Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On Our Son

VydorScope

Recommended Posts

debbiewil Rookie
debbiewil
Posted

So glad to hear he's doing so well. I did know he had ear/hearing problems, so very glad that has been resolved. And keep those wonderful avatar pictures up to date. He's so precious!

Debbie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TCA Contributor
TCA
Posted

WOW vincent!!! I've even talked to you on the phone and I didn't realize about Timmy's hearing!!!!! What a wondeful praise!!!!!! I'm so glad he's doing so well. You never know what trials we my face, but isn't it wonderful to look back and see how God's carried you through it all? thanks for sharing all of this!

Hugs!

Tanya

VydorScope Proficient
VydorScope
Posted
  • Author

Thanks all, I did mention his hearing way back when he was getting ready to go under for the surgery but not since then, hence why I was asked for the update I am sure! :)

Judyin Philly Enthusiast
Judyin Philly
Posted

:o I had NO idea what all you've been through!!

Guess since i've been on for a year, just thought he had sever food allergies. Where have i been to have missed all the back ground. He is so blessed to have such 'terrific' parents who won't give up...bless your little family and prayers for more answers..

hugs

Judy in PHilly

VydorScope Proficient
VydorScope
Posted
  • Author

Well Because we found this site after getting him gluten-free he has been on the upswing the entire time this community has known him.

xander42204 Newbie
xander42204
Posted

Wow- what a truly inspiring story! Best of luck to you and your family!

mommida Enthusiast
mommida
Posted

Wow! I think I remember your first post. Isn't it amazing how much this group has bonded? I remember the day Tymber was having his ears done and having my kids pray for him. Thank s for the update I will tell my kids the good news.

L.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author
Wow! I think I remember your first post. Isn't it amazing how much this group has bonded? I remember the day Tymber was having his ears done and having my kids pray for him. Thank s for the update I will tell my kids the good news.

L.

:blink: Gosh I hope it was a good post if you still remember it!! :blink:

mommida Enthusiast
mommida
Posted

If I remember it was a newbie post looking for help. :D

L.

VydorScope Proficient
VydorScope
Posted
  • Author

Wow I just looked it was on May 13 2005, 07:24 AM! Tim was 21 mos old, not 18!!! Dang it my memory stinks!!! :angry:

Anyways you did drop in to that thread, and nini, and others... 3 pages long.

Cheri A Contributor
Cheri A
Posted

I'm so glad that Timothy is doing so much better! I used baby signs with all of my kids. My son was a very late talker and he used them the most!

VydorScope Proficient
VydorScope
Posted
  • Author
I'm so glad that Timothy is doing so much better! I used baby signs with all of my kids. My son was a very late talker and he used them the most!

Yea its a great tool, we actaully useing real ASL, or well as close to it as he can manage. His dexterity is not up there yet. Learning a second language, not matter which one, is sposed to be great for develpoment, so we plan to keep it up. Though latly we been a bit lazy :lol:

VydorScope Proficient
VydorScope
Posted
  • Author

Well we had the "IEP" meeting today where they went over the results. If you remember back in Jan/December he was doing poorly and seeming to not improve at all. They retested him in march, and based on those tests he was still significantly delayed, but much improved. Well the newest test results are in, and he is no longer classified as disabled! He scores were border line, which is a huge improvement, and he continues to gain ground at a very fast rate. They said that we should watch him and call them again for retesting if he seems to level out, but as long as he continues to gain at the rate he is going we should have no further issues with speech and language with him. In the other areas, for example fine motor control, he was at or above age level.

The only note of interest they did talk about was his activity level was very high for his age level, they did make sure to point out several times that as his age there is no reason to worry about it, but it is something that will have to be watch as he ages.

So when he turns three he will "graduate" out of the special ed program and not return. Kristi and I plan to ask his speech therapist if we can make some out side arrangement to keep her on a bit longer to help get him that last little bit, but if we can not do that we are not concerned. He is speaking is full sentences now, for example "Can I have that?", its still touch and go with that, but slowly becoming normal.

So thats all we know for now!

AndreaB Contributor
AndreaB
Posted

That's great news Vincent. You and Kristi have obviously worked hard with him, it's great that it's paying off now. He must be so excited to be able to communicate more also. And with his energy level up I assume that means his diet has had a definite impact on that. :P

jerseyangel Proficient
jerseyangel
Posted

Fabulous news! Just wonderful--you both must be so pleased and relieved. :)

floridanative Community Regular
floridanative
Posted

Vincent - I did not know about Timothy's hearing problems. That is such awesome news about how well he's doing now! Prayer is a powerful thing....and having great parents doesn't hurt either! Good for you and your wife and the little guy of course!

