Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Comcast Big Wig Has Celiac


floridanative

Recommended Posts

floridanative Community Regular

Some lady from www.celiaccentral.org spoke to our suport group on Sat. and said the Comcast CEO or CFO (or something like that) was dx'd with Celiac. He is promoting charity event to raise awareness/money for research so he has Fortune and Money magazines doing articles about it. The Money article runs in Dec. issue and Fortune runs in the Nov. 13th issue. Comcast provides cable services all over the country. This could be big people!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Even though he's not a celebrity...he would certainly have some pull. Thanks. :P

jenvan Collaborator

Wow, that could be great for the celiac disease community. Hmmm, guess I need to mark my calendar in advance for these ! Thanks Tiffany!

ebrbetty Rising Star

that could really help us

jerseyangel Proficient

Boy, this could be huge! I hope he feels the same frustration as we do regarding the lack of awareness--he certainly has the ability to get the word out there--looks like he has already started! Looking forward to the articles--thanks, Tiffany :)

Guhlia Rising Star

Wow! This could be our big, mainstream break, huh? Thanks for posting!

floridanative Community Regular

Well my guess is this guy is frustrated because apparently he was sick for years and years and he was recently diagnosed, maybe less than a year ago. I'm going to try and find his name because I didn't write it down Saturday and the lady mentioned it a couple of times. Anyway, I really do think this could be great for all of us.

Okay - the guy is Ed Snider and he's the Chairman of Comcast. On the site above (old site called www.celiacawareness.com) there is a link about the Money/Fortune mag. articles and their issue dates. Time Warner is involved as well. Maybe they own Comcast...not sure about that. Yes - this is a very good thing. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.

DingoGirl Enthusiast

We've got to get him on our board.....you know, in all his free time.....

Oh Iwrote an email to Oprah today about Celiac and how aghast I am that she has not addressed it....wonder how many of us have emailed her??

tarnalberry Community Regular
We've got to get him on our board.....you know, in all his free time.....

Ha! He can probably afford his own, dedicated chef, and train that chef to cook gluten-free for him! **whistfully dreams** :-P (He should still try the mariposa biscotti, though. :-D)

marciab Enthusiast

Yeah, I was thinking that he probably has his own chef too. BUT, he must go out sometime. Possibly the next time he goes to Trump's for dinner, he'll teach Donald about Celiac.

This could be very good for us... :D

debmidge Rising Star

Maybe Comcast can run some public info commercials about celiac for free......

Guest Robbin
:) Money talks, so maybe the message will get heard and the medical community will wake up when they get a whiff of green ;) . It is outrageous how long some people have to suffer before they get a dx, and how many die undx? I hope you are out there Mr. Snider and join us!!!
gfp Enthusiast
His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.

William Penn was by all accounts a pretty stand-up guy. (if not a button down guy)

Voltaire wrote about him in his "Letter's concerning the English" and his tolerance and treaty's with the native populations were legendary.

Open Original Shared Link

Ha! He can probably afford his own, dedicated chef

He can but that doesn't mean he will. He is also experienced in changing and forging legislation ....

Rikki Tikki Explorer

Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Lymetoo Contributor
Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Same thing with Lyme disease. Even some of her best buddies have Lyme, but she won't do a show on it. Alice Walker [The Color Purple], Amy Tan [Joy Luck Club] and Rebecca Wallace [Ya-Ya Sisterhood] all have Lyme. People are falling victim to this disease every day and their lives will never be the same....and it does kill people.

Any national exposure for celiacs and other "obscure" illnesses is great news!

Canadian Karen Community Regular

Regarding this Ed Snider guy, all I can say is "The Lord works in mysterious ways........"

Hugs.

Karen

ms-sillyak-screwed Enthusiast
We've got to get him on our board.....you know, in all his free time.....

Oh Iwrote an email to Oprah today about Celiac and how aghast I am that she has not addressed it....wonder how many of us have emailed her??

YOU WOULD BE SUPRISED HOW MANY DOCTORS AND OTHERS ARE ON THIS SITE, lurking and looming posting ANONYMOUSLY.

FORGET OPRAH she's useless!

Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded.

Many of us worked very hard tring to get Oprah on our side. I'm no longer a fan. We can make a big impact in other ways.

I think it's good news this comcast guy has celiac disease. Welcome to our world!

DingoGirl Enthusiast
YOU WOULD BE SUPRISED HOW MANY DOCTORS AND OTHERS ARE ON THIS SITE, lurking and looming posting ANONYMOUSLY.

FORGET OPRAH she's useless!

Many of us worked very hard tring to get Oprah on our side. I'm no longer a fan. We can make a big impact in other ways.

I think it's good news this comcast guy has celiac disease. Welcome to our world!

Hey - how do you know about the lurking doctors? that is crazy! :lol: and of course fantastic...

No, I haven't given up on Oprah, but my new target is Dr. Mehmet Oz - - we should bombard HIM with letters!

ms-sillyak-screwed Enthusiast
Hey - how do you know about the lurking doctors? that is crazy! :lol: and of course fantastic...

Because I know a couple that are...

celiac3270 Collaborator

Phenomenal!!!! This is amazing... I love that he's already taking the initiative with those articles.

Power/pull + initiative = success.

lindalee Enthusiast
Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Oprah LOVES her bread! She tries to stay away from it. Maybe if she thought it might harm her she would listen. She has said in the past -how it puts weight on her thighs. Haven't watched her much lately (been on this site LOL :lol: LL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,009
    • Most Online (within 30 mins)
      7,748

    cradford.cc
    Newest Member
    cradford.cc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebygirl01
      Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice.
    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
×
×
  • Create New...