Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone On A Crone's Diet?


lindalee

Recommended Posts

lindalee Enthusiast

Does anyone know if the Crohn's Diet helps Celiac's? LindaLee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

What do you mean by Crohn's diet: the specific carb diet?

lindalee Enthusiast
What do you mean by Crohn's diet: the specific carb diet?

Bully, I'm not real sure what the diet is. Have heard it helps us. Got a meeting to go to but want to find out more. LL

eKatherine Apprentice

I found a few mainstream sites that said something like this:

A formal Crohn's diet doesn't exist per se. Foods that aggravate symptoms in one person may have no effect on another. Learning which foods can or cannot be incorporated into a person's diet takes time and is a matter of trial and error.

Open Original Shared Link

I also found several alternative medicine sites that were selling information about their crohn's diet.

lindalee Enthusiast
Bully, I'm not real sure what the diet is. Have heard it helps us. Got a meeting to go to but want to find out more. LL

Bully, there is a celiac group on the calendar that does the chron's diet. I e-mailed them but haven't heard anything back. LL

BRUMI1968 Collaborator

they're probably talking about the S.C.D. or specific carbohydrate diet which was made for folks with Crohns and Celiac and the like. I have done a similar diet, called the Body Ecology Diet...but I'm doing it in a modified way right now because I had no energy, probably from yeast die-off.

I'm going to look more into the specific carb diet...but if that is it, do a search in this discussion board and you'll get results; I've read stuff on it before. I think a few folks were doing it at the same time and sharing their experiences.

Good luck. Let me know what you find out at the meeting.

lindalee Enthusiast

they're probably talking about the S.C.D. or specific carbohydrate diet which was made for folks with Crohns and Celiac and the like. I have done a similar diet, called the Body Ecology Diet...but I'm doing it in a modified way right now because I had no energy, probably from yeast die-off.

I'm going to look more into the specific carb diet...but if that is it, do a search in this discussion board and you'll get results; I've read stuff on it before. I think a few folks were doing it at the same time and sharing their experiences.

Good luck. Let me know what you find out at the meeting.

[/quote The group is in Austin Texas called SCD friends they have a meeting tonight. Can't go I'm in Va. The group found this diet helped them to heal. They say there are many such groups around the world and call their diet - the miracle diet. (my meeting wasn't on celiac <_< .) LL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

Here's a link to the specific carbohydrate diet:

Open Original Shared Link

It is from some information source - like wikipedia but different. Anyway, one thing about the specific carb diet is that dairy is allowed and even pushed a bit, in the form of cheeses and dry curd cottage cheese. If you don't do dairy or are caseine (sp?) intolerant, this would not work well.

The diet that I tried (and am still to some extent on), is called the Body Ecology Diet. It is based on the same idea that the body is overun by bacteria and yeast, and that getting the body's ecology back on track will help alleviate symptoms of colitis, celiacs, crohns, ibs, etc. There is no dairy at all on this diet except, and she wants you to wait for a couple months to try it, kefir, which is like liquid yoghurt and has lots of probiotics in it. Another thing she pushes is raw fermented veggies - in other words, raw sauerkraut. I've been doing this whenever I eat meat, and what folks say about it making your skin nice seems to be true. I've always had pretty good skin, but I think it looks even better now.

Challenges: not enough stuff to eat on the diet, at least at first. You're allowed ZERO fruit, no sweet veggies at all, no dairy, grains, legumes (already cut out for me), no sugar of any kind ... she says no caffeine but I still drink my green tea. I ran into what they call "yeast die-off"...it has some official name "somebody or else syndrome". It was really tough. Basically, my back and leg muscles hurt really badly, I had ZERO energy, and had to drag myself from here to there. I tallied up how many carbs I was eating and it was really practically nothing, so I ate a rice shake with 35 g of carbs and I felt like someone really filled up my tank.

Anyway, I think the diet has a lot of merit in a lot of ways: she empahsizes food combining (not eating proteins with starches), fermented veggies, expansive/contractive, acid/alkaline, the idea that everyone is different, the 80/20 rule (80% full leaves 20% room for digestion; 80% veggies 20% protein on your plate), etc.

I think it is worth checking out from the library if you've got it, and if you feel like your healing process is slow. I will tell you that by the end of the first day, my bloating was gone. And it stayed gone until I ate some sugar, too...suspicious.

