Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Blood Cells Abnormal


happiestgirl

Recommended Posts

happiestgirl Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I have "petite" red blood cells, also. I had a doctor tell me that it had to do with a genetic disorder (that effects those of middle eastern descent?). That doctor was an idiot, she also tried to tell me I threw up because I was bulemic :rolleyes: Right, that whole excruciating pain thing had nothing to do with it.

But I digress...

It's my understanding that small blood cells have to do with iron deficiency anemia, and isn't as big a deal as it sounds. In my understanding, it's iron deficiency anemia. With celiac, we tend to get really bad anemia.

Guest Robbin

Hi and welcome! Love your name-Happiestgirl!

I had severe anemia at one point and the dr. told me a similar thing--sickly red blood cells. I know there are some people on here who have had pernicious anemia as well. I think you have found the right place here (lots of great info) and that you will be feeling better soon. Take care,

Robbin

loraleena Contributor

My red cell are ok, but my platelets are low. Now they think I have an autoimmune disorder that attacks my platelets. What the heck! I wonder is blood issues are related?!

  • 4 weeks later...
coldandhardy Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.

Many years ago the family doctor discovered that my blood cells looked malformed (I don't recall if it was the red's or the white's). He suggested it may be cancer so they put me in the hospital for checks. All of the family from many miles around came to see me off (so to speak) over the next week or so. Then it was discovered that I had mono (kissing disease) and that odd looking blood cells are common with the disease! Here I am 40+ years later. Still kicking (and kissing too) :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,094
    • Most Online (within 30 mins)
      7,748

    LKarra
    Newest Member
    LKarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
    • Scott Adams
      Good to know, here is their website: https://polly-o.com/
    • Scott Adams
      No cure so far, and a treatment might still be years away. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      I'm not sure the article would be misleading, as it offers many different avenues to pursue for those with ongoing symptoms. The recommendation to keep a food diary and remove common food intolerance triggers would be a good way to discover issues with casein/milk, especially if you added that back to your diet after a couple of months and your symptoms returned. Many additional food intolerance issues can be permanent in some people. 
    • RDLiberty
      Thank you for this! "Medical" advice, and I use the term loosely, is so rampant and so unproven nowadays (I even have relatives that fall down these rabbit holes and are shocked I don't follow.), so I am skeptical of everything. I appreciate the confirmation of my suspicions that this was more hearsay. Onward with my rice and corn. lol
×
×
  • Create New...