Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Emma Starting Kindergarden In Germany This Week


Guest tracey and emma

Recommended Posts

Guest tracey and emma

Well she has reached almost 3 years old.......

And what a 3 years it has been for her and the whole family.

So she is going to kindergarden 3 mornings a week and she can not wait she has her new school bag which she is very proud of, and a special lunch box for all her food to go inside. She has been to show all the other childern her feeding tube which we asked her if she wanted to or not, before she started and she was very proud to show it off and all the other childern were wow ...... so now she is really proud of it LOL

But how can i be sure she is gluten free away from me. Protective mum bit coming out now!

Do i really need to check things like the soap e.c.t in the toilets and the washing up liquids or is that going to far. it seems that way but a lot of products here do contain gluten just feel a little bit like ......................how far do you go!!!!!!!! My instinct is all the way.......................

She is ready for it and wants to go infact stuggling to keep her at home at the moment got her bag ready every morning and i have to keep saying no emma not till friday :( If i havd realsied just how excited she was going to be i would not have told her LOL But on the other hand it is good to see her like this. Feel sad that is is so pleased to be getting away from me though!! LOL

My baby has grown up into a little nursery girl

take care

tracey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Girl Ninja Newbie

I don't see anything wrong with checking on the gluten status of all of the things she'll regularly come in contact with (soaps, paints, clays, bandages, etc) or sending in special things you know are safe for her. It will help give you peace of mind, keep her safe, and show her caregivers how serious her condition really is. Not the least bit crazy as far as I'm concerned. They will probably appreciate not having to try to figure it all out on their own. I know the teachers would feel terrible if she got sick.

I don't know how things work there, but for my son's class the teachers sent home a list of food issues that some of the class members had. For this past year they had a diabetic and a peanut-allergic so they asked parents sending in snacks to factor this into their choice. The more everyone knows about her requirements, the easier it will be for them to keep her safe.

***At 3 my son told me I needed a job because he was tired of having to play with me every day. He said I needed to go talk to other grownups!

-Heather

(mother of a kindergartener, daughter of a preschool teacher)

mommida Enthusiast

Check out everything you can. Do what you need to do to make sure she has the best school experience she can. The teacher might want more information too.

L.

TCA Contributor

Sohow did it go? I hope she had a wonderful gluten-free experience!!!

Guest tracey and emma

so far so good!!!

she has been in 3 times the thing is they are really anixous about her peg tube ;)

everytime she crys or asks for me they are calling me back to the kindergarden, and when i get there she is fine.

feeling like a yo yo. i did notice today when i turned up for the second time after being called she was looking sad for the teacher who was cuddling her, but trying not to smile when i walked in.

I think she is a little monkey, i took her off the teacher put her down and said "emmas thats enough i am going home now and will collect you with sean at lunch time after your snack"

"ok mummy" she said and off she went no more calls but we shall see how long it last.

it is a tricky 2 weeks because it is just a trial time. she is not quite 3years till monday next week so, can not really question the staff right now, as they think they are settleing her in. don´t think they do it like this normally though! my german is not that great to understand

per-hap i have over frightened them??

hope everyone else is ok

tracey

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,816
    • Most Online (within 30 mins)
      7,748

    Shamrock HVAC Services
    Newest Member
    Shamrock HVAC Services
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...