Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Please Please Help Me

wzcbj

Recommended Posts

wzcbj Newbie
wzcbj
Posted

Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

Welcome! Hmmmm....this is puzzling. All other signs could be many things, but are definitely indicative of Celiac. But the sighing.....could be allergy related.

Sorry I can't be of help, but there are so many knowledgeable people here, and I pray you get some relief soon.

blessings -

queenofhearts Explorer
queenofhearts
Posted

I'm not sure I quite understand what you mean-- are you having trouble catching your breath? Is the sighing more like gasping? That would hint at asthma, & could certainly be triggered by a food allergy, or even just the interruption of regular breathing that comes with swallowing your food.

I hope we can be of help to you somehow-- it sounds distressing.

Leah

Mango04 Enthusiast
Mango04
Posted

Do you feel like your throat is swelling or closing up when this happens?

wzcbj Newbie
wzcbj
Posted
  • Author

Maybe my throat changes, well that sounds stupid....here is what happens, I eat, a short time later it almost feels like a panic attack. I start breathing real fast and hard then the sighs start. I sigh and sigh and sigh for anywhere from 10 minutes to an hour, then it stops...........then its almost like when it hits the intestines it starts all over again. NEVER happens on an empty stomach

queenofhearts Explorer
queenofhearts
Posted

Have you talked with your doctor about this? It still sounds like it might be asthma to me (there's a lot of it in my family, & it manifests in some odd ways). You mention the panicky fast breathing, with asthma there is a sensation that you can't move the air in & out of your lungs properly. It can be very frightening, & lots of sufferers tend to pant during an attack. The way it works is that the bronchial tubes are constricted, which actually inhibits breathing OUT, this might lead to what you call sighing... it's a little hard to tell via e-mail. I would definitely ask your doctor about this-- there are inhalers that can give you immediate relief it it is asthma. And of course it would be good to figure out what is triggering it; an elimination diet might help that.

Leah

wzcbj Newbie
wzcbj
Posted
  • Author

This is the post I found that made me believe maybe my sighing is due to GA::::

num1habsfan

now, here are some Symptoms of a gluten allergy, and whatever has a star beside it is what I experience:Head:Feeling dizzy or faint*headachesmigrainesheavy feeling*--------Eyes:Watery*itchy*red*swollentired*sore*blurred vision*heavy feeling in eyelids--------Nose:Runny nose*sneezing*itching*burning*excessive mucus*blocked nose*sinusitis--------EARS:ringing in the ears*soreness*loss of hearing*earracheburning sensationsitching*--------THROAT AND MOUTH:soreness*sore gums*swollen tonguemouth ulcersloss of taste*hoarseness*cough*choking fitsitching of the roof of mouth*bad breath*--------HEART AND LUNGS:chest pains*palpitationsrapid heartbeatasthma*ches congestion*tightness across chest*shallow breathing*excessive sighing breathlessness*catarrh*---------

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

You could very well have a food allergy. A food allergy is a bit different than celiac disease/gluten intolerance, but many people on this board have food allergies as well. Maybe you could do something like a rotation diet? Have you already been tested for food allergies? That's not to say a negative test result would rule it out. You could start experimenting with your diet and maybe keeping a food diary would be helpful too. Some common allergens are soy, wheat, dairy, nuts, shellfish...there are many different possibilities....

judy05 Apprentice
judy05
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

I think you also need to keep a food journal. Does this occur after eating any food or one or more foods in particular? Do you have any heartburn associated with this? Is it hard for you to swollow certain foods? I have trouble swallowing hard boiled eggs, it is very scary, I usually spit them out so that i can swallow. My Mother also had this problem especially when she was upset about something. I had a food test and found that i am intolerant of wheat, yeast, corn, dairy, and egg whites.

Ursa Major Collaborator
Ursa Major
Posted
Hi everyone....

I accidently found this group while searching the web, but I am very glad I did....Let me get to the point, I have had various problems with muscles, digestion, sinuses, etc for the most part of the last 20 years (Im 36 now) 4 years ago I was diagnosed with diabetes and 3 months ago I had my gall bladder out, didnt relieve many symptoms....anyway the reason I need help is that since March of this year I have had excessive sigh breathing that is quite uncomfortable, it seems to happen with some very deep breathing especially after eating. Has anyone else experienced excessive sighing???? Please tell me any stories you may have with this sighing crap....my doctors have given up, but I think it may be gluten allergies....HELP...

