Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"hidden" Gluten


Laurasc

Recommended Posts

Laurasc Rookie

Yikes, I feel cruddy! Yesterday my kids went to see a soccer game with my brother so hubby and I decided to splurge and bring home some take out BBQ chicken. Prior to getting it I phoned and asked if they used any gluten in their chicken. They had no clue what I was talking about. I told them I can't tolerate wheat products...flour, proteins, etc. They said they only use salt on their chickens. (right...and I'm Queen Elizabeth) I told them I don't want to know what their seasonings were, just wanted to know if there was any flour. No, they said. No flour. What about the gravy? Corn starch they said.

Yay!

So hubbs and I indulged in a 1/4 chicken dinner each....he had it with fries and I had a baked potato. I only used about 1/4 of the dipping sauce and put some Old El Passo cheese salsa on my baked potato. (I checked, no gluten) I drank a big glass of soy milk with it. (also gluten free) Within an hour of finishing eating my stomach started to hurt and my belly started to inflate and gurgle and bubble and hurt. It HAD to have been the chicken dinner. Hubby called the restaurant again...no...no flour on the chicken or sauce.

Is this an example of "hidden" gluten? How can I word my question to a restaurant when I'm asking if they have any gluten? Is there anywhere online that I can get a list of forbidden things?

Today I feel really icky. I'm a little bit nauseous and my dizziness is back. (it was gone after I was off gluten for a few days) :( I feel like I've taken 3 steps back.

Thanks

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VegasCeliacBuckeye Collaborator

Questions I would ask:

1. Do they season the baked potato?

2. How is the chicken cooked? (BBQ? Do they use clean tongs or a spatula?)

3. Other than salt, is the chicken made with a marinade (If so, what are the ingredients in the marinade?)

4. Anything other than salt on the chicken?

5. What are the ingredients in the mashed potatoes? (Is it a dry mix or real potatoes, what else is in it?)

6. What are all the ingredients in the gravy? (Other starches? Natural flavours? Other ingredients?)

-- On a side note, why drink soy milk (I thought some of those had questionable ingredients) if you also eat other types of dairy (cheese salsa)?

Also, call Old El Paso and check on the salsa/cheese combo...

Ursa Major Collaborator

Are you sure you aren't intolerant to soy as well? It will cause the same symptoms as gluten with me (and I'm not the only one here). It could also have been the cheese.......a lot of people with celiac disease can't tolerate dairy at all, at least not for the first while of going gluten-free.

It is possible that the people at the restaurant told you the truth, and it wasn't gluten at all.

penguin Community Regular

Was the dipping sauce a bbq sauce of some kind? A lot of mom-and-pop bbq places especially use malt vinegar in their sauces, which has gluten. Distilled vinegar is fine, malt vinegar is not.

Also, do they know that there is wheat in things like white bread?

gfp Enthusiast
Was the dipping sauce a bbq sauce of some kind? A lot of mom-and-pop bbq places especially use malt vinegar in their sauces, which has gluten. Distilled vinegar is fine, malt vinegar is not.

Also, do they know that there is wheat in things like white bread?

LOL ... unfortunate but true....

lonewolf Collaborator

I had the same thing happen once. It turned out that they put soy sauce (which contains wheat) in their marinade. This could be it - no flour, but still wheat.

Laurasc Rookie
Questions I would ask:

1. Do they season the baked potato?

2. How is the chicken cooked? (BBQ? Do they use clean tongs or a spatula?)

3. Other than salt, is the chicken made with a marinade (If so, what are the ingredients in the marinade?)

4. Anything other than salt on the chicken?

5. What are the ingredients in the mashed potatoes? (Is it a dry mix or real potatoes, what else is in it?)

6. What are all the ingredients in the gravy? (Other starches? Natural flavours? Other ingredients?)

-- On a side note, why drink soy milk (I thought some of those had questionable ingredients) if you also eat other types of dairy (cheese salsa)?

Also, call Old El Paso and check on the salsa/cheese combo...

Actually, the more I think about it, the more I wonder if there was some sort of seasoning on the baked potato skin...it was rather crunchy and flavourful.

Regarding the soy, I've been on it on and off for a couple of years. It helps control the hot flashes and perimenopausal symptoms. I can't take HRT because I have migraines. I just recently started the soy milk again...less than a week ago...after I started the gluten-free diet. I'm still trying to figure out if I am indeed intolerant to gluten. I was feeling sooo good off the gluten...until yesterday.

Was the dipping sauce a bbq sauce of some kind? A lot of mom-and-pop bbq places especially use malt vinegar in their sauces, which has gluten. Distilled vinegar is fine, malt vinegar is not.

Also, do they know that there is wheat in things like white bread?

I don't know. But I did give my hubby my roll. This is tougher than I thought....so much to be weary of....I'm almost afraid to go out for dinner anymore.

BTW...is balsamic vinegar okay? I like to use it a lot when I cook.

Thank you all!

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

Lots of BBQ sauces have stuff in them, malt vinegar as was mentioned, many have modified food starch (from wheat) which nobody ever thinks of. I often ask to read the ingredient labels of such things, have had them take me back in the kitchen to read the label on the side of a gigantic tub o' salad dressing that kinda thing, they give me wierd looks but noone has ever said no, and soy sauce is also a common culprit in such scenarios.

I don't trust any sauce or dip that I haven't read the label on or made myself. That's why I have a ziplock baggie in my purse with little single-size pouches of all kinds of stuff.

