Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Chrone's, Ulcerative Ibs

genicol

Recommended Posts

genicol Rookie
genicol
Posted

Is there any link between Celiac, Chrone's and Irritable Bowel? My daughter's grandma (dad's side) has Chrone's and had a colostomy about 2 1/2 years ago. Her uncle (again...dad's side) has ulcerative colitis. Both grandma and uncle also have irritable bowel. After reading everything that I have so far, I am completely convinced that my fiance has celiac as well! Do you think the whole family is cursed with problems and do you think that my daughter has a higher chance of developing Chrone's? We are not 100% sure that she has Celiac, but will know better after tomorrow. Blood test was positive, endoscopy in the morning! I know that Celiac is genetic, but no one on her dad's side has every been diagnosed with it, but they have had other problems. Thanks for the help!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


evie Rookie
evie
Posted
Is there any link between Celiac, Chrone's and Irritable Bowel? My daughter's grandma (dad's side) has Chrone's and had a colostomy about 2 1/2 years ago. Her uncle (again...dad's side) has ulcerative colitis. Both grandma and uncle also have irritable bowel. After reading everything that I have so far, I am completely convinced that my fiance has celiac as well! Do you think the whole family is cursed with problems and do you think that my daughter has a higher chance of developing Chrone's? We are not 100% sure that she has Celiac, but will know better after tomorrow. Blood test was positive, endoscopy in the morning! I know that Celiac is genetic, but no one on her dad's side has every been diagnosed with it, but they have had other problems. Thanks for the help!!!

Yes,I have heard of people having celiac and chrones + having celiac and IBS. So m,any times with further investigation people will find their IBS is actually celiac disease. If she is found to be celiac and goes gluten free she will get much better and probably would not develop chrons. wish you much luck with your daughters testing!! Living gluten free is so rewarding with better health, I advise it even without a definite diagnosis if a trial of at least a month shows health improvement. :):) evie

Guest Robbin
Guest Robbin
Posted

Hi Gail and welcome. :) A positive blood test is positive. No false positives, only false negatives are possible. The medical community is clueless with this disease for the most part. It sounds like your fiance's relatives have been given the same old labels many of us have had, they probably have celiac or gluten intolerance. I would get to a health food store, get some gluten free cereals and rice pasta and coupled with fresh fruits and veggies and meats, your little one will be feeling so good and healthier than most other kids her age. Get a gluten-free cookbook (there are many check out the recipes/cooking section on here for recommendations) and pm nini for the "newbie survival kit" that she has graciously put together for people who are new to this. There are plenty of gluten free substitutions and you will find it gets much easier over time. She is little and will adapt better than older children do. Take care and keep us posted :)

mart Contributor
mart
Posted
Yes,I have heard of people having celiac and chrones + having celiac and IBS. So m,any times with further investigation people will find their IBS is actually celiac disease. If she is found to be celiac and goes gluten free she will get much better and probably would not develop chrons. wish you much luck with your daughters testing!! Living gluten free is so rewarding with better health, I advise it even without a definite diagnosis if a trial of at least a month shows health improvement. :):) evie

Wow, is it true that she will probably not develop chron's if she goes gluten free?

Nic Collaborator
Nic
Posted

I believe my son has IBS on top of the Celiac. Now that he is gluten free he is much better but about once a month he goes into a cycle where he becomes constipated again and complains that his stomach and "butt" hurt. At first I was worried about accidental glutening but it can't be because it is on a monthly cycle and unfortunately for my family, I don't change anything in our diet (very boring cook). So there is no reason for him to be contaminated once a month and not every week if it were something in his diet. His stomach also acts up when he is nervous or scared. We had a Chuck E Cheese B-Day party last weekend. As soon as he saw the character come out in costume, that was it. He was sick in the bathroom with his stomach the rest of the time. This happens any time we go some where knew where he is not comfortable.

lorka150 Collaborator
lorka150
Posted

the autoimmune gene often is passed along.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
    2. trents
      - trents replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
    3. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck.
    4. Scott Adams
      - Scott Adams replied to Tonya Kane's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters and gluten

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can...
    5. trents
      - trents replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      2 months in... struggling with symptoms

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,938
    • Most Online (within 30 mins)
      7,748
    Songbird64
    Newest Member
    Songbird64
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      Refractory or super sensitive?

      By trents · Posted

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck. 
    • Scott Adams
      Water filters and gluten

      By Scott Adams · Posted

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can cause undo fear, as well as reputational damage to these companies. Don't get me wrong here, I am not saying that this isn't possible, but is very unlikely.
    • trents
      2 months in... struggling with symptoms

      By trents · Posted

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing done and it was positive and then you had an endoscopy/biopsy done to confirm those results? That is the normal process for diagnosing celiac disease. Have your constipation/irregularity problems improved since going gluten free? Some of the continuing symptoms you describe would seem to fall into the category of neurological effects (muscle twitching, shakiness, weakness and headaches) and others such as dry eyes, fatigue, stiffness and joint aches sound like they could be autoimmune effects. Are you taking any high potency to vitamin and mineral supplements? Celiac disease often/typically results in vitamin and mineral deficiencies due to malabsorption from the damage to the small bowel lining it causes. I note that your vitamin D levels are barely within normal range and the only B vitamin testes is B12. The B vitamins and D3 are very important to neurological health. And the several B vitamins all work together synergistically. So, they all need to be up to snuff, not just B12. I would suggest starting on D3 supplementation in the amount of about 5000 IU daily and also a high potency B-complex. Costco's Nature Made and Kirkland brand products are good quality and priced well and usually gluten free (and will state so on the packaging). Realize also that gluten free flours and facsimile foods are not fortified as are their FDA mandated gluten equivalents. So, when you cut out gluten, you cut out a significant source of vitamins. One thing to be aware of is that Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster. That is, when you have one you there is a good chance you will develop others in time. I don't wish to alarm you because I know you have said you already struggle with heath anxiety but many of your symptoms make me think you have some other autoimmune condition going on in addition to celiac disease. Have you been checked for Sjogren's or lupus for instance?  Finally, I am including an article that is helpful to newly diagnosed celiacs in getting a head start on the learning curve of eating gluten free:   
×
×
  • Create New...