Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes


kbtoyssni

Recommended Posts

kbtoyssni Contributor

Yesterday my chiropractor suggested that maybe I don't have celiac, and it's a digestive problem instead. He was going to give me some digestive enzymes that you take for two weeks, and then he thought I should try eating gluten again to see if it made any difference. I AM NOT willing to take that risk - I didn't even take the enzymes because they're manufactured in a facility that contains wheat.

The reason why he suggested this is because I don't have an official diagnosis. I did an elimination diet and reacted very badly when I re-introduced wheat and barley. I started eating gluten for about a week to try to get positive blood work, but I don't think it was long enough, and I wasn't willing to keep eating gluten just to get an official diagnosis because at that point I just wanted to get better. And now, nine months after going gluten-free, I feel better than I have in ten years.

So my question is, have any of you tried digestive enzymes? How do they work and why would my chiropractor think they would work for me? What sort of digestive conditions do they help for? Would they help me even if I do stay on a gluten-free diet? I'm wondering if he thought I had mainly digestive symptoms, but my symptoms were mostly fatigue, join pain, brain fog, etc. The stomach pain was minor compared to my other symptoms.

I am not going to start eating gluten again, I'm just curious about why he would suggest this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Digestive enzymes can be very helpful. However, they cannot stop or prevent the autoimmune response that occurs with gluten consumption. Even if you dont have Celiac....you are obviously gluten intolerant so you would still be experiencing an autoimmune reaction from gluten.

The enzymes can aid in breaking down your food for easier digestion. Since most of us with gluten intolerance have impaired intestines the enzymes can help with digestion. Also some of us may lack some of the enzymes needed for breaking down various foods. The more food is broken down and completely digested the less large food molecules are left to possibly create an allergic response. When undigested food particles leave the digestive tract (as is the case with leaky gut) then the immune system may launch an attack on these and create secondary food intolerances.

Hope that makes sense.

plantime Contributor

I tried digestive enzymes. They did absolutely nothing to stop any celiac reactions. They did help food digest better, and I eliminated much easier, but that is all.

loraleena Contributor

I use enzymes and they help me digest in general - less bloating and gas. Not gluten though. You do sound at least gluten intolerant. If you feel terrible on gluten, then that is all you need to know.

Guest cassidy

I take digestive enzymes all the time, but I'm not at all under the impression that they will help with celiac or symptoms when glutened.

I had issues with partially digested food coming out (sorry - gross) and digestive enzymes help your body digest your food. I also have stomach aches from safe food sometimes. I've only been gluten-free for 6 months so I assume that my body is still healing. I feel that the enzymes help make it easier for my body to digest my food and that it probably needs all the help it can get right now.

I had negative blood work but a very positive dietary response. I never tried to reintroduce gluten to see if I had a problem, because I glutened myself on accident enough times. I have no question in my mind that I have celiac.

Also, I have taken the enzymes after being glutened, again just to help my body digest in general and I never noticed an easier time with my symptoms from being glutened.

A lot of doctors don't like to believe that someone has celiac, so maybe your doctor is hopeful. I wouldn't take them if they are produced in a facility that contains wheat, and I certainly wouldn't try gluten again.

kbtoyssni Contributor

Thanks for the info everyone! Sounds like it might be worth try as a general digestive aid. I do take acidopholis which seems to help me, and this sounds like it might be similar.

But there's no way I'm eating gluten again. I've been accidently glutened enough times to know I don't want to eat gluten on purpose.

  • 2 weeks later...
Carolita Rookie

Which enzymes do you recommend?

I'm still new at this and would like to buy some b/c I feel like I'm not digesting food very well. I'm already on a gluten free diet but I some times feel sick of my stomach mainly from gas.

Your help is appreciated,

Carol :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I take DigestGold, but they are enormously expensive. They are about 25.00 a bottle, and that bottle only lasts three weeks or so. I've bought cheaper ones, and find they work not quite as well, but nearly so. I probably only need to take one at this point, and I'm still swallowing two - so that might make more sense. Anyway, they are gluten-free, and potent, and cover all the bases. It has twice as many enzymes as another brand I've taken.

The other thing I take is Betain-HCI. It is "supposed" to increase your stomach acid, though I've read things that say it doesn't. I don't know if it helps. But I'm doing the regimine my nutritionist put me on.

It certainly improved the quality of my stool, and, I imagine, how much I am getting out of my foods.

I plan to wean off them in another four months - see if I can make all the good stuff on my own.

Carolita Rookie
I take DigestGold, but they are enormously expensive. They are about 25.00 a bottle, and that bottle only lasts three weeks or so. I've bought cheaper ones, and find they work not quite as well, but nearly so. I probably only need to take one at this point, and I'm still swallowing two - so that might make more sense. Anyway, they are gluten-free, and potent, and cover all the bases. It has twice as many enzymes as another brand I've taken.

The other thing I take is Betain-HCI. It is "supposed" to increase your stomach acid, though I've read things that say it doesn't. I don't know if it helps. But I'm doing the regimine my nutritionist put me on.

It certainly improved the quality of my stool, and, I imagine, how much I am getting out of my foods.

I plan to wean off them in another four months - see if I can make all the good stuff on my own.

Thank you for the information. Where do you buy them? Do you get them on line or a local store? I'm planning to go look for them tomorrow. Hopefully I can find them.

Thanks again,

Carol :)

  • 3 weeks later...
Super Bellybutton Rookie

How fast did it take for you guys to get results?

I'm taking some right now that are gluten-free (namely those without the malt diastase). They seem to help with my blood sugar a little though.

BRUMI1968 Collaborator

What I noticed right away was that my stool was no longer accompanied by undigested food bits. Yuck, I know, but that's what I noticed right away.

I buy the Digest Gold at the food co-op, but I think "super Supplements" carries them as well. Enzymedica also has a website.

Good luck.

Lymetoo Contributor
Which enzymes do you recommend?

NOW brand is gluten free! good quality and NOT expensive. Available at any good health food store and probably online.

Maybe www.Lame Advertisement.com ?? My favorite place is vitacost, but they don't carry it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    3. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    4. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

    5. - Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.