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Megan's Gagging Isn't Any Better


TCA

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Fiddle-Faddle Community Regular

WOW! I"m just sitting here with tears running down my cheeks, I'm so happy! :)


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  • Replies 882
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jerseyangel Proficient
WOW! I"m just sitting here with tears running down my cheeks, I'm so happy! :)

I know--such a sense of relief! The best possible news :D

rinne Apprentice

Wonderful news. My prayers are with you all.

jenvan Collaborator

awesome news!

angel-jd1 Community Regular

Wow........seems like everything went so fast for Baby Meg today!! Prayers that she continues to do what is needed to get healthy!!

WOW! I"m just sitting here with tears running down my cheeks, I'm so happy!

I can't read the caring bridge messages to Meg and her Family without tears streaming down.

-Jessica :rolleyes:

VydorScope Proficient

Keep the prayers up... she has several weeks of hard recovery ahead... but this is GREAT AND WONDERFUL NEWS :)

AndreaB Contributor

Praise the Lord!


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Judyin Philly Enthusiast

:) Thank the Good Lord!

Judy

VydorScope Proficient

Judy, I do not work miricles... I just try to keep my self in postion to be a tool for Him to use...

Lisa... heard back from her, I'll email you the details, but baislcy everything that can be done has been done now...

Judyin Philly Enthusiast

sorry Vincent--that's what I meant but you said it better.

It's a blessing to be open to be the 'tool' through which God works his miracles.

judy

Canadian Karen Community Regular

That is absolutely WONDERFUL news!!!!!!!

Hugs.

Karen

penguin Community Regular

Vincent isn't on right now, but there is an update!

I just talked to Ms. Debbie (Jarod's mom), and she had just gotten to see Megan. She said she looks really good; nothing like the last time. Thanks to everyone that has said prayers for her today.

Cotrena

:D

mouse Enthusiast

That is such great news about Megan. Such a little trooper and a fighter to boot. Hugs and well wishes to Megan, Tanya and the family.

nikki-uk Enthusiast

Excellent news!!

Lets hope she has a speedy recovery.

What a relief,had to check in before I went to bed.

Night all :)

VydorScope Proficient
Vincent isn't on right now, but there is an update!

:D

Thanks Chel...err penguin! I was on the phone with insurance ppls trying to striaghten a mess out with my policy (prehaps you should pray I dont get my hand on some weapons right now...grrrr :angry: ) and was not up here. So goo work picking up the slack!!

imsohungry Collaborator

I'm so glad to see such wonderful news! :)

Prayers and blessings. Julie

Rachel--24 Collaborator

YAY!!

Just got home....this is such great news. I hope everything continues to go just as perfectly as it did today. :)

jaten Enthusiast

God is so good!

Judyin Philly Enthusiast

Thrilled that Megan looks so good.

prayers still coming.

Judy

Guest Robbin

THANK YOU GOD!!! I was unable to get online since earlier this a.m. and now I am just thrilled. Been praying all day for "our little Megan" !!!

schuyler Apprentice

God is so good! I am so happy that everything went well. Megan will continue to be in my thoughts and prayers, and I hope that things continue to go smoothly.

DingoGirl Enthusiast

Indeed, God is good....such wonderful news....let's keep our prayers going for little Meggan and family! :)

evie Rookie

Glad to get the GOOD news about megan's surgery going well. Am praying for the next few weeks to go just as well. Yes, God is GOOD. :):) evie

Luvs to Scrap Apprentice

Tanya and family: Just wanted to let you know that we've been praying and are so glad that all has gone well so far. Will continue to pray for a full recovery. Hugs! Kendra

VydorScope Proficient

I plan to call TCA tommorow and get a more personal update. I was thinking of calling tonight, but I think they prlby all exhausted from the stress. I'll pass along the comments in this thread to her when I do so dont type to much ! LOL

MEGAN UPDATE!!!

TUESDAY, JULY 25, 2006 10:15 PM, CDT

As I write tonight I am overwhelmed with thankfulness. Each of you had a huge part in today with your prayers for Megan. I was AMAZED when I saw her tonight. I didn't realize just how bad she looked last time until I saw how good she looked this time. She is starting to wake up, but is being kept sedated for pain. She's only on 2 IVs, the last time there were 18. Her color is so pink. Her nailbeds aren't blue anymore!!!! I'm praising God for his handiwork and thanking him for the wonderful doctors and nurses caring for her. We are so blessed. The next few days are still critical, but we are so relieved to be on this side of surgery. Still a ways to go, but this was a major step. She kept her prayer blanket made by Mrs. Betsy Supancik with her during surgery, and she is blanketed with prayer by all of you now.

We got into Ronald McDonald House tonight. The Andrews are staying with Cole there tonight and my parents are in a hotel. Cole did great today and we hope to let him see Megan tomorrow. Yesterday when we got to her preop appt. he announced "This is Megnie. She has a big boo-boo on her heart that's getting fixed and it's going to hurt real bad." The ever caring big brother.

Thanks again for EVERYTHING. Keep the prayers going - God's definitely hearing and healing!!!

Love to all, Jarod, Tanya, Cole, and Megan Hope

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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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