Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better

TCA

Recommended Posts

schuyler Apprentice
schuyler
Posted

I hope that Meg is having a good day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 882
  • Created
  • Last Reply
Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Good night, Tanya--hope you and Meg had a good day and will have a restful night!

TCA Contributor
TCA
Posted
  • Author

Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

Judyin Philly Enthusiast
Judyin Philly
Posted
Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

wow we meeting at the same time tonight

wish i could see you :) thought of your all day today.

just ck'n when saw you were on.

hope the R MC house comes through.

Going to ck the other site finally.

glad Megan had a good day thus maybe mom did too.

love and prayers

judy

DingoGirl Enthusiast
DingoGirl
Posted
Almighty God, our Father,

I add my prayer to the pleas of many others for the healing of your precious child, Megan.

In the Name of Jesus, our Messiah and Rabbi,

Lord, in Your Mercy, hear our prayer.

Cissie

Amen........ :)

Cheri A Contributor
Cheri A
Posted

Glad that Meg had a good day yesterday and that your parents are there! I pray that today goes smoothly with all that needs to be done today and that God gives you an extra measure of peace and some great time with both Cole and Megan. Will be on my knees tommorrow!!

Tony'sMom Rookie
Tony'sMom
Posted

I continue to keep Megan and your family in my thoughts and prayers.

Hugs.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

In case you forgot she is putting updates on : Open Original Shared Link

Heres the lastest entry...

FRIDAY, JULY 21, 2006 01:25 PM, CDT

I just heard from Megan's surgeon's office and the time of her surgery has been changed to 7:45 am next Tues (7/25). I'm not sure what happened to the baby scheduled before her, but please remember that family in prayer too.

She has a preop appt. at 1:15 on Monday, so we'll spend the night in Nashville. I pray we get into Ronald McDonald House. It's such a wonderful resource. It's full of families in similar situations and all the love you can imagine.

Megan seems to feel better today than she's felt in a long time. I'm glad she's feeling more like playing.she's been using her dress to play Peek-a-Boo and it's just adorable.

Thanks for all the messages and phone calls. We appreciate all the love, prayers and concerns from all of you. Hugs to all!

Guest Robbin
Guest Robbin
Posted

We will be praying tomorrow (Tues) at 7:45 am for our little precious Meg. Prayers for you all for peace, strength and rest. :)

Nic Collaborator
Nic
Posted

Good luck with Megan tomorrow. I hope that all goes well for her :) .

jaten Enthusiast
jaten
Posted

Many deep and sincere prayers and much love.

Lisa Mentor
Lisa
Posted

I will set my clock and be with you in spirit. xxoo

mouse Enthusiast
mouse
Posted

I will be praying special prayers for Megan and all of you tomorrow. HUGS.

penguin Community Regular
penguin
Posted

I pray that the doctors hands move quickly and precisely, and that Meg will pull through like a champ. Good luck tomorrow. :)

schuyler Apprentice
schuyler
Posted

Good luck Meg! I'll be saying lots of prayers for you, your family, and your surgeons (and the rest of the hospital staff).

Danielle

jerseyangel Proficient
jerseyangel
Posted

Good luck tomorrow, little one. I've said all along that you were a trooper! My prayers will be with you and your family. :)

VydorScope Proficient
VydorScope
Posted

UPDATE UPDATE UPADTE

I just got off the phone with TCA. I read her the gist of the posts her and she said your all very sweet. :D They are in a hotle beucase there is no room in the Ron Mcdonal house right now, so they are on a wiating list.

Megan is doing well, she has GAINED SOME WIEGHT EVEN!! :) She is 17 pounds, 13 oz!Theres a team of docs treating her for this and one of them is a bit concerned about one of the "stats" being at 70% but other then that it looks like a good for surgry first thing tommorow am. They need to be there at 6am for it. Her step mom will be staying with Cole in the hotel so that both Mom and Dad cna go in with Megan.

After the surgy Megan will be in Pedi Intensive Care for "couple" of weeks then moved to a regular room.

After the surgry she will call her sister, and her sister will update Megan's site with teh most current info, so make sure your watching that tommorow.

Thats everything I know at this time!

END UPDATE!

jerseyangel Proficient
jerseyangel
Posted

Thanks so much, Vincent :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Tanya--wished on a star tonight! My husband is getting up early to take a download of Megan's website to the Sisters of Divine Providence's prayer board. Lots of good thoughts, prayers, and love from Alison & co.

Judyin Philly Enthusiast
Judyin Philly
Posted

Well it's 12:13 on the 'big day' I pray your sleeping sounding while we're sending our love and prayers.

Went and spent some time with the 'stars' and now holding (after i finish typing) my mustard seed.

I too will set my alarm for your 6:00 am 'send off' into the journey toward good health and healing, little megan. You are one precious little child to us all.

love

Judy

Guest Robbin
Guest Robbin
Posted

Thank you Vincent for the update. I will set my alarm, too and all of our combined prayers will be in unison for our dear little Meg :) . I love the pictures on the website. What a doll!

Judyin Philly Enthusiast
Judyin Philly
Posted

Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Camille'sBigSister Newbie
Camille'sBigSister
Posted

Vincent, thank you for the update. My prayers for Megan, God's precious child, are joining with all others in the vast stream flowing to The Throne of Grace.

Lord, in Your mercy, hear our prayer.

Christ, in Your mercy, hear our prayer.

Lord, in Your mercy, hear our prayer.

Amen and amen.

Cissie

AndreaB Contributor
AndreaB
Posted

Thanks for the update Vincent. :P

VydorScope Proficient
VydorScope
Posted
Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Theres a guest book you can sign, but that site is mainly for READING updates.

4am here in Nashville... in 2 houurs she will be at the hosptial. :mellow:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    2. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    3. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,097
    • Most Online (within 30 mins)
      7,748
    Hana B
    Newest Member
    Hana B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.