Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heaven Through Hell?


Papa-Hen

Recommended Posts

Papa-Hen Rookie

Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

Hi Henry, welcome on the board!

I did feel better in some ways immediately after going gluten free, but also worse in some others. And the first few months were a rollercoaster of better days and worse days. So your experience sounds quite normal to me. :)

Pauliina

Guest laferriere

Henry,

I am new as well, and the first two months have definitely been up and down. In fact, the first month some of my long-term symptoms were better but I developed new and different symptoms for awhile. I am still having good days and bad days and still not having brilliant nights. Please hang in there; hopefully, things will get better eventually. Good luck!

lisa

DingoGirl Enthusiast

Hi Henry, and welcome.

Ditto to what the above foks said. I felt better - amazingly better - after about a week gluten-free. And then plummetted so deeply I had to go back on an antidepressant. Had ups and downs but now it's pretty stabilzed, five months in.

Keep at it! You'll go through interesting physical and emotional changes, but press on, keep reading and reading here, learn all you can, and make sure you truly have elimnated ALL gluten (toothpaste, chapstick, vitamins, meds, secret ingredients).

Stick wtih it and learn all you can, and things will get better. Also, think about the possibility of giving up dairy, at least for a while, while you heal.

blessings -

MNB Newbie

Hi Henry:

I am in the middle of my 3rd week of gluten-free and it has been anything but stable. The first week- amazing difference and then varying days of good and bad since. Probably mostly bad. I know a few times I tried to order at restaurants (I'm just not a home cooking kind of gal) I must have been exposed to some gluten somehow. But other times I was certain nothing I ate could have been contaminated - but I still got the stomach pains, brain fog ect.

I think it just takes a while for it all to get out of your system - I'm looking forward to having more good than bad, but for now I guess we just cope as best as we can :huh:

Good Luck Henry -

Michelle

TCA Contributor

Thre are a lot of ups a downs in the beginning. I think a lot of this for me was really learning the diet. I made a lot of mistakes in the beginning, which caused a lot of issues for me. Don't mean to state the obvious, but are you sure everything is really gluten-free? I made so many mistakes to start with, I guess I just assume others could too! ;)

Lister Rising Star

yeah, i was amazed by the diffrence in the first 2 weeks of going gluten free, i lost my whole apple belley and everything, but withen another week new symptoms started to apear and some left, its been 3 months now and its still a rollercoaster, i dont know if it just takes a long time to work out all the gluten in your body or if the healing processe itself just sucks, but hopefully you will be better soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Papa-Hen Rookie

Folks,

Cautious optimism...

I'm becoming more optimistic that this is my body responding to the release of a toxic load that it is sheading quite rapidly, now.

External stressors are quite high, so let's give them and any consequential anxiety their due, however.

I've had a fairly productive day at work despite a good bit of insomnia last night. I started to fade around 10:30AM & broke away to go to the gym. On the exercise bike, I could not believe that I was still aerobic with my heart rate at 150 bpm. 130 - 140 maybe, but 150--I felt good, pumping hard with no pain & unforced breathing. I've spent a lifetime with almost zero "wind", and pushing myself to the point of muscle pain, so this was a treat! To top it off--and this is also scary--after my shower, I stepped on the scale & found that I had lost 8 1/2 lb since Wed. 8 1/2 lb in 5 days!?!? Loss of water weight as inflammation continues to decrease?...Any insights?

(The dark side within wants to put the thought of serious disease into my head, but we'll just wait until we discuss this with doc.)

So, maybe my crisis is was simply due to the high rate of toxic release....it's over, right?

Maybe I would have done better by forcing myself to drink a lot of water to wash things out when I was at my worst. I am doing that now.

Thank you for your best wishes.

- Henry

judy05 Apprentice
Folks,

I'm new here.

You all seem to do much better immediately upon going gluten free.

Having had mch success especially in losing weight since quitting wheat in November, I recently learned enough to get rid of the next level of gluten from my diet. I have since had a bout of what I hope was my body releasing the many toxins that had collected over the years.

(It has been a very rugged 2+ weeks...I'd really love to learn that it's not just extreme anxiety.)

Doing better, but not yet good--hopefully, very soon.

Any advice?

Thanks,

- Henry

You said that you gave up "wheat", do you realize that gluten free means giving up barley, rye and also oats? Just wanted to make sure.

aikiducky Apprentice

Yeah you're probably loosing water weight. And my endurance and also shot up after going gluten free, it was great! Now I've gotten used to it, lol. :rolleyes:

Pauliina

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,723
    • Most Online (within 30 mins)
      7,748

    Bcmcinn
    Newest Member
    Bcmcinn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      Hello, My mid twenties daughter is blaming my husband and I for her celiac disease.  She has not been diagnosed at all, but GOOGLE has informed her she has it.  She is going to go get tested now, but my question is, did we?  I was not the best cook while she was growing up and often made quick processed food for meals.  She is blaming us for what she ate growing up and is angry that we didn't feed her better.  I don't know how to react and all I could tell her was I was sorry.  Her older brother has Crohn's disease and he was diagnosed as a teenager.  She is also furious with us that we didn't change his diet either.  I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation.  Both sides of our family have a history of IBS, Celiac and Crohn's disease.   I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her.  I am thinking it most likely did. Thank you, Marie
    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
×
×
  • Create New...