VydorScope Proficient
VydorScope
Posted
  • Author

Thanks all!

And with his energy level up I assume that means his diet has had a definite impact on that. :P

No one can argue the impact of the diet. It literly saved his life, even the GI doc said all his numbers show it. While he does not have perfect tradtional dx for celiac disease, theres no question his health has had a remarkable turn around.

The last year with him (he was DX'd celiac disease when he was 21 months old not 18, ops :unsure: ) has been nothing but improvement apon improvement.

penguin Community Regular
penguin
Posted

That's awesome, Vincent! Make sure you don't let him forget his signs! Spanish was my first language (well, along with English, but my spanish was better) and I forgot it by the time I was 5 because nobody was around to talk to me in Spanish anymore :blink:

Although, since he's already had exposure to a second language at such a young age, it will probably be easier for him to learn other languages, signed or spoken :)

Guest BERNESES
Guest BERNESES
Posted

Vincent- That is SOOOOOOO great!!!!!!!!!!!!!!!!!!! Yippee!

chasesparents Rookie
chasesparents
Posted

Congratulations to you and your family!!! I am sure you are relieved that all is going well now !!!! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,096
    • Most Online (within 30 mins)
      7,748
    jdcollins
    Newest Member
    jdcollins
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Liquid lunch
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Liquid lunch · Posted

      Reishi and cordyceps are immune modulators, they stop you reacting so much/producing antibodies to lectins. Uptake is better when taken as a tincture, you can buy it pre made as a tincture, usually vodka based, or make your own which is much cheaper. You can find instructions online, basically powdered mushrooms soaked in strong alcohol for a month, shaking regularly. Then the strained mushrooms are heated gently in water for 8 hours, strained again and the water then combined with the first alcohol extract. Some of the properties are water soluble, others require alcohol for extraction. It’s also prescribed for fatigue which is a side effect I’m happy to put up with.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      corn: It is the second most commonly genetically modified food on the planet (soy is #1) Genetic modification of foods continues to kill animals in scientific studies. It is an incomplete protein. It is difficult for humans to digest (ever see corn in your stool?) It is high in calories and low in nutrient value It is a new food to the human genome. It is being used as a staple food for our cattle, fish, chicken, and cars. Cows and fish are not designed to eat grain. (Have you ever seen a fish jump out of a lake into a corn field for supper?) When animals eat corn as a staple they have shorter life spans. Corn fed beef is linked to heart disease, diabetes, cancer, and obesity. Grass fed beef is not. Fructose derived from corn is toxic to the liver and contributes to severe health issues. Corn syrup has mercury in it. The list can go on and on and on… Many consumers bow to the alter of “Gluten Free” packaged foods as if the label is a safety net. “Gluten Free” on the package does not mean that the food is healthy. Do not deny yourself the God given right to be healthy.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      Corn Gluten vs. Wheat Gluten: Corn gluten (zein) is different from wheat gluten (gliadin), but both are types of gluten.  Inflammatory Response: Some celiac patients have shown an inflammatory response after consuming corn.  Cross-Reactivity: Corn can mimic gluten in sensitive individuals, potentially triggering immune responses similar to those caused by gluten.  Individual Sensitivity: Many individuals with celiac disease or gluten intolerance find that they can't tolerate corn gluten, even though they avoid wheat, barley, and rye.  Nonresponsive Celiac: Some individuals with celiac disease don't respond well to a gluten-free diet, and this may be due to gluten contamination or other factors, including reactions to corn gluten.  Corn Derivatives: Even processed corn products like high-fructose corn syrup or corn oil may cause issues in sensitive individuals. 
    • Scott Adams
      Home-made kefir

      By Scott Adams · Posted

      Welcome to the gluten-free journey! It’s great that you’re exploring ferments like kefir—they can be a wonderful support for gut health, especially when navigating celiac or gluten sensitivity. Kefir is rich in probiotics, and many people find it soothing during gut healing. It’s great that you’re already thinking about making sauerkraut and kimchi too—those are fantastic next steps! And that’s incredibly generous of you to offer kefir grains; I’m sure there are folks in NYC who would love to start their own batch. Keep sharing and exploring—you’re off to a great start!
    • DebD5
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By DebD5 · Posted

      Can you explain mushroom tinctures to me?
×
×
  • Create New...