Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Very New To This


twinmami

Recommended Posts

twinmami Newbie

I am new to this site and to the whole idea of living gluten free. i've had exzema for many years and it recently got really bad. I've done alot of research and have been recommended to follow a gluten free diet which i have no idea what that means. Is gluten an actual ingredient that I can find on food labels?

I was also told to avoid dairy,wheat,oats rye and barley. My typical breakfast was a bowl of cheerios with soya milk and then for lunch a sandwich on whole wheat bread and whole wheat rice for dinner.

Now I'm just totally confused about what I can eat to help my condition. I'm hispanic and love to eat "arepas" which made with white corn meal flour. is there any way of knowing if this is gluten free?

Can anyone give me some basic guidelines to get me started.

Thanks so Much

I was also told to eat naturally fermented foods which I have no idea what these are?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Twinmami (I guess you must have twins :) ), and welcome to this board.

Well, gluten is the protein in wheat, rye, barley and triticale (which is a hybrid of wheat and rye), and oats are bad, because they are usually contaminated in the factory.

Avoiding dairy for a while is a good idea, because right now your intestines probably can't digest dairy, until they heal (unless you tested intolerant to casein, then you can't ever have dairy again).

What you were eating for dinner was probably brown rice, which has no wheat and is fine, you can keep having that.

Your arepas are probably fine, too. Corn flour has no gluten. If you only use corn flour for them (and I believe that is the only flour ingredient), then they are no problem.

You will have to give up your sandwich on whole wheat flour for lunch. Eat corn tortillas (isn't that what arepas are?) with beans or meat, and vegetables instead.

Here is a link to a website that belongs to Nini, a member here. She has put together a lot of information that would be very helpful to you. She calls it her 'Newbie survival kit'. When you get to the website, scroll down to the bottom and click on 'newbie survival kit zip file'. If you have problems with zip files, go to the other link, where you'll find the single files to download. Here's the link: Open Original Shared Link

I don't know why you were told to eat fermented foods, either. Maybe somebody else knows.

rinne Apprentice

Welcome Twinmami, Ursula has set you on a good path and this is a great site with lots of really helpful advice.

I'm still in the being overwhelmed stage myself but after being largely gluten free (a couple of accidental glutenings) I am feeling so much better I can't believe I felt as badly as I did for as long as I did.

BRUMI1968 Collaborator

The suggestion to eat fermented foods probably comes from the idea that fermented foods aid in digestion, especially proteins and fats. AND it is especially important for the absorption of B12, which many folks with celiac have a deficiency in. Most cultures have some form of fermented foods, though I'm having trouble thinking of hispanic foods that fit this bill. Yoghurt maybe? There are some drinks based on fermented plants, pulque and tepache, fermented beverages made from the maguey plant and pineapple, respectively -- but those are alcohol and have their own set of problems.

If you want the healthiest kind, they need to be raw veggies; or if you can eat dairy, then kefir is good. It is like yoghurt, only liquid.

I eat raw sauerkraut. I thought it would be gross - but it is good. It is just chopped cabbage that is fermented. In this case, it is raw. It does seem to be helping me - and it seems to be making my skin really nice, which is an added bonus.

I'd focus mostly on the getting rid of the gluten, then worry about the smaller things. If your problem is celiac, you should notice a change in your skin problems pretty quickly I would think. At least I did, though my problem was not very bad.

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,060
    • Most Online (within 30 mins)
      7,748

    Vaughn Zellick
    Newest Member
    Vaughn Zellick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...