Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Regrowth


suziew

Recommended Posts

suziew Rookie

Has anyone who lost their hair, had it grow back? I have been gluten free for a year now. I quit using wheat shampoos, I started taking selenium and my doctor says my thyroid is okay. My hair is still falling out. Is there any hope?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice

How many hairs are you losing each day? Count the hairs in the brush, comb, and shower. It is normal to lose 50-100 hairs in a day. If your hair is thinning, it may not have anything to do with the celiac.

blueeyedmanda Community Regular

My hair grew back, it stopped falling out rapidly almost instantly once I went gluten-free. I was breathing the sign of relief. It really scared me when my hair started coming out in chunks.

mommida Enthusiast

Hair growth has three phases, rest, growth, and falling out. Most of the time the individual hair follicles following this pattern are scattered over (the head) and the pattern is not that noticable. If the body has all the hair growth restarted at the same time it is very noticeable. Give it some time and maybe try a shorter style for right now.

L.

suziew Rookie

It's been at least 5 yrs. since I noticed my hair falling out. When I look in the mirror now, I can see the shape of my head because there is no hair left. I guess I'll go back to the doctors again. The first 2 doctors only checked my thryroid and said it's part of growing old.

Rachel--24 Collaborator

I was losing a ton of hair before going gluten-free...I also had thyroid disease at the same time though. I remember counting hairs in the shower and it was well over 400. :(

It all grew back in time...I still go through bouts where I lose more...especially if I get alot of reactions from things in my diet. Thankfully it never gets as bad as it was in the beginning.

I know you said you've had your thyroid checked but even if the levels are in the normal range....it may not be normal for you...some people need their numbers to be in the low normal range for optimal thyroid levels.

Do you have your most recent test results (TSH, FT3 and FT4)? If you can post them I'd be curious to see what the numbers are...I'm betting high normal.

eKatherine Apprentice

I have heard women who had been anorexic say that even after they recovered their health with proper eating, their hair remained thin. It did not grow back as thick as it had been before their eating disorder.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elisabet Contributor

Is your hair loss patchy or diffuse?My son had lost alot of hair both in patches and over all.

He had to have a gluten-free cf sf diet and all his hair came back.

DingoGirl Enthusiast

I was losing a ton of hair - - my iron and other nutrients were really low. About four months after being gluten-free, it FINALLY stopped falling out. About one month after being gluten-free, I looked like a porcupine, as little hairs all over my head were sticking out from the longer hair. This made me very happy. How long have you been gluten-free? Have you had a complete blood panel? Much of it has to do wtih malnutrition.....

ravenwoodglass Mentor
  elisabet said:
Is your hair loss patchy or diffuse?My son had lost alot of hair both in patches and over all.

He had to have a gluten-free cf sf diet and all his hair came back.

Elisabeth, I am so happy to hear this!!!!! I know he had a tough time for a while.

Felidae Enthusiast

My hair stopped thinning and grew back to a decent thickness since going gluten-free. I also don't use wheat shampoos or conditioners.

elisabet Contributor
  ravenwoodglass said:
Elisabeth, I am so happy to hear this!!!!! I know he had a tough time for a while.

Thank you so much,and you have been such a wonderful support.

suziew Rookie

I don't have the numbers from my thryroid tests. The last doctor would never tell me anything. She just said it was normal. My hair is thinning on top, just like a man's head would do. I hate having my picture taken, because my shiny white scalp always shines through.

ravenwoodglass Mentor
  suziew said:
I don't have the numbers from my thryroid tests. The last doctor would never tell me anything. She just said it was normal. My hair is thinning on top, just like a man's head would do. I hate having my picture taken, because my shiny white scalp always shines through.

First ((((((hugs)))))), second you have a legal right to copies of any tests and notes your doctor has done on you. Don't ask for them demand them.

  • 2 weeks later...
Guest southgoingzax

Hi there!

I don't want to depress anyone who has dealt with hair loss, but 3 years after diagnosis, I am still losing my hair. It seems to start every year between May and July and fall steadily out until December. Then I get baby hairs and then it starts all over again. I have been to a dermatologist and to several GI specialists (one of whom told me forcibly that he had no bald celiac patients), and there's nothing apparently wrong. I have also had my thyroid tested - no dice. However, after some extensive (and very expensive) allergy and vitamin/mineral absorption tests, I have learned that I am still vitamin and mineral deficient due to intestinal inflammation, not caused by gluten but by other allergens (soy, dairy, eggs, beef, salmon, shrimp, cranberries, green and black teas, and lettuce, to name a few!). Now that I have cut all of those out and added to my vitamin-mineral regiment, I am hoping the hair loss will eventually stop.

Some vitamin/mineral deficiencies that may cause hair loss:

Vitamin A

Vitamin B-12

Zinc

Calcium

Protein

I found that weekly B vitamin injections really seemed to help, but then my nurse practitioner and I had a falling out and she refuses to treat me any longer unless I buy custom-made vitamins that cost $600 for a 3-month supply. But anyway, you might try injections, as our ability to absorb anything in the intestines is usually pretty hampered.

Good Luck and Best Wishes,

zax

LKelly8 Rookie

I have age/genetic related hairloss. I was sooo sure it was vit def from celiac or one of the meds I take for rheumatoid arthritis but unfortunatly it's not, I'm just losing my hair just like my mom did, and her mom, and her mom. . .I come from a long line of shiny headed, angry women.

:D:angry::angry::angry::lol:

I'm going in for "the" haircut in August, short and a lighter color. Lighter color blends better with the exposed scalp.

I did notice some hair regrowth when I was taking a high dose (Rx 1mg) of folic acid. I was taking it to counteract the methotrexate (arthritis drug), so I don't really know what the deal was there.

  • 3 weeks later...
Ellen A. Newbie
  southgoingzax said:
Hi there!

I don't want to depress anyone who has dealt with hair loss, but 3 years after diagnosis, I am still losing my hair. It seems to start every year between May and July and fall steadily out until December. Then I get baby hairs and then it starts all over again. I have been to a dermatologist and to several GI specialists (one of whom told me forcibly that he had no bald celiac patients), and there's nothing apparently wrong. I have also had my thyroid tested - no dice. However, after some extensive (and very expensive) allergy and vitamin/mineral absorption tests, I have learned that I am still vitamin and mineral deficient due to intestinal inflammation, not caused by gluten but by other allergens (soy, dairy, eggs, beef, salmon, shrimp, cranberries, green and black teas, and lettuce, to name a few!). Now that I have cut all of those out and added to my vitamin-mineral regiment, I am hoping the hair loss will eventually stop.

Some vitamin/mineral deficiencies that may cause hair loss:

Vitamin A

Vitamin B-12

Zinc

Calcium

Protein

I found that weekly B vitamin injections really seemed to help, but then my nurse practitioner and I had a falling out and she refuses to treat me any longer unless I buy custom-made vitamins that cost $600 for a 3-month supply. But anyway, you might try injections, as our ability to absorb anything in the intestines is usually pretty hampered.

Good Luck and Best Wishes,

zax

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    2. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    3. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    5. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,767
    • Most Online (within 30 mins)
      7,748

    Sharon Bing
    Newest Member
    Sharon Bing
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw...
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200...
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...