Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

L-glutamine Powder


Gentleheart

Recommended Posts

Gentleheart Enthusiast

I have been gluten free for 3 months. Unfortunately I feel no better, actually even worse. My symptoms are all neurological. At the same time I have been taking some high quality gluten free supplements. Among them is L-glutamine powder. Today I was made aware that in spite of its use in leaky gut, l-glutamine might be a BIG problem for celiacs with neurological problems. Is that maybe why I have continued to feel so badly?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lymetoo Contributor
I had totally positive saliva and stool tests, with 2 celiac genes and mild malabsorption. I have been gluten/dairy/egg and soy free for 3 months. Unfortunately I feel no better, actually even worse. My symptoms are all neurological (panic, anxiety, agitation, dizziness, neuropathy, sweats) At the same time I have been taking some high quality gluten free supplements. Among them is L-glutamine powder. Today I was made aware that in spite of its use in leaky gut, l-glutamine might be a BIG problem for celiacs with neurological problems. Is that maybe why I have continued to feel so AWFUL??!!! This is getting really hard.

Anybody really knowledgeable on this? Thanks!

I hope someone knows, because I've been using L-glutamine for a very long time.

Girl Ninja Newbie

Earlier posts caution that people with neurological problems should avoid it. No one is specific about why, but the caution is mentioned repeatedly in different threads. I couldn't find anything about it being dangerous online except possible liver and kidney complications. I hope someone who knows more finds this.

Lymetoo Contributor
Earlier posts caution that people with neurological problems should avoid it. No one is specific about why, but the caution is mentioned repeatedly in different threads. I couldn't find anything about it being dangerous online except possible liver and kidney complications. I hope someone who knows more finds this.

anybody?

lorka150 Collaborator

this has been discussed before, but just so you know, when i started taking it, my liver enzymes shot from nearly normal up to 800 and i was hospitalized. when i went off it, they immediately went down (not to normal, but to about 150). there was definitely a correlation.

(below 40 is normal).

Gentleheart Enthusiast
this has been discussed before, but just so you know, when i started taking it, my liver enzymes shot from nearly normal up to 800 and i was hospitalized. when i went off it, they immediately went down (not to normal, but to about 150). there was definitely a correlation.

(below 40 is normal).

I tried to read most of the former posts on the subject. It didn't sound like all celiacs were at risk taking it. It just sounded like it was a problem for those with neurological issues because it acted as a brain excitotoxin. I brought it up again because I was just wondering if someone knew a little more about the specifics of it and whether a person like me with panic and anxiety might want to steer clear of it. I'm trying to find out why I'm still so terribly agitated and anxious, though gluten free. Just thought the l-glutamine might be a clue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,194
    • Most Online (within 30 mins)
      7,748

    AquaV
    Newest Member
    AquaV
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...