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Red Blood Cells Abnormal


happiestgirl

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happiestgirl Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.


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penguin Community Regular

I have "petite" red blood cells, also. I had a doctor tell me that it had to do with a genetic disorder (that effects those of middle eastern descent?). That doctor was an idiot, she also tried to tell me I threw up because I was bulemic :rolleyes: Right, that whole excruciating pain thing had nothing to do with it.

But I digress...

It's my understanding that small blood cells have to do with iron deficiency anemia, and isn't as big a deal as it sounds. In my understanding, it's iron deficiency anemia. With celiac, we tend to get really bad anemia.

Guest Robbin

Hi and welcome! Love your name-Happiestgirl!

I had severe anemia at one point and the dr. told me a similar thing--sickly red blood cells. I know there are some people on here who have had pernicious anemia as well. I think you have found the right place here (lots of great info) and that you will be feeling better soon. Take care,

Robbin

loraleena Contributor

My red cell are ok, but my platelets are low. Now they think I have an autoimmune disorder that attacks my platelets. What the heck! I wonder is blood issues are related?!

  • 4 weeks later...
coldandhardy Newbie

Last year (in September of 2005, I believe), I had some routine blood work done, and my doctor told me that my red blood cells were "extraordinarily tiny," and "malformed." He said they looked like frisbees that had been held over an open flame and had twisted and turned at odd angles. He never went into details about it, so I don't know if there is a name for this condition, or even if it is Celiac-related. I've always been anemic, and the last round of bloodwork showed a "dangerously low level" of iron in my blood. I was just Dx'ed with Celiac last month, and am still trying to accept it and understand all the changes I am now required to make and still live a semi-normal life. I do have a family history of Myelodysplastic Syndrome (or "pre-leukemia") in my family, but with all the other life-long health problems I have that are seeming to relate to Celiac in one way or another (or both!), I just wondered if anyone else had this kind of red blod cell thing happen to them. I am a bit confused and very scared. I guess I just don't know how to ask my Doc about it without sounding paranoid or panicky. Any info or insight any of y'all could provide would indeed mean the world to me. Thanks for reading this and many blessings to you and yours.

jenn.

Many years ago the family doctor discovered that my blood cells looked malformed (I don't recall if it was the red's or the white's). He suggested it may be cancer so they put me in the hospital for checks. All of the family from many miles around came to see me off (so to speak) over the next week or so. Then it was discovered that I had mono (kissing disease) and that odd looking blood cells are common with the disease! Here I am 40+ years later. Still kicking (and kissing too) :)

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    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
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      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
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