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A Most Icky Way To Treat Crohn's

RiceGuy

By RiceGuy
in Related Issues & Disorders

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RiceGuy Collaborator
RiceGuy
Posted

Hi everybody. I ran into an article, and immediately thought of this board, so here I am to post a link. I hope I don't have Crohn's Disease anyway, but if this where the only way to treat it, ugh!

Again, this isn't for anyone who is grossed out easily, nor if you're currently enjoying a meal.

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Ursa Major Collaborator
Ursa Major
Posted

Umm, yeah, I've read about that already, and it's pretty gross. I hope, for your sake, you don't have Crohn's and won't have to try it! :wacko:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

So whay does it work? Do the worms feed on the gluten?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I don't know where it was, but I read a much larger article on that . . . they don't actually give you the worms . . they give you the eggs. They eggs have some effect on the gut that they reduce the inflammation. I can't remember where I saw it -- I know it was on the web, but it was the entire study. It actually made sense. You purchase the eggs, keep them refrigerated, and take them, I believe, as a capsule. They don't "hatch" in your digestive system, so you don't end up having the actual worms in your system -- the eggs simply do their thing and reduce the inflammation -- it's just I can't remember what "their thing" was. At one point, I was talking with my neurologist about trying this.

jerseyangel Proficient
jerseyangel
Posted

Yes, I remember an article about that--I think it was Karen (?) who posted it a while back. Lynne, it dosen't sound exactly like the one you describe, but I found it--

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tiredofdoctors Enthusiast
tiredofdoctors
Posted

Hey Patti . . . . went to that thread, then the site -- No, that wasn't it . . . I actually went to a site where you could purchase the things . . . they described in detail how they sterilize them (I think three times . . not sure . . . ), how they're packaged, etc. There's an entire site devoted to the information and purchase. It's kind of cool, really, that it can remove that much intestinal inflammation.

FOUND IT!!!!! www.ovamed.de -- that will get you to their home site -- you can read from there . . ..

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    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      Oats gluten free?

      By trents · Posted

      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
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