Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

schuyler Apprentice

I hope that Meg is having a good day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
Fiddle-Faddle Community Regular

Good night, Tanya--hope you and Meg had a good day and will have a restful night!

TCA Contributor

Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

Judyin Philly Enthusiast
Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

wow we meeting at the same time tonight

wish i could see you :) thought of your all day today.

just ck'n when saw you were on.

hope the R MC house comes through.

Going to ck the other site finally.

glad Megan had a good day thus maybe mom did too.

love and prayers

judy

DingoGirl Enthusiast
Almighty God, our Father,

I add my prayer to the pleas of many others for the healing of your precious child, Megan.

In the Name of Jesus, our Messiah and Rabbi,

Lord, in Your Mercy, hear our prayer.

Cissie

Amen........ :)

Cheri A Contributor

Glad that Meg had a good day yesterday and that your parents are there! I pray that today goes smoothly with all that needs to be done today and that God gives you an extra measure of peace and some great time with both Cole and Megan. Will be on my knees tommorrow!!

Tony'sMom Rookie

I continue to keep Megan and your family in my thoughts and prayers.

Hugs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

In case you forgot she is putting updates on : Open Original Shared Link

Heres the lastest entry...

FRIDAY, JULY 21, 2006 01:25 PM, CDT

I just heard from Megan's surgeon's office and the time of her surgery has been changed to 7:45 am next Tues (7/25). I'm not sure what happened to the baby scheduled before her, but please remember that family in prayer too.

She has a preop appt. at 1:15 on Monday, so we'll spend the night in Nashville. I pray we get into Ronald McDonald House. It's such a wonderful resource. It's full of families in similar situations and all the love you can imagine.

Megan seems to feel better today than she's felt in a long time. I'm glad she's feeling more like playing.she's been using her dress to play Peek-a-Boo and it's just adorable.

Thanks for all the messages and phone calls. We appreciate all the love, prayers and concerns from all of you. Hugs to all!

Guest Robbin

We will be praying tomorrow (Tues) at 7:45 am for our little precious Meg. Prayers for you all for peace, strength and rest. :)

Nic Collaborator

Good luck with Megan tomorrow. I hope that all goes well for her :) .

jaten Enthusiast

Many deep and sincere prayers and much love.

Lisa Mentor

I will set my clock and be with you in spirit. xxoo

mouse Enthusiast

I will be praying special prayers for Megan and all of you tomorrow. HUGS.

penguin Community Regular

I pray that the doctors hands move quickly and precisely, and that Meg will pull through like a champ. Good luck tomorrow. :)

schuyler Apprentice

Good luck Meg! I'll be saying lots of prayers for you, your family, and your surgeons (and the rest of the hospital staff).

Danielle

jerseyangel Proficient

Good luck tomorrow, little one. I've said all along that you were a trooper! My prayers will be with you and your family. :)

VydorScope Proficient

UPDATE UPDATE UPADTE

I just got off the phone with TCA. I read her the gist of the posts her and she said your all very sweet. :D They are in a hotle beucase there is no room in the Ron Mcdonal house right now, so they are on a wiating list.

Megan is doing well, she has GAINED SOME WIEGHT EVEN!! :) She is 17 pounds, 13 oz!Theres a team of docs treating her for this and one of them is a bit concerned about one of the "stats" being at 70% but other then that it looks like a good for surgry first thing tommorow am. They need to be there at 6am for it. Her step mom will be staying with Cole in the hotel so that both Mom and Dad cna go in with Megan.

After the surgy Megan will be in Pedi Intensive Care for "couple" of weeks then moved to a regular room.

After the surgry she will call her sister, and her sister will update Megan's site with teh most current info, so make sure your watching that tommorow.

Thats everything I know at this time!

END UPDATE!

jerseyangel Proficient

Thanks so much, Vincent :)

Fiddle-Faddle Community Regular

Tanya--wished on a star tonight! My husband is getting up early to take a download of Megan's website to the Sisters of Divine Providence's prayer board. Lots of good thoughts, prayers, and love from Alison & co.

Judyin Philly Enthusiast

Well it's 12:13 on the 'big day' I pray your sleeping sounding while we're sending our love and prayers.

Went and spent some time with the 'stars' and now holding (after i finish typing) my mustard seed.

I too will set my alarm for your 6:00 am 'send off' into the journey toward good health and healing, little megan. You are one precious little child to us all.

love

Judy

Guest Robbin

Thank you Vincent for the update. I will set my alarm, too and all of our combined prayers will be in unison for our dear little Meg :) . I love the pictures on the website. What a doll!

Judyin Philly Enthusiast

Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Camille'sBigSister Newbie

Vincent, thank you for the update. My prayers for Megan, God's precious child, are joining with all others in the vast stream flowing to The Throne of Grace.

Lord, in Your mercy, hear our prayer.

Christ, in Your mercy, hear our prayer.

Lord, in Your mercy, hear our prayer.

Amen and amen.

Cissie

AndreaB Contributor

Thanks for the update Vincent. :P

VydorScope Proficient
Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Theres a guest book you can sign, but that site is mainly for READING updates.

4am here in Nashville... in 2 houurs she will be at the hosptial. :mellow:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

    2. - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

    3. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Water filters are a potential problem for Celiac Disease

    4. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    5. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,574
    • Most Online (within 30 mins)
      7,748

    vika
    Newest Member
    vika
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Reverse osmosis water pulls electrolyte minerals out of the body.  If used for cooking, RO water will even pull even more electrolytes out of the food.  If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance.  The symptoms of Electrolyte Imbalance are similar to those that occur with being exposed to gluten.   Also consider that many people with Celiac disease have malabsorption issues and may already be low in electrolytes.  Exposure to RO water may create some health changes more quickly than in healthier individuals.   RO water impacts the body in many ways.  Read this fascinating study.   Long-Term Consumption of Purified Water Altered Amino Acid, Fatty Acid and Energy Metabolism in Livers of Rats https://pmc.ncbi.nlm.nih.gov/articles/PMC11122726/ Drink mineral water.  
    • Wheatwacked
      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.