Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Post Diagnosis Tests Should Be Done Yearly?

sparkles

Recommended Posts

sparkles Contributor
sparkles
Posted

Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


au natural Newbie
au natural
Posted
Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

I am not sure of a list of post diagnosis test, i imagine your doc would be wise enough to give you a thorough look over. I have been diagnosed with severe chronic idiopathic neutropenia. For this i see an oncologist. I am unable to maintain a healthy white count. It is not cancer related. I did have my thyroid removed a few years before my diagnosis - had a low thyroid all my life- it finally got to the point that it was choking me. They found cancer starting. I do have other food allergies though, egg whites, dairy, codfish and peanut. Id say ask for a full exam. It seems that alot of celiacs have at least one more thing wrong. lets hope that you dont have anything else. By the way my father was diabetic starting in his 50s. So I watch for it like a hawk. good luck

courtnxy Newbie
courtnxy
Posted

I think your antibodies are supposed to be tested every 6 months to a year, but I suppose it depends on how well-controlled you are.

Also, you could get checked for deficiencies in iron and vitamin D. I'm deficient in both of them! Plus, celiacs are supposedly also prone to vitamin A and K deficiencies.

One more thing: If your symptoms don't clear up after a year or two, you should talk to the gastro doctor about getting an EGD, where they can check out the lining of some of your intestine.

Courtney

flagbabyds Collaborator
flagbabyds
Posted

i get antibody testing and then just a CBC.

julie5914 Contributor
julie5914
Posted

I was wondering the same - I have my one year anniv. on the diet checkup on the 16th and am not sure what the point is. I have symptoms some still and would like to know for sure that I am healing, but I don't necessarily want an endoscopy. Last blood test was 6 months ago and was still pretty high even though I'm very strict. Sometimes they look at you like, "what are you here for," and I am thinking "aren't you supposed to know that?" I don't have any major complaints except some dwindling symptoms that I expect I may be stuck with - just want to make sure I'm on the right track - is that worth an expensive visit to the doc?

olalisa Contributor
olalisa
Posted

Check out this website.

Open Original Shared Link

The NIH seems like a pretty good source to me, and I printed this info and took it to my GP, who has ordered all the tests they recommended, including testing my blood for all the nutritional deficiencies. I go for the bone density on Monday.

Good luck!

chrissy Collaborator
chrissy
Posted

we run the Ttg test on our kids. our doc is willing to just call the test order in to the lab if we want so that we don't have to drive the long distance to his office.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,140
    • Most Online (within 30 mins)
      7,748
    kfkynett
    Newest Member
    kfkynett
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sh00148
      Poo changes after 2 weeks

      By sh00148 · Posted

      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Allergy Meds

      By trents · Posted

      Check Costco's store brand.
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...