Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

schuyler Apprentice

I hope that Meg is having a good day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
Fiddle-Faddle Community Regular

Good night, Tanya--hope you and Meg had a good day and will have a restful night!

TCA Contributor

Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

Judyin Philly Enthusiast
Megan had a pretty good day today. We've been very busy packing. Our preacher came by and annointed her. My parents are here and Jarod's parents will meet us in Nashville tomorrow to help with Dr. appts. So far we're not in Ronald McDonald House, but hopefully we will tomorrow. Thanks to all of you for the constant prayers and support you have given. You are each a blessing to our family. Check the webpage for further updates!

Love and Hugs,

Tanya

wow we meeting at the same time tonight

wish i could see you :) thought of your all day today.

just ck'n when saw you were on.

hope the R MC house comes through.

Going to ck the other site finally.

glad Megan had a good day thus maybe mom did too.

love and prayers

judy

DingoGirl Enthusiast
Almighty God, our Father,

I add my prayer to the pleas of many others for the healing of your precious child, Megan.

In the Name of Jesus, our Messiah and Rabbi,

Lord, in Your Mercy, hear our prayer.

Cissie

Amen........ :)

Cheri A Contributor

Glad that Meg had a good day yesterday and that your parents are there! I pray that today goes smoothly with all that needs to be done today and that God gives you an extra measure of peace and some great time with both Cole and Megan. Will be on my knees tommorrow!!

Tony'sMom Rookie

I continue to keep Megan and your family in my thoughts and prayers.

Hugs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

In case you forgot she is putting updates on : Open Original Shared Link

Heres the lastest entry...

FRIDAY, JULY 21, 2006 01:25 PM, CDT

I just heard from Megan's surgeon's office and the time of her surgery has been changed to 7:45 am next Tues (7/25). I'm not sure what happened to the baby scheduled before her, but please remember that family in prayer too.

She has a preop appt. at 1:15 on Monday, so we'll spend the night in Nashville. I pray we get into Ronald McDonald House. It's such a wonderful resource. It's full of families in similar situations and all the love you can imagine.

Megan seems to feel better today than she's felt in a long time. I'm glad she's feeling more like playing.she's been using her dress to play Peek-a-Boo and it's just adorable.

Thanks for all the messages and phone calls. We appreciate all the love, prayers and concerns from all of you. Hugs to all!

Guest Robbin

We will be praying tomorrow (Tues) at 7:45 am for our little precious Meg. Prayers for you all for peace, strength and rest. :)

Nic Collaborator

Good luck with Megan tomorrow. I hope that all goes well for her :) .

jaten Enthusiast

Many deep and sincere prayers and much love.

Lisa Mentor

I will set my clock and be with you in spirit. xxoo

mouse Enthusiast

I will be praying special prayers for Megan and all of you tomorrow. HUGS.

penguin Community Regular

I pray that the doctors hands move quickly and precisely, and that Meg will pull through like a champ. Good luck tomorrow. :)

schuyler Apprentice

Good luck Meg! I'll be saying lots of prayers for you, your family, and your surgeons (and the rest of the hospital staff).

Danielle

jerseyangel Proficient

Good luck tomorrow, little one. I've said all along that you were a trooper! My prayers will be with you and your family. :)

VydorScope Proficient

UPDATE UPDATE UPADTE

I just got off the phone with TCA. I read her the gist of the posts her and she said your all very sweet. :D They are in a hotle beucase there is no room in the Ron Mcdonal house right now, so they are on a wiating list.

Megan is doing well, she has GAINED SOME WIEGHT EVEN!! :) She is 17 pounds, 13 oz!Theres a team of docs treating her for this and one of them is a bit concerned about one of the "stats" being at 70% but other then that it looks like a good for surgry first thing tommorow am. They need to be there at 6am for it. Her step mom will be staying with Cole in the hotel so that both Mom and Dad cna go in with Megan.

After the surgy Megan will be in Pedi Intensive Care for "couple" of weeks then moved to a regular room.

After the surgry she will call her sister, and her sister will update Megan's site with teh most current info, so make sure your watching that tommorow.

Thats everything I know at this time!

END UPDATE!

jerseyangel Proficient

Thanks so much, Vincent :)

Fiddle-Faddle Community Regular

Tanya--wished on a star tonight! My husband is getting up early to take a download of Megan's website to the Sisters of Divine Providence's prayer board. Lots of good thoughts, prayers, and love from Alison & co.

Judyin Philly Enthusiast

Well it's 12:13 on the 'big day' I pray your sleeping sounding while we're sending our love and prayers.

Went and spent some time with the 'stars' and now holding (after i finish typing) my mustard seed.

I too will set my alarm for your 6:00 am 'send off' into the journey toward good health and healing, little megan. You are one precious little child to us all.

love

Judy

Guest Robbin

Thank you Vincent for the update. I will set my alarm, too and all of our combined prayers will be in unison for our dear little Meg :) . I love the pictures on the website. What a doll!

Judyin Philly Enthusiast

Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Camille'sBigSister Newbie

Vincent, thank you for the update. My prayers for Megan, God's precious child, are joining with all others in the vast stream flowing to The Throne of Grace.

Lord, in Your mercy, hear our prayer.

Christ, in Your mercy, hear our prayer.

Lord, in Your mercy, hear our prayer.

Amen and amen.

Cissie

AndreaB Contributor

Thanks for the update Vincent. :P

VydorScope Proficient
Vincent

Thanks so much for the post

I went to the site and didn't see where we could post on it. Are we susposed to post or is it for Tanya's updates to family? I also didn't see the 2 posts you put up on the other site..were they there and I missed them some how??

judy

Theres a guest book you can sign, but that site is mainly for READING updates.

4am here in Nashville... in 2 houurs she will be at the hosptial. :mellow:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.