Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

nikki-uk Enthusiast

Thinking of Megan today,sending prayers to all the family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
Camille'sBigSister Newbie

Vincent, I forgot about Nashville being on Central Time. What hospital will Megan be in? Continuing to pray.

Cissie

VydorScope Proficient
Vincent, I forgot about Nashville being on Central Time. What hospital will Megan be in? Continuing to pray.

Cissie

Not sure on spelling, but its called Vanderbilt Childners Hosptial. The exact name/info is on Megan's page that I liked a few posts back....

5:56 here... which means two things... first Im gonna be late to work :) second they are either there, or almost there now..... :mellow:

Rachel--24 Collaborator

Meagn is in my thoughts and prayers this morning. So happy to hear that she has gained weight. Thanks for the updates Vincent. :)

Canadian Karen Community Regular

Wow! How did I miss all this happening???? Thanks for the link Vincent, so I can get caught up on what's going on......

Firstly, Vincent, what can I say? You are an amazing human being and I think this is a perfect example of how God uses us mere mortals as his guardian angels to help do His work. You truly are a guardian angel. He truly does work in mysterious ways.......

My thoughts will be with this beautiful child and will be praying REALLY, REALLY strong for her......

I also have tears in my eyes just reading through the thread and realizing once again how amazing the people here are and just how much you can be counted on when the chips are down and when someone needs friends to lean on.....

God bless you all........

Hugs.

Karen

VydorScope Proficient

:huh: 7:45am Nashvile time now. If all is well, Megan is starting her surgery now.... :huh:

I prbly wont hear any updates for a few hours at least :(

VydorScope Proficient

UPDATE UPDATE UPDATE!

This is form her site, her sister posted this...

TUESDAY, JULY 25, 2006 08:10 AM, CDT

Just heard from Tanya, they have just taken Megan back. They had given her some medicine to make her loopy, and she was. Tanya said that they would let them know something in 1 hour - 1.5 hours after they got the IV's in; at this point they would start the procedure. It should take around 5-6 hours. I will post every time I get an update.

Cotrena


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KayJay Enthusiast

Thank you for the updates. I will be in prayer all day for this sweet baby girl.

dlp252 Apprentice

Adding my prayers this morning!

VydorScope Proficient

UPDATE UPDATE UPDATE UPDATE!!!

TUESDAY, JULY 25, 2006 09:59 AM, CDT

Tanya just called and said that they made the incision about 10 minutes ago. It took them a while to get the IV's started because of veins. But they did say that she went to sleep very peacefully. They are going to give them updates in another 1-2 hours

Judyin Philly Enthusiast

Thanks Vincent

I finally was able to post on Tanya's hospital thread.

Appreciate you adding the up dates. Think it's great to keep this thread going during the day too.

Hugs and deep appreciation.

judy

VydorScope Proficient

UPDATE UPDATE UPADATE!!

TUESDAY, JULY 25, 2006 11:34 AM, CDT

Just got another call from Tanya. She said she talked to one of the nurses. The nurse said that everything was going just wonderful right now. It was one of the smoothest surgeries that they had seen. They planned on taking their time so it would be another 3-4 hours before they were done.

WOOHOO!!!!!

Judyin Philly Enthusiast
UPDATE UPDATE UPADATE!!

WOOHOO!!!!!

was just on the rachel thread cause saw patti posted and saw you were covering that base too.

just found the new post and came here and saw you've gotten right on it.

you are amazing.

what great news...so far so good.

judy

PS, WHEN I SEE LITTLE TYMBER PRAYING BESIDE YOUR POSTS, IT TAKES MY BREATHE AWAY...WHAT A DAY HUGH??? YOUR LITTLE GUY IS SO CUTE..DOES HE ALWAYS SMILE LIKE THAT? LOOKED AT THE PHOTO ALBUM LAST NITE AND SO ENJOYED YOUR FAMILY PHOTOS.

Canadian Karen Community Regular

Everyone keep the prayers going their way!!!!!

Hugs.

Karen

Rachel--24 Collaborator

YAY!!!

Great news Vincent....thanks for the updates.

VydorScope Proficient

MEGAN UPDATE !!

TUESDAY, JULY 25, 2006 12:30 PM, CDT

Tanya called with another update: Everything is still going really they are in the process of repairing the VSD (which is the hole in the heart). They have her on the by pass machine. They still have to replace the shunt and enlarge the pulmonary arteries (not sure if this is 1 or more than 1, sorry, I just don't have any medical sense). She still has a long way to go, but thankfully, she is doing so well.

Cotrena

penguin Community Regular

Yay! Thanks for updating, Vincent!

AndreaB Contributor

Thank you so much for the updates Vincent.

It is a relief that things are going so well.

What a trouper she is. :P

Lisa Mentor

Vincent:

Thanks, and have been hopfully watching for every post.

Have you heard anything from Debbie W, from McD's House yet?

Lisa

VydorScope Proficient
Vincent:

Thanks, and have been hopfully watching for every post.

Have you heard anything from Debbie W, from McD's House yet?

Lisa

I emailed you alittle bit ago on this, but no.

schuyler Apprentice

Thanks for the updates Vincent. I'm glad that Meg's doing well!

Danielle

Judyin Philly Enthusiast

thanks vincent..wonderful news!

are you trying to 'spin more miracles' at the Ronald Mc D house too.?

what a friend!

judy

VydorScope Proficient

WOW!!!

TUESDAY, JULY 25, 2006 02:05 PM, CDT

Just got word from Nashville, the surgery is over and Megan is doing really well. The cardiologist had came out and talked to Jarod and Tanya. He told them that the surgery went really well. The surgeon had just came out and said that they were able to do everything that they had wanted to do and that he was very pleased. Her oxygen saturation level was 100% (which is what normal is). Now is the wait and see process. They will have to let her body heal and get regualted. Prayers have definitely been the power source today.

They would transfer Megan up to PICU. After she got settled there, Jarod and Tanya could see her. Tanya anticipated that this should take about an hour or so.

Thanks so much to everyone for all of their prayers. I know I appreciate them for my beautiful little neice, and her parents even more so than me.

Cotrena

penguin Community Regular
WOW!!!

YAY!!!

jerseyangel Proficient

Yipee!! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,737
    • Most Online (within 30 mins)
      7,748

    Deb 212
    Newest Member
    Deb 212
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MommaBear82
      I just wanted to point out that the QUANTITY of exposure to eggs in baked goods would naturally be much less than if you were to eat a whole egg. I think that's why they appear to be tolerated in baked goods, but not as a stand-alone food. 
    • trents
      I would agree. The tests do not indicate you have celiac disease. So, if you are convinced that when you eliminate gluten from your diet your symptoms improve, I would conclude you have NCGS.
    • Jack Common
      My old results are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests as RMJ had suggested to do. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   As trents suggested I ate 6 slices of wheat bread before the tests during the challenge. My results: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   As I can understand I don't have celiac disease.
    • trents
      So it sounds like Global Foods has adopted the FDA standard for "gluten free" advertising.
    • cvernon
      Agreed, I am disappointed in the recent GFCO findings as well and definitely don't hold them in as high of a regard as I used to. I did find on the Global Foods website after posting that their required ppm limit is 20ppm, which isn't as low as I had hoped. I'll email and report back. Thx.
×
×
  • Create New...