurt and attacks me, that cant be good i wonder if im doing damage when i sleep??

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,094
    • Most Online (within 30 mins)
      7,748

    Hauama
    Newest Member
    Hauama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
×
×
  • Create New...