Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Enterolab

oceangirl

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi Everyone.

I WAS logged in (I thought) as "Laferriere", but as I am machine and computer incompatible, something went VERY wrong and I haven't been able to write in for weeks! Well, now I've changed my log-in name and, hopefully, have figured this out. I thought I would post when I got the results from the Enterolab testing. I, too, have some reservations with the authenticity of Dr. Fine, but I decided to go ahead anyway. I hope to have the gene-testing and other tests back maybe next week. I have scientists in my family-Dad, Uncles, cousins- and know that peer review is essential to good science. If anyone can point the way to more info on Dr. Fine, that'd be great. Thank you all again for your posts. 3 months gluten-free and still nowhere near symptom-free. But MUCH better overall. Still trying to figure it all out. This gluten/food thing is truly an odyssey!

lisa from Maine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

He's got a CV on his web site with references to his publications.

oceangirl Collaborator
oceangirl
Posted
  • Author
He's got a CV on his web site with references to his publications.

Thank you. I don't know what a "CV" is, but I'll try to find out. I have been to his website.

lisa

CarlaB Enthusiast
CarlaB
Posted
Thank you. I don't know what a "CV" is, but I'll try to find out. I have been to his website.

lisa

It's the abbreviation for the latin words that basically mean resume. I'd try to write out the latin words, but I'm sure I'd butcher the spelling of them!!

oceangirl Collaborator
oceangirl
Posted
  • Author
It's the abbreviation for the latin words that basically mean resume. I'd try to write out the latin words, but I'm sure I'd butcher the spelling of them!!

Thank you, Carla- I feel a bit stupid about that now! I've found some more stuff on him and am STILL waiting1

lisa

CarlaB Enthusiast
CarlaB
Posted
Thank you, Carla- I feel a bit stupid about that now! I've found some more stuff on him and am STILL waiting1

lisa

Don't feel stupid, until last year, I didn't know what it meant either. My results took less than two weeks.

AndreaB Contributor
AndreaB
Posted

They say they will have them back to you within three weeks...I think our was only two weeks (maybe only 1 1/2 weeks) since we got them back a week earlier than we thought we would.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jabberwife Explorer
jabberwife
Posted

I haven't gotten mine yet. :(

It's been 2 weeks tomorrow.

I'm getting impatient! I feel like the Jeopardy theme should be running in the background!

oceangirl Collaborator
oceangirl
Posted
  • Author
I haven't gotten mine yet. :(

It's been 2 weeks tomorrow.

I'm getting impatient! I feel like the Jeopardy theme should be running in the background!

Thanks, All...yes, I am anxious just to have some more info-maybe. It will be officially 3 wks on July 26, so I guess I should just breathe. Having a very bad week this week and can't find the hidden gluten. Has anyone ever had intestinal reaction to waxed dental floss or suntan lotion?

lisa

CarlaB Enthusiast
CarlaB
Posted
Thanks, All...yes, I am anxious just to have some more info-maybe. It will be officially 3 wks on July 26, so I guess I should just breathe. Having a very bad week this week and can't find the hidden gluten. Has anyone ever had intestinal reaction to waxed dental floss or suntan lotion?

lisa

No, have you been grilling out? I've had reactions to charcoal! Could you have a problem with dairy or soy? I was looking for the hidden gluten and discovered dairy. Keep reading and rereading all your products till you feel better. You'll keep finding stuff that has gluten.

oceangirl Collaborator
oceangirl
Posted
  • Author
No, have you been grilling out? I've had reactions to charcoal! Could you have a problem with dairy or soy? I was looking for the hidden gluten and discovered dairy. Keep reading and rereading all your products till you feel better. You'll keep finding stuff that has gluten.

Actually, Carla, I brought my food to my Mom's birthday barbecue, (this was Sat. the 15th) but decided to go ahead and be brave and eat a couple of roasted zucchini with salt and balsalmic vin. Things were okay that night, but not good since. Last night was THE WORST since April- just about every symptom back. Nights are the worst for me-usually after 2 AM. It's not good 'cause I never really rest! Maybe the barbecue was a bad idea, although I didn't have more than three thick slices of zuc. I am very frustrated and discouraged- I was doing a lot better. Does this happen?

lisa

CarlaB Enthusiast
CarlaB
Posted
Actually, Carla, I brought my food to my Mom's birthday barbecue, (this was Sat. the 15th) but decided to go ahead and be brave and eat a couple of roasted zucchini with salt and balsalmic vin. Things were okay that night, but not good since. Last night was THE WORST since April- just about every symptom back. Nights are the worst for me-usually after 2 AM. It's not good 'cause I never really rest! Maybe the barbecue was a bad idea, although I didn't have more than three thick slices of zuc. I am very frustrated and discouraged- I was doing a lot better. Does this happen?

lisa

Sounds normal. I've been gluten-free for seven months and just got glutened last Friday. My brain-fog let up enough today to do some filing and balance the checkbook, but my energy certainly isn't where it could be.