Like I said, I don't know enough about the Specific Carb diet, and don't like the fact that it includes legumes and cheese. But there is an old post that has currently been rekindled and is up right now if you hit View New Posts. I think it's on page 3 of the new posts. It's mostly old, but you can read it and see what challenges folks had with that diet. I briefly looked up "miracle diet", but what I found was about weight loss, and not about handling digestive disorders and being more health in general - but I did not search extensively.

lindalee Enthusiast
Here's a link to the specific carbohydrate diet:

Open Original Shared Link

It is from some information source - like wikipedia but different. Anyway, one thing about the specific carb diet is that dairy is allowed and even pushed a bit, in the form of cheeses and dry curd cottage cheese. If you don't do dairy or are caseine (sp?) intolerant, this would not work well.

The diet that I tried (and am still to some extent on), is called the Body Ecology Diet. It is based on the same idea that the body is overun by bacteria and yeast, and that getting the body's ecology back on track will help alleviate symptoms of colitis, celiacs, crohns, ibs, etc. There is no dairy at all on this diet except, and she wants you to wait for a couple months to try it, kefir, which is like liquid yoghurt and has lots of probiotics in it. Another thing she pushes is raw fermented veggies - in other words, raw sauerkraut. I've been doing this whenever I eat meat, and what folks say about it making your skin nice seems to be true. I've always had pretty good skin, but I think it looks even better now.

Challenges: not enough stuff to eat on the diet, at least at first. You're allowed ZERO fruit, no sweet veggies at all, no dairy, grains, legumes (already cut out for me), no sugar of any kind ... she says no caffeine but I still drink my green tea. I ran into what they call "yeast die-off"...it has some official name "somebody or else syndrome". It was really tough. Basically, my back and leg muscles hurt really badly, I had ZERO energy, and had to drag myself from here to there. I tallied up how many carbs I was eating and it was really practically nothing, so I ate a rice shake with 35 g of carbs and I felt like someone really filled up my tank.

Anyway, I think the diet has a lot of merit in a lot of ways: she empahsizes food combining (not eating proteins with starches), fermented veggies, expansive/contractive, acid/alkaline, the idea that everyone is different, the 80/20 rule (80% full leaves 20% room for digestion; 80% veggies 20% protein on your plate), etc.

I think it is worth checking out from the library if you've got it, and if you feel like your healing process is slow. I will tell you that by the end of the first day, my bloating was gone. And it stayed gone until I ate some sugar, too...suspicious.

Like I said, I don't know enough about the Specific Carb diet, and don't like the fact that it includes legumes and cheese. But there is an old post that has currently been rekindled and is up right now if you hit View New Posts. I think it's on page 3 of the new posts. It's mostly old, but you can read it and see what challenges folks had with that diet. I briefly looked up "miracle diet", but what I found was about weight loss, and not about handling digestive disorders and being more health in general - but I did not search extensively.

Hi Bully, YEAST DIE OFF- Hadn't heard of that...Since I had that massage last week I have had an achey(sp) feeling in my legs-never thought it could be from yeast die off. Detoxing-I've also gone back on my probiotics,apple cidar vinegar,and walking and epson salt baths...How are your leg/back?...Improving? My legs and shoulders are still achey and shoulders are tight. I'm thinking about going in and just getting a real EASY massage. Thanks for the info on the SCD. I emailed the group and Kay send me a ton of info. I am going to get the book and see about it. I, too, have been on this healing diet-no beans, no grains, limited cheese, no sugar (that is my downfall- chocolate-semi sweet lately)., no night-shades. I also am eliminating soy. My sleep seems to be improving-bought a turkey breast and maybe that was it? Take care, LL

BRUMI1968 Collaborator

I feel WAY better now. I actually had hit bottom I think a week or two ago- and so I bought an Amasazi (?) rice shake, which had 35 mg carbs, though no refined sugar. I drank that and felt better, though then I had a reaction to it the next day (tried to drink another one)...(I'm still waiting for my food allergy test). Anyway, I think I was suffering a combination of yeast die-off and lack of calories. Now I feel great. My back ache and leg aches are gone. Any muscle aches I get now seem to be more athletic - I mean, they feel better when I stretch, and I probably got them doing something...instead of just waking up feeling like I got hit by a train. I'm still struggling to get enough calories, though. I keep losing a bit of weight, almost every day like a quarter pound or so.

I ate a hamburger patty last night - this is the first red meat for probably 20 years! It was good. I ate it with some raw sauerkraut which is supposed to help with digestion. It went down pretty easily. I feel a bit odd this morning, but I'm not sure that that is all about. I have been eating turkey and chicken natural lunchmeat. I think it's funny that I've no doubt been lacking in tryptophan for a few years, since it comes from soy and animals, and I quit soy some time ago. I actually felt a rush of relaxation/sleepiness after eating last night.

Anyway, I need to probably cut out raisins for a while, to be sure I've got the yeast under control - I think that's the only super high glycemic index food I've been eating lately.

