Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious Question


num1habsfan

Recommended Posts

Nantzie Collaborator

Ya know, my husband asked me about this when we were watching something about Hurricane Katrina. I told him that in my case (gluten intolerant, not celiac) that in dire, desperate circumstances, if there was no other choice, I could eat gluten. BUT, I probably wouldn't be able to walk very far, have TONS of "digestive disturbances" AND I'd be a real mood-swinging b!tch on top of all that. So the plan is to have gluten-free stuff in our emergency food stash. Because I'd hate to see the poor man deal with a glutened wife on top of a flood or earthquake. It would pretty much have to get to that point before I ate gluten though.

But, that's considering the fact that I don't really have an appetite since going gluten-free. I forget to eat all the time. I actually don't even realize it until I start getting a headache. I just don't get the feeling of hunger in my stomach much anymore. And that's coming from someone, before gluten-free, who ate nearly constantly. Seriously.

I think really it's a real individual situation. If you get hungry, it would be a real hard decision. It would depend on how long you're going without food, how painful your hunger gets, how bad your reaction is, and how long your reaction lasts. Kind of like being between a rock and a hard place; pain now vs. pain later.

Nancy

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

I wouldn't eat the gluten either. I do have hypoglcemia, too, but usually keep a coke with me or some Hershey's kisses in my purse to help in times of need. I think if it were for a long, extended period of time, there would be something that I could survive on...fruit, nuts, fritos, potato chips....not necessarily choice items, but things to get me through.

utdan Apprentice

I would go hungry until I found something gluten-free I could eat. Of course, I can't say what I would do in not eating for 4-5 days because I've never been there. I don't see a situation like that happening though with the abundance of fruits and vegetables and nuts around.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748

    Terry49
    Newest Member
    Terry49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...