Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oscal D For Osteopenia

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

I tagged this on another thread but no one replied so I had to start a new topic. My GI doc gave me my bone scan results (which show I have Osteopenia) and there were three numbers ranging from -.09 to -1.6. She told me to take otc Oscal D, 500mg daily. She also told me to make sure it was gluten free.....thanks doc. Now I've read what everyone else here takes for Osteopenia (which I know is not as bad as Osteoperosis) and most of you take Fosamax or Actonel. Is an otc supplement really what I need? I don't want to take something that is not strong enough but I also prefer an otc pill to an rx if it will do the trick.

Please give me some opinions as I'm seeing my pcp next week and I'm going to see if she agrees with the GI or not. But from personal experience I trust you people (other patients) more than I do any doctor I've met to date.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

make sure to take a magnesium supplement. studies have shown that magnesium is just as, if not more, important as calcium in celiac patients for bone density. the appropriate quanity is whatever makes for a 2:1 calcium to magnesium ratio. (so, for every 500mg of calcium you take, you want 250mg of magnesium.)

jenvan Collaborator
jenvan
Posted

Also--great "bone builders" are exercise, walking and weight-lifting. My mom raised her levels back to normal (from osteopenia) with walking and weight-bearing exercise. She did not take any medications.

floridanative Community Regular
floridanative
Posted
  • Author

tarnalberry - yes I read another post of your about magnesium so I'm going to get that too. The Oscal D is gluten free - I called today. I'll get the magnesium and Oscal tomorrow. I have a shoulder injury so I can't do anything with my left arm but my pt excercises but I'll get on the treadmill for now. Hopefully my arm will heal and I can get back into power yoga which you can add weights to.

jenvan - how are you? Thanks for telling me about your Mom. I'm going to do the supplements for now and hopefully I can get off them eventually. I'm so glad to be off gluten but wish I'd found out about Celiac before I stopped absorbing so many nutrients. I'm about to go off iron but I'm staying on the folic acid rx and otc b12 for now. I feel like a 60 year old when I fill up my weekly pill box.

Guest greengirl
Guest greengirl
Posted

My ob/gyn thought that I had osteopenia based on a foot scan that she did in the office, however a full body DEXA scan showed that I was in the normal range. Anyway, if it had shown osteopenia she said she would have put me on Fosomax. I would probably get a 2nd opinion about taking only otc calcium. You wouldn't want time to go by and then find out that it wasn't enough to prevent osteoporosis from developing.

Christine

jenvan Collaborator
jenvan
Posted

Pming you :)

floridanative Community Regular
floridanative
Posted
  • Author

For those of you who understand supplements - my pcp told me I have to take 1000mg a day of the Oscal and that my numers on the scan are not high enough to warrant a calcium rx (yea!) but I'm taking magnesium too so I guess I have to take 2 of those with the 2 500mg Oscal pills. The magnesium I bought is a cheap gluten-free drugstore brand and it starts crumbling before I can swallow it and it tastes nasty. Is there a brand of magnesium that is coated that others have tried? I'll take the rest of what I have but I have to find another magnesium pill that is not so chalky.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
floridanative Community Regular
floridanative
Posted
  • Author

Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

Satori Newbie
Satori
Posted
Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

I've read a lot of stuff on needing the mag and I have to agree with it. My T-score is -1.4 and I've opted not to take the fosamax and just do the supps for a couple years and I do take higher then normal mag since I have chronically low levels of it when tested. (I still have serious malabsorption issues) There is stuff on it here on celiac.com https://www.celiac.com/st_prod.html?p_prodi...-36103509980.9e and they list several studies at the end.

BRUMI1968 Collaborator
BRUMI1968
Posted

Side effects of fosamax:

Stop taking FOSAMAX and call your doctor right away if you get any of these signs of possible serious problems:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,381
    • Most Online (within 30 mins)
      7,748
    Terri Constable
    Newest Member
    Terri Constable
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
×
×
  • Create New...