Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie To This


lpasko2

Recommended Posts

lpasko2 Newbie

I have tried very hard to be gluten free and most of my symptoms have subsided but I still cannot sleep and sometimes feel ill even if I know I have not ingested any gluten. It has only been 6 months but I am frustrated and confused. I would like advice from anyone who has endured this for a longer period of time. My friends do not fully understand and I work in an italian resteraunt. please guide me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Welcome to the board...it is certainly bewildering at first. Are you quite sure you're completely off gluten? Hidden gluten, you know, toothpaste, cosmetics, products, condiments/dressings/seasonings/medications/vitamins, all of it? Are you inhaling flour at the restaurant, eating from pans that just cooked something with gluten, or draining rice pasta in a colander that rinses regular pasta? What about dairy....many can't eat dairy for quite a while until intestines heal. MIght you have other food intolerances? This is common as well. It's trial and error for many for quite a while. The good news is, it gets SO much easier and becomes second-nature.

As far as not sleeping - - that's been a problem for me for almost 20 years. I just flat out take something every single night to sleep. The amount has decreased dramatically since going off gluten six months ago, but, I am fierce about getting my sleep and will take this as long as I need it.

Keep reading this board and you will learn so much! I would post more but I am tired and must achieve my oft-elusive goal....zzzzzzzzzzzzzzz

NIght-night and welcome to the board - - it's a great place to learn.

Blessings -

oceangirl Collaborator
Welcome to the board...it is certainly bewildering at first. Are you quite sure you're completely off gluten? Hidden gluten, you know, toothpaste, cosmetics, products, condiments/dressings/seasonings/medications/vitamins, all of it? Are you inhaling flour at the restaurant, eating from pans that just cooked something with gluten, or draining rice pasta in a colander that rinses regular pasta? What about dairy....many can't eat dairy for quite a while until intestines heal. MIght you have other food intolerances? This is common as well. It's trial and error for many for quite a while. The good news is, it gets SO much easier and becomes second-nature.

As far as not sleeping - - that's been a problem for me for almost 20 years. I just flat out take something every single night to sleep. The amount has decreased dramatically since going off gluten six months ago, but, I am fierce about getting my sleep and will take this as long as I need it.

Keep reading this board and you will learn so much! I would post more but I am tired and must achieve my oft-elusive goal....zzzzzzzzzzzzzzz

NIght-night and welcome to the board - - it's a great place to learn.

Blessings -

lpasko2;

Hi,

I, too, am a bit new to this and I have a LOT of problems at night. I also am very frustrated right now because after feeling much better for awhile all my issues seem to be returning. This is all at night: abdominal distension,pain, bloat, gas, tail-bone pain,feeling of "bubbling" in small intestine, joints and bones "cracking", some nausea...Aaaauuugghhh!!! It's only been an "official" three months gluten-free and I am VIGILANT- cook everything myself except my rice cereal. I have been adding in more fruits and veggies which have been difficult for me to digest for awhile. Anyway...what are your night issues? Is it just that you can't get to sleep? I truly sympathize; I've always needed a solid 8 hours to feel well, and that almost NEVER happens. I really hope things get better for you soon. I just keep trying to find ways gluten might be sneaking in or what other things bother me. I'm gluten, dairy, soy and corn free. Very good luck to you.

lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,016
    • Most Online (within 30 mins)
      7,748

    Kmmmn
    Newest Member
    Kmmmn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi, Were you able to get a response from them? I have written to Nuts.com asking info. om how to they test, etc. I am awaiting a reply. And, my daughter is allergic to tree nuts, so we only buy their straightforward organic dried fruits sans any preservative/additives.
    • trents
      Not long before my celiac dx I was experiencing proctalgia fugax but it seems to have disappeared and I haven't been bothered with it in over 20 years.
    • Kmmmn
      Sorry, late to the party.  I started experiencing proctalgia fugax (sp), when I was about 16 - I am now 59.  This is a very painful spasm of what seems to be the sphincter muscle.  This almost always happens in the night and wakes me. For the first few decades this would usually happen around once a month on Sundays.  Very weird I know, but it was that regular at times you could set your watch by it.    In my 40's symptoms became less frequent.  I found that by essentially shoving an ice pack up my backside I could get some relief. 18 months ago I was diagnosed with Celiac and the PF now occurs pretty much weekly, sometimes more often.  I only just came across this thread so as yet have not mentioned PF to my GI doctor (thought it was just a 'me' thing) but will next time I see him in March.  I feel for you, it is indeed crippling pain.  I am a teacher and I think I have had PF 2 or 3 times in the classroom and have had to call the office for cover until the symptoms and sweating subside.  Good luck.  Hope this helps in some way. KMMMN
    • Dulcita
      Celiac, and sensitive to latex, kiwi, avocado, bananas and tapioca. After having a reaction to another Amy’s product (canned chili) which is labeled gluten-free and has no listed tapioca ingredients, I have realized that for those of us who are sensitive to tapioca, it may be even worse than I thought. Not sure if I’ve got this right, but I do know that companies that focus on gluten-free foods use a lot of tapioca. If a certain product doesn’t have any tapioca ingredients, they see no reason to list tapioca or its relatives in the “known allergens” or the “produced in a facility that also uses …..” statement — because it hasn’t been designated a known allergen.  They probably don’t even feel it necessary to apply the kind of Best Practices protocols (extra cleaning) to a production line that may have used tapioca in a previous product. So we may be ingesting tapioca when we are eating something, seemingly tapioca free, produced in a gluten-free dedicated facility. Really discouraging. 
    • Katya773
      Hi Everyone,   I recently purchased this wheatgrass not realizing that it wasn’t gluten free. I had two servings before I got really sick. Abdominal cramps , diarrhea and horrible nausea. My daughter read the label and told me it wasn’t labeled gluten free. I thought this was safe because supposedly it’s healthy. I called WholeFoods and they told me that they can find out more about the product and email me when it was picked and harvested. I was diagnosed back in 2019 and I really should know better! Anyone else had a reaction to wheatgrass powder? 
×
×
  • Create New...