Be sure to read balsamic vinegar's label. I believe that some of it might have flavorings if it's not real balsamic ... someone correct me if I'm wrong. Also, balsmaic vinagraitte dressing often has soy sauce in it (I read several recipes for it on the internet and discovered this).

Don't get discouraged. It will happen less often as you go on.

kbtoyssni Contributor
kbtoyssni
Posted
Sounds normal. I've been gluten-free for seven months and just got glutened last Friday. My brain-fog let up enough today to do some filing and balance the checkbook, but my energy certainly isn't where it could be.

Be sure to read balsamic vinegar's label. I believe that some of it might have flavorings if it's not real balsamic ... someone correct me if I'm wrong. Also, balsmaic vinagraitte dressing often has soy sauce in it (I read several recipes for it on the internet and discovered this).

Don't get discouraged. It will happen less often as you go on.

Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

I also heard somewhere that some charcoals are made from partical-board type woods, which contain glue, which in turn can contain gluten... I always use foil when BBQing. My mum says that some charcoals will say on the package if it's made from "pure" wood or not, but I haven't actually checked this out myself.

oceangirl Collaborator
oceangirl
Posted
  • Author
Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

I also heard somewhere that some charcoals are made from partical-board type woods, which contain glue, which in turn can contain gluten... I always use foil when BBQing. My mum says that some charcoals will say on the package if it's made from "pure" wood or not, but I haven't actually checked this out myself.

Thanks, Carla- I know from reading this board that all of you seem to have ups and downs- I guess it's the going right back to the beginning that scares me. AND when I can't be sure of the source. I knew the basalmic was iffy and my sister had it in a container, not the original jar, so... I'm trying not to get depressed again. Thank you for your encouragment.

lisa

Thanks, Carla- I know from reading this board that all of you seem to have ups and downs- I guess it's the going right back to the beginning that scares me. AND when I can't be sure of the source. I knew the basalmic was iffy and my sister had it in a container, not the original jar, so... I'm trying not to get depressed again. Thank you for your encouragment.

lisa

and thank you about the charcoal, kbtoyssni!

tarnalberry Community Regular
tarnalberry
Posted

btw, CV = ciriculum vitae, generally used for scientific researchers, professors, and practicing doctors whereas everyone else uses 'resume'

CarlaB Enthusiast
CarlaB
Posted

Natural charcoal is okay and not hard to find. It's actually easier to light, but doesn't burn as long, so be ready when you light it!

mmaccartney Explorer
mmaccartney
Posted
Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting.

Newmans Own Balsamic Vinagrette is gluten-free and Dairy Free. It is good and should be widely available.

Open Original Shared Link

oceangirl Collaborator
oceangirl
Posted
  • Author
Natural charcoal is okay and not hard to find. It's actually easier to light, but doesn't burn as long, so be ready when you light it!

Carla and all,

Thank you again for your posts. I did just get the Enterolab results and while I don't have the two celiac genes- Yay!- I have two genes predisposing to gluten sensitivity and apparently the Antigliadin shows I'm still reacting to gluten as of two weeks ago! So I guess I haven't found all the places it's hiding. They say because I got one gene from each parent so I gave one to all (both) my kids. So I guess they'll know and I'll know to pay attention to that. Yesterday I cut out a few more things- a ginger spice that I can't get confirmation of gluten-free and some candied ginger (my only sweet!) It was a better day but I'm very hungry and I can't afford to lose any weight. Carla, I've seen you post that Ruffles potato chips are okay. I stopped Cape Cod because I realized they have corn oil and I'm not eating corn. I'm scared to try anything new right now- particularly processed food of which I eat almost none except the chips and my rice cereal. I'm going on... Take care all and good health to all!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,972
    • Most Online (within 30 mins)
      7,748
    Isabela24
    Newest Member
    Isabela24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Worsening oral health with celiac

      By trents · Posted

      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
×
×
  • Create New...