If you suspect that gluten may be a problem, get tested for celiac disease! And while you're at it, get tested for other allergies/intolerances as well, to get to the bottom of this. Since you only experience this problem right after eating, it's obviously food related.

I agree with the food diary idea. Start writing down exactly what you eat at every meal, and how you felt afterwards. Start eating very simply, so it will be easier to identify the culprit.

I hope you can figure this out, it sounds scary.

CarlaB Enthusiast
CarlaB
Posted

Okay, you finally found someone who can relate!!! I used to hyperventilate frequently. I also could not catch my breath, it was like I could breath, but never take in a big enough breath. This is completely gone gluten-free. I went through all the testing for asthma and it was just one more case where the docs rolled their eyes, patted me on the back, and sent me home.

I would suggest getting tested because once you are gluten-free you can't. All my testing was inconclusive from being gluten-free, so I got tested by enterolab, which you can do on your own without your doc.

penguin Community Regular
penguin
Posted

I have that problem, too. It's like I'm gulping for air and I can never get a breath quite deep enough. In college, I had a really poor score on the blow-out-raise-the-ball-thingy test. When I had allergy testing while gluten-free, it was totally normal. Now that I'm on a gluten challenge for a biopsy, the air-gulping came back. I think it's a hyper-active immune system thing.

I've been dx'ed with athsma, but it's only when I'm sick.

Sarah8793 Enthusiast
Sarah8793
Posted

I too can relate! I noticed while keeping a food journal that whenever I had wheat bread I would get short of breath and had more trouble talking. My husband said I sounded anxious because I was so breathy talking. I was having to stop mid sentence to inhale so I could keep talking. I have been gluten free now for almost 2 months and it doesn't happen now (unless I get gluten by accident). I also have trouble swallowing hard boiled eggs like the post above. I haven't confirmed an egg allergy but will be looking into it. Hope this helps!

Sarah

wzcbj Newbie
wzcbj
Posted
  • Author

Im crying knowing Im not alone!! I HATE the ole pat on the back, sorry, plese pay your co-pay come back in 3 month response from the doc's. I swear mine thinks Im crazy...YES, CARLA its like hyperventilating one neorologist even called it hyperventilating syndrome, I was like, thanks jerk, now how do we get it to stop.....Im waiting for my doctor to call and I will explain this to her, thank yoiu god for sending me all these angels

CarlaB Enthusiast
CarlaB
Posted

I found it helpful to be sure to breathe out all the way. I believe it's not a problem with breathing in, it's a problem that your lungs can't breathe in because you haven't breathed out. I believe that's somehow connected to the concept of breathing into a paper bag, which helps but makes you look like a freak out in public :blink: . That may help until it goes away.

I also found breathing in for a count of four, holding my breath for a count of four, then breathing out for a count of four, would help. Somehow concentrating on breathing out or holding my breath would make me stop gasping for air.

rinne Apprentice
rinne
Posted

I've also had the experience of sighing, although until you mentioned it I never even thought of it in connection to gluten. It wasn't as intense as you describe but I also had shortness of breath and the feeling I wasn't getting all the air in or out.

What an amazing site.

Has there been a thread of just symptoms? I was thinking about it the other day in regards to problems wearing earrings and what a strange symptom that is and how I would never have connected that to Celiac either.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,724
    • Most Online (within 30 mins)
      7,748
    HNB
    Newest Member
    HNB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Hello, My mid twenties daughter is blaming my husband and I for her celiac disease.  She has not been diagnosed at all, but GOOGLE has informed her she has it.  She is going to go get tested now, but my question is, did we?  I was not the best cook while she was growing up and often made quick processed food for meals.  She is blaming us for what she ate growing up and is angry that we didn't feed her better.  I don't know how to react and all I could tell her was I was sorry.  Her older brother has Crohn's disease and he was diagnosed as a teenager.  She is also furious with us that we didn't change his diet either.  I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation.  Both sides of our family have a history of IBS, Celiac and Crohn's disease.   I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her.  I am thinking it most likely did. Thank you, Marie
    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
×
×
  • Create New...