Elonwy

CarlaB Enthusiast
But I did give my hubby my roll.

BTW...is balsamic vinegar okay? I like to use it a lot when I cook.

Where was the roll? Was it on your plate? Did it touch your food? If so, it could be the culprit!

When I go out, I try to keep it simple unless it's a place I know is okay because they have a gluten-free menu or someone here has told me so (like Buffalo Wild Wings). I would not have ordered BBQ sauce without having real confirmation it was okay ... this diet takes us a long time to learn, so it is impossible for a restaurant employee to be able to read the ingredients and say they're okay. If I'm going somewhere new, I'll get on here and ask. If it's spur of the moment, I'll just get something plain, grilled on foil. Don't have this stop you from going out, just learn from it. If every glutening teaches a lesson, you will make fewer and fewer mistakes as time goes on.

I believe real balsamic vinegar is okay, but some are flavored and may not be. You will get lots of info by doing a search of the board as there were some recent discussion on this.

lorka150 Collaborator

Was this Swiss Chalet? If so, their chicken is, indeed, only with salt.

Felidae Enthusiast
Was this Swiss Chalet? If so, their chicken is, indeed, only with salt.

I've eaten at one location and did not have any problems. But, some people have had problems at Swiss Chalet.

lorka150 Collaborator

I don't eat there, but my mom does all the time and has never had a problem. But I was just clarifying that the chicken is gluten-free.

Laurasc Rookie
Lots of BBQ sauces have stuff in them, malt vinegar as was mentioned, many have modified food starch (from wheat) which nobody ever thinks of. I often ask to read the ingredient labels of such things, have had them take me back in the kitchen to read the label on the side of a gigantic tub o' salad dressing that kinda thing, they give me wierd looks but noone has ever said no, and soy sauce is also a common culprit in such scenarios.

I don't trust any sauce or dip that I haven't read the label on or made myself. That's why I have a ziplock baggie in my purse with little single-size pouches of all kinds of stuff.

Elonwy

Another big BBQ chicken chain here in Montreal also sells their dipping sauce in the grocery stores. It's a different taste from the place I went to, but I'm sure they are all made the same. I have a couple of packets in my pantry (which I forgot I had) I just read the ingredients: glucose solids, cornstarch, salt, chicken fat, hydrolyzed plant protein (soy, corn, wheat) wheat flour, etc, etc....<sigh> <_< Guess I know what the culprit was.

Where was the roll? Was it on your plate? Did it touch your food? If so, it could be the culprit!

When I go out, I try to keep it simple unless it's a place I know is okay because they have a gluten-free menu or someone here has told me so (like Buffalo Wild Wings). I would not have ordered BBQ sauce without having real confirmation it was okay ... this diet takes us a long time to learn, so it is impossible for a restaurant employee to be able to read the ingredients and say they're okay. If I'm going somewhere new, I'll get on here and ask. If it's spur of the moment, I'll just get something plain, grilled on foil. Don't have this stop you from going out, just learn from it. If every glutening teaches a lesson, you will make fewer and fewer mistakes as time goes on.

I believe real balsamic vinegar is okay, but some are flavored and may not be. You will get lots of info by doing a search of the board as there were some recent discussion on this.

We took it home to eat. They gave us the choice to put it on a plate or wrapped individually. I had them wrap it all individually, so the bread didn't come in contact with any of the other food.

Actually, yesterday evening we were running from pillar to post and stopped off at a souvlaki place near us. After chatting with the waitress I ended up having a chicken souvlaki (marinated in olive oil, lemon juice and greek spices) with rice and a greek salad. The dressing was olive oil and lemon juice. I knew I was taking a chance and was prepared to feel really yukky afterwards...but I didn't. I'm feeling fine today.

So I've found a restaurant that is safe for me..... :D Of course, it was torture watching hubby and kidletts eating their souvlaki in a pita. <sigh>

Was this Swiss Chalet? If so, their chicken is, indeed, only with salt.

No, it's a Montreal chain called Cote St Luc BBQ. Their chicken is waaaay better than Swiss Chalet or St. Hubert.

Well ladies and gents....after a week of being gluten free and feeling really good (except for one faux pas) all this time...tomorrow is the day I go back to full gluten and see what happens. I plan to feast on two...count em...TWO real honest to goodness Montreal bagels with bacon and cheese for breakfast. :wub: You can't get more gluteney (is there such a word?) than that.

So by this time tomorrow, I'll either by curled up in a fetal postion in agony or clicking my heels because I feel okay.

:rolleyes:

Thank you all for your replies...you're all really amazing!

Laura

psawyer Proficient
Another big BBQ chicken chain here in Montreal also sells their dipping sauce in the grocery stores. It's a different taste from the place I went to, but I'm sure they are all made the same.
Do not make this assumption! Every product must be examined as a unique item.

Swiss Chalet dipping sauce is gluten-free. Don't mix it up with the gravy, though, which has wheat.

kbtoyssni Contributor

You might also inquire about the brand of chicken. Some brands plump their chicken with chicken broth before it even leaves the factory so it could contain gluten even if the restaurant doesn't add it. The ingredient label on the chicken would probably say that it contains broth.

Balsamic vinegar is gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,834
    • Most Online (within 30 mins)
      7,748

    Lucy20
    Newest Member
    Lucy20
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself, developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses! P. S. Add a Potassium supplement, too.  Potassium is another electrolyte, like magnessium, that we need.
    • Manaan2
      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
×
×
  • Create New...