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Consistancy Of Stools After Gf?


chasesmom

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chasesmom Newbie

Hi

My son has been gluten-free since 4 months old. I was strictly breastfeeding when he developed severe diahrrea. After weeks of research (no help from peditrician) I went on a dairy free gluten free diet. His symptoms disappeared. At 6 months of age I introduced solids and things went fine (still gluten-free). At 13months I weaned him and he has not had a formed stool since. He is now 17 months old and remains dairy free and gluten free. He is not having liquid stools but they continue to be very soft, often huge blow outs of his diaper. Also, his stools have a distinct odor as does his breath. I have not gotten any answers from my MD other than he would like to have my son tested to be sure he is gluten intollerant. I am just wondering if my son is normal for someone on a gluten-free diet. He remains well above the 50th % for growth and has a great appetite, and has hit all age appropriate milestones (talking, walking etc.). If anyone has experience here I would be grateful. Thanks for your time

Colleen


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NaomiR Newbie

We are new to this - gluten free diet. My son (23 months) has been gluten-free for one week today. A lot of what you mentioned in your post sounds so familiar to me and was part of my reason for coming to this board today.

He started having chronic constipation (which I know is an actual sign of Celiacs) at 6 months of age. He is extremely delayed developmentally and is way under the growth chart in size.

However, since starting this diet his stools are now very soft and huge blow outs too. His stomach has gone from being bloated and swollen to being very soft and flat. The one thing you mentioned that I wondered about is the distinct odor....his breath STINKS!!

My son was actually tested for Celiacs at about 14 months of age but it came back inconclusive...due to his body not producing immunoglobulins.

I can't really offer advice...just tell you I am in the same situation.

chasesmom Newbie

Thanks for sharing your experience. My son has never had constipation, but I feel like because of his diarrhea at such an early age, and large loose or at least very soft stools for over a year now, I am a poopie diaper expert. My husband laughs at me because if he changes our son I give him the 3rd degree "How did it smell, how big was it, did it run out the side?". I have brought this to the attention of our ped., stinkie breath and all, but he hasn't really been able to tell me anything. The testing he wants to do would require my son to eat gluten so no way. As long as he continues to grow well, I am going to stay gluten-free (and he will stay stinkie). I hope your son catches on the growth charts, and I am curious to hear what kind of projection your ped has made for your son in realation to developmental milestones? How much do they feel he will be able to make up for? Thanks for your time.

Colleen

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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