Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ataxia


Mabc

Recommended Posts

Mabc Apprentice

I'm wondering what other people's experience with ataxia has been because I've never found anyone else who has it. I am improving in some wonderful ways gluten free, but as of yet my ataxia has not improved. Of course, I would expect it to take much longer.

I'd like to know how this symptom is for others and how long it took to improve after you went gluten-free.

Thanks!

Melodi

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

I got the impression from my doctor that where I am at now is where I am going to stay - UNLESS I would go back on gluten and then it will get much worse. To be honest, I am so tired of all the auto-immune diseases that I have been diagnosed with, that I really only half listen. I no longer search out information on them or anything. It seems for me, that that is the only way I can handle them. I really should listen more when they tell me about them, but I just don't want to hear anymore.

Link to comment
Share on other sites
gfp Enthusiast

You can start here and follow links

Open Original Shared Link

edit oops forgot link

Link to comment
Share on other sites
Mabc Apprentice

Thankyou very much. I really appreciate the link and the other comment. I'll check it out.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,342
    • Most Online (within 30 mins)
      7,748

    Anthony Miller
    Newest Member
    Anthony Miller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, that sounds a lot better from a protein and calorie intake standpoint.
    • kopiq
      I eat a lot through out the day. 4 boiked eggs, chicken breast, pork chop, three bowls of rice, a potato,  at least 2 two or three 1/3 cup buckwheat pancakes as snacks and some gluten free rice crackers as snacks and mix veggies with at least one meal. This is a normal day for me. Also the pancakes sometimes have eggs mixed in them Sometimes ground beef patty as well
    • trents
      No, this is certainly not normal. Besides 4 eggs a day, what else are you eating to get protein? Four eggs only gives you about 32-36 g. of protein daily. At your height and weight you ought to be consuming 3-4x that much at least. Have you had your pancreatic enzyme levels checked? I fear your are experiencing some kind of metabolic syndrome and you need some specialized nutritional supervision, maybe even TPN (Total Parenteral Nutrition).
    • kopiq
      I now i need vitamins, but how am i suppose to work when i feel comastose at 1500IU vitamin d and headaches?
    • kopiq
      thanks, sorry for the late reply, i havent been well. my dr said my vitamin D is low at 36 and to take 3000 iu a day. I tired it for two days all i could manage was 1500IU and i felt like i was in a coma for hours, then massive headaches. i cut the vitamin d out and got my own all natural multivitamin with 40IU D alongside a calcium//magnesium and zinc multi vitamin. everything digests so slow and i feel the effects of food for hours if not days especially oatmeal. I get so tired, lethargic and lose of interest in everything. i'm eating a lot of brown and white rice, buckwheat, gluten free flours and making my own breads/pancakes. eating about 4 eggs a day. Ive even tried gluten free torillias but the fat weighs me down its like is so slow to abosrb i feel gross and greasy inside.   is this normal? for foods to effect me so much? how can i cope? just eat bland/no fat?    
×
×
  • Create New...