Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arg! First Definite Glutening Since Dx

BRUMI1968

Recommended Posts

BRUMI1968 Collaborator
BRUMI1968
Posted

I'm 99% sure I got glutened late today. Funny thing is, the only reason I can come up with is that I ate some sliced avocado from a friend's salad from her home. I didn't even think of cc at her house. Otherwise, I've only eaten safe things today (beet greens, poached egg, sunflower seeds...then chicken meat [which is gluten-free and which I've been eating for a week at least] with avocado, mustard [gluten-free], raw sauerkraut [gluten-free], and lettuce.

AHHHHH.

Actually, my stomach is mildly bugged - but I took a three hour nap with horrible nightmares, and I have at least two monsterous canker sores.

Well, not too bad for two and a half months off the evil gluten. Still...I wish I could eat something yummy right now, instead of being pretty sure I shouldn't put anything in this delicate stomach.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Sorry you got glutened. It's unavoidable that it happens sooner or later. I hope you will feel better soon.

rinne Apprentice
rinne
Posted

I found it to be a bit of a shock, it really hurt when I got glutened after being gluten free for only two and a half weeks. I hope you feel better soon.

BRUMI1968 Collaborator
BRUMI1968
Posted
  • Author

Oddly, it turned out to the be Amazake Rice/Almond shake that got me. I'm not sure it was gluten, though. They don't make anything with gluten in it - so I don't know how that would be it. But the next day I had ONE SIP of another one I had - and right away was covered in canker sores. I felt like I had been MSG'd. Thankfully, just one sip and I felt better w/i a half hour or so.

Oh well. I won't be drinking those anymore. I'm waiting for my food panel to come back, so maybe it was something else.

bluejeangirl Contributor
bluejeangirl
Posted
Oddly, it turned out to the be Amazake Rice/Almond shake that got me. I'm not sure it was gluten, though. They don't make anything with gluten in it - so I don't know how that would be it. But the next day I had ONE SIP of another one I had - and right away was covered in canker sores. I felt like I had been MSG'd. Thankfully, just one sip and I felt better w/i a half hour or so.

Oh well. I won't be drinking those anymore. I'm waiting for my food panel to come back, so maybe it was something else.

bully, what is amazake rice/almond shake and what is in it? I was going to suggest it was maybe the sourkraut. If you have MSG reactions chances are you'll react to aged or fermented foods. It usually goes hand in hand.

gail

BRUMI1968 Collaborator
BRUMI1968
Posted
  • Author

Interesting. I've been ejoying the sauerkraut for a few days w/o reaction. I do CRAVE it, which is odd.

The rice/almond shake has: brown rice, almonds, almond flavor, and brown rice syrup - but it is claimed to be gluten-free, and I've not had a problem with it before. They also make one called Tiger Chai, which I do have problems with, though more from the tea/spices on my empty stomach. This time it was more canker sores and amazing yuckyness.

I'm not sure. But since I wasn't eating any grains at all and the rice shake is based on grains, it was really just a treat anyway.

I'll watch the sauerkraut - do a test. All it has in it is cabbage and sea salt, but obviously it has been fermented. I'll eat a bunch of it for dinner and see what happens. Hopefully nothing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,740
    • Most Online (within 30 mins)
      7,748
    Klsdurbin
    Newest Member
    Klsdurbin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Not sure if this is Celiac or just a gluten-free intolerance

      By Wheatwacked · Posted

      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      Trader Joe's strikes again

      By trents · Posted

      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      Trader Joe's strikes again

      By trents · Posted

      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Trader Joe's strikes again

      By Steve-n-Portland · Posted

      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...