Hope you feel better. Let me know if you like the SCD - I don't think I want to add the dairy, so I probably won't do it....but I'd be curious to hear how you like it...and if it can be done dairy free?????

-Sherri

jerseyangel Proficient

Sherri--I'm so glad to hear that you're feeling better! :) That's great.

Nancym Enthusiast
Challenges: not enough stuff to eat on the diet, at least at first. You're allowed ZERO fruit, no sweet veggies at all, no dairy, grains, legumes (already cut out for me), no sugar of any kind ... she says no caffeine but I still drink my green tea. I ran into what they call "yeast die-off"...it has some official name "somebody or else syndrome". It was really tough. Basically, my back and leg muscles hurt really badly, I had ZERO energy, and had to drag myself from here to there. I tallied up how many carbs I was eating and it was really practically nothing, so I ate a rice shake with 35 g of carbs and I felt like someone really filled up my tank.

Actually, I'd probably call that "carb flu". It's a well known symptom of switching to a low carb diet. Your body has to adjust to burning fats and using ketones versus running off of glucose. It takes about 2 weeks to adapt.

BRUMI1968 Collaborator

Ah...that makes sense. I'm so glad I feel better. I'm actually craving exercise, my eyes feel bright and wide open, I don't want naps...I haven't felt this good in a long time.

I'm still working out some of the bugs with what i can and can't eat; and I still sometimes get grossed out by something in my turkey rollup...15 years of vegetarianism can do that to you ... but I definitely think I'm on the right track.

I'll bet all along I was starving my body of protein, and tryptophan. Not that I think veggie'ism is bad at all - it worked well for me for a long time, and it works really well for types who don't need a lot of protein...but I seem to be doing better on this new diet.

The best thing about adding land animals back to my diet is that it is the first time in YEARS that I've expanded my diet, rather than contracting it. And I do think having too rigid a diet can make us a bit rigid too -- I feel more relaxed already.

Thanks guys.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,809
    • Most Online (within 30 mins)
      7,748

    Iain Maddox
    Newest Member
    Iain Maddox
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iris Kraft
      I do not use menthol lozenge, but I have found a brand of oral probiotics that has same ingredients as Prodentim but without spending $50  bottle. I bought Naturewise Oral probiotics from Amazon at $29 a bottle for 50 chewables instead of the 30 qty. The Simbicort upset the bacteria is my mouth, had white tongue and created a dental problem with a tooth, plus the inflammation in throat, vocal cords. Used the chewable and rested it along the gum where tooth hurts 4 x on Monday. Tuesday, went to dentist and she looked at what I thought was my problem tooth and she said all looked pink and happy. No problem.  Also, I spoke with my Allergist and he said instead of two puffs am and pm, try one puff only in am.Can always add one puff in PM if needed. Rinse mouth twice and gargle twice, and brush tongue. Use the Rescue inhaler Albuterol if needed (which I didn't need to). Know that Flucasolone, Simbicort, Advair are interchangeable.
    • Ann13
      I have the exact same symptoms for a couple of wks now but I've been taking Symbicort for quite awhile at this point. I read you can get yeast infection in the vocal cords so I may ask my Dr. for antifungal meds cos I cant wait for an ENT exam. Also read on this site the connection between Vit D and K2 deficiency and asthma...doesn't apply to me cos mine is from mold in a house years ago but still might try and see if my asthma improves. I am Celiac and gluten causes the same symptoms but it says this inhaler is gluten free and it only started acting up so that option is out. I use Ventolin on occasion but using that for many many years. For me I will see if can switch inhalers to a brand that doesn't affect vocal cords as much, Advair is NOT one of them, plus will try the supplements. Do not suck on menthol lozenges cos menthol dries out cords more...sleeping elevated and sucking on ice chips gets the swelling down...at night this can really help especially. I can't continue like this so will get on everything this coming week.  
    • Rhenriksen
      Did a little more research just now and found out that even though the max methane should not exceed 10. It is normal to be around 3 and not rise. Again, I was at 13 so this does make me a bit suspicious. This was done back in May of 2024. I do recall being put on 14 day Antibiotic called Rifaximin but I'm really not sure if it made a difference, but if it did, then the problems still came back:( 
    • Rhenriksen
      I did a SIBO Test about a year ago, and I barely elevated on the Methane portion (max was 10 and I hit 13). Dr wasn't too concerned.    
    • trents
      Have you looked into SIBO (Small Intestine Bacterial Overgrowth)?  Also, MCAS (Mast Cell Activation Syndrome)/histamine intolerance (they go together like a hand and glove).  Both of the above are common in the celiac community.
×
×
  • Create New...