Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nervous, Nervous, Nervous!

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

Why am I so nervous about an effin' doctors appt? This is a new GI doc, the last one I saw two years ago was a total toolbox. :rolleyes: I don't like dentists for the same reason, one (ok two) bad apples in the bunch ruined the whole business of apples.

Apparently this one knows something about celiac, but I'm afraid he'll think I'm nuts! Of course, I have a doctor that actually diagnosed me celiac, but she didn't order an endo or anything. I have this big long list of symptoms and stuff, as much for me as for him, since I tend to forget things at dr appts. I'm going togive it to him along with copies of records from Dr. GI Toolbox and my most recent bloodwork. Here's what it says (sorry for yucky details):

As a child:

 GI workup around age 7, everything normal, stomachaches attributed to stress from siblings going to college

 Vomiting in the middle of the night (about every month)

As an adult:

 Mononucleosis summer 2002, sick for two months

 Beginning the following fall, diarrhea almost daily to present

 On-and-off anemia, elevated platelets

 Fall 2003- pyloric spasms start (ranging from weekly to every few months), no cause found after upper GI, ultrasound, and EGD

 Small ulcer found during EGD, attributed to heavy NSAID use. Treated with 60 day course of nexium. Didn’t effect spasms or diarrhea.

 Avoided oranges, tomatoes, and other acidic foods. Spasms happened anyway.

 Several h.pylori blood tests negative (taken about once a year)

 Spasm symptoms: moderate/severe abdominal pain, nausea, vomiting

 Spasms formerly treated with hydrocodone, levsinex, now treated with bentyl and phenergan

 Diagnosed with IBS, told to eat more whole grains. Didn’t help, made diarrhea worse.

 Celiac Panel in 1/06 – Only IgG comes out positive

 Gluten-free for four months, had some improvements

 Dr. Bartos makes Celiac diagnosis 2/24/06 after 3 weeks gluten-free

 Allergy testing 3/06, no food allergies

 Back on gluten 5/19/06

 Currently taking daily: Prilosec, Kariva. As needed: Bentyl, phenergan

 Other symptoms (GI or Otherwise):

o Heartburn

o Flu-like muscle aches (no fever)

o Facial numbness

o Lack of concentration (Spaced-out feeling)

o Feeling of intoxication

o Mouth sores (painful white patches)

o Foul gas

o Foul stools

o Lightly colored stools (from bright/pale yellow to orange)

o Loose stools (often bulky)

o Mucus in the stools

o Passing undigested food (especially vegetables and fruits, cooked or raw)

o Problems drinking milk, but cheeses and yogurt ok

o Tingling in hands and toes

o Tingling in the scalp (feels like my hair is falling out?)

o Lower abdominal cramping

o Charley horses (hereditary, have them at least once a week)

o Fatigue

o Gas and bloating

Um...anything else I should include? Am I nuts? I'm flipping out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

..

Felidae Enthusiast
Felidae
Posted

I know what you mean about having one bad doctor or dentist and then you always worry that the new ones will be bad too. Pretty comprehensive and I agree with Matilda add how the gluten challenge affected you.

Good luck with your appointment.

jerseyangel Proficient
jerseyangel
Posted

Chelsea--Sounds like you are well prepared for your appt. I completely understand why you are nervous, but try to keep an open mind where the doctor is concerned. (I can't believe I actually said that!!) But really. I hope that it goes well and that he's not a toolbox :D I'll be anxious to hear what he has to say--

flagbabyds Collaborator
flagbabyds
Posted

thats a really long list!

i think that you are well enough prepared.

TCA Contributor
TCA
Posted

I love being prepared. You sound like you're ready! Good luck!

penguin Community Regular
penguin
Posted
  • Author

I leave for my appointment in about 45 minutes. I can't eat anything because my stomach hurts, which is good in a way, at least I'm going to the right kind of doctor for that.

I won't eat because I can't get over the fact that I've gained 16 lbs since May 19th! Very few of my clothes fit me. I haven't weighed this much since high school. Why on Earth would someone gain weight that fast? :unsure:

That's like, 5 lbs a week?!

I don't know what to do...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

good luck, definitely mention how going back on gluten has affected you. This is VERY important.

also, right before my dx, I gaine about 30 pounds in a matter of WEEKS... yep... was a very sick puppy... so while 5 pounds in a week seems a lot, it isn't as bad as it could be! I was literally gaining 10 pounds a week... keep us posted!

jerseyangel Proficient
jerseyangel
Posted
I leave for my appointment in about 45 minutes. I can't eat anything because my stomach hurts, which is good in a way, at least I'm going to the right kind of doctor for that.

I know that feeling so well...hopefully in an hour or two, you'll feel relieved and have some answers. It's gonna be ok :)

fanny Apprentice
fanny
Posted

Good luck and stay strong.

I'm having my second endoscope next month and I nervous about that I hope that my villi are healing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,729
    • Most Online (within 30 mins)
      7,748
    SFeil
    Newest Member
    SFeil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Help with tests

      By nanny marley · Posted

      I have recently had tests for calprotein in a fecal test has come back apparently high at 2500 and flagged up  stage 3a GKD and GFR  59 and 95 on the serum creatinine the test I was sent for also for milk allergy and celiac hasn't come back yet because it's had to be sent off to a different place I was just wondering if anyone had these addition tests going threw ceilac testing any help would be great 
    • Julie Max
      Safe and Forbidden lists

      By Julie Max · Posted

      As far as I know, miso paste is gluten-free and should be added to the Safe List.  And, shouldn't soy sauce be on the Forbidden list?
    • knitty kitty
      Test says no, but body says Yes?

      By knitty kitty · Posted

      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Canned tomato sauce, ricotta?

      By Scott Adams · Posted

      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Test says no, but body says Yes?

      By PlanetJanet · Posted

      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
×
×
  • Create New...