Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh = Celiac?

griffeth

By griffeth
in Dermatitis Herpetiformis

Recommended Posts

griffeth Newbie
griffeth
Posted

OK, so I recently was diagnosed w/DH. I had a biopsy that was analyzed by 2 different labs, so I think it's right. I also have tried to go gluten-free, so far with some success [i drank some PBR the other night and my skin paid the price]. My question is: Does having DH mean that you definatley have Celiac? Whenever I would have gluten, I never got sick like Celiacs report. It only affects my skin. Is this common?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Yes. DH is the skin manifestation of celiac, and often people who are otherwise asymptomatic digestively but have DH have significant villi damage.

CarlaB Enthusiast
CarlaB
Posted

Ditto what Chelsea said. If you've got DH, you've got celiac.

jerseyangel Proficient
jerseyangel
Posted

Welcome to the family! :D

Ursa Major Collaborator
Ursa Major
Posted

Hi Griffeth, and welcome to this board! Yes, you definitely have celiac disease and NEED to be gluten-free. Unfortunately, it will likely take a while before your DH will be gone, it could be up to two years. But it is the only 'treatment' that is effective, and once the deposits under your skin will be completely gone, you shouldn't have any outbreaks any more (unless glutened, of course).

Actually, you will notice changes other than your skin clearing up. It is likely you've had celiac disease symptoms that you wouldn't connect to gluten, like brain fog, depression, muscle aches etc., that will suddenly improve on the gluten-free diet. You might be surprised!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,312
    • Most Online (within 30 mins)
      7,748
    Nadia Bruce
    Newest Member
    Nadia Bruce
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Skinesa

      By Wheatwacked · Posted

      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      Antibodies went up

      By Barcino · Posted

      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Antibodies went up

      By Barcino · Posted

      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
×
×
  • Create New...