Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Conference In Stanford, Ca - Sept '06

DingoGirl

By DingoGirl
in Meet Up Room

Recommended Posts

4getgluten Rookie
4getgluten
Posted
This is really great, girls! I'm so excited about it. Yes, we must meet each other in person! Karen - maybe the baby will come early - or late - - ;) would be great if she could go. Can she get us discounts? I am so broke.... :huh:

Susan - I'll ask my sister about it, can't hurt. I'll let you know what I find out.

As far as driving around in the bay area, it's really not bad. I live in L.A, and I think the drivers in northern California are a lot more mellow than here. I'm afraid I've become one of those aggressive drivers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 68
  • Created
  • Last Reply
Rikki Tikki Explorer
Rikki Tikki
Posted

I tend to agree with you Karen, the further south I have gone the more agressive the driving gets. That has been my experience anyway. If it get's too bad, just get in the car and start driving north! :lol: Keep going and we can all meet up someplace and eat! :D

Rikki Tikki Explorer
Rikki Tikki
Posted

He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)

DingoGirl Enthusiast
DingoGirl
Posted
  • Author
He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)

OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:

munchkinette Collaborator
munchkinette
Posted

Oo, this looks interesting! I might have to sign up.

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

It all depends on the airline. SFO is best for United. San Jose and Oakland are often cheaper for many airlines, particularly Southwest and Alaska. If I lived closer to SJ, I'd definitely pick that one to avoid driving over bridges.

Rikki Tikki Explorer
Rikki Tikki
Posted
OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:

Now that made me smile. Glad you are doing so much better! :D

flagbabyds Collaborator
flagbabyds
Posted

i run the teen program and the kids program every year, and do set up the night beofre every year, a really good conference! but sign up extremely earrly cause the reg goes really really really fast and it is in a small facility b/c the bigger one raised the price a LOT cause my dad didn't work there anymore so we couldn't get it for the cheaper price.

and about next year, the dates change every year, last year it was in november.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

Oh my gosh- I really want to go!!!!!!!!!!!!!!!!!

I'm cracking up about all you California drivers. having lived in both San Francisco and Boston, I can honestly say if you think the Bay Area is bad.....try Boston. Talk about road rage....gluten or no gluten!!!!!!!!!!!!!

I'm going to look into plane tix.

flagbabyds Collaborator
flagbabyds
Posted

i would just say that before you book the plane tix, get the regestraion becasue we do not let in peple who have not registered. here is all the info

Open Original Shared Link

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

I'm so excited for you, and we'll have to have an area where all of us from this forum meet up!

I would actually say that they have been changing the SJ airport so much that it is very stressful w/ all the construction SF is really easy during non commute hours/

and yes we should meet up, Scott is usually there and I will be the girl who is frantically running around yelling at the adults b/c the forgot the ovens for the teen cooking program!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Molly - - so you're helping with this! Awesome! It would be great to meet everyone and great to meet Scott. I just registered so I'm IN! didn't know about all the construction at SJ airport. Am driving there, styaying at best friend's - with dingos - in Willow Glenn, whihc I think is about a half-hour away, as I remember correctly.

I'm really looking forward to it!

flagbabyds Collaborator
flagbabyds
Posted

im from stanford campus so we use SJ a lot and every time we go there it is differnt than the last time we were there. but your friend should be able to help you w/ directions to her house, never heard of willow glenn...

i think this is the 6th year that we have had this conference and this is my 4th year doing the kids/teens programs

its a good conference, yet i have never gone to the speakers be\/c i am always with the teens program.

dlp252 Apprentice
dlp252
Posted

I just registered, so I'm set.

flagbabyds Collaborator
flagbabyds
Posted

¡yay!

it is mucho fun!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Yay, Donna! We'll meet in person.

Molly, what do you mean you're at Stanford Campus? Um, you're a bit young for college, aren't you? (here's a secret - it's my dad's Alma Mater and I went to every Big Game there was.....what a hoot and I LOVE Stanford very much)......

Willow Glenn is in San Jose, Bird Ave. exit off 280. They're my extended family and I'm there a lot.

flagbabyds Collaborator
flagbabyds
Posted

my dad used to work for stanford, we have a house in the faculty part of campus, yeah i am not college age yet........

gf4life Enthusiast
gf4life
Posted

Okay, I think I'll register now...I was concerned about the price for a family of 5. $385 if we register before Sept., not to mention the gas money!! :huh: But if you guys are going to pay for plane tickets to go, then I really don't have anything to complain about. It is only a 3 hour drive for us! I've been wanting to go for the past 3 years. I just have to bite the bullet and get registered. Anyone know of a good (safe) place to have dinner after the conference?

Molly, they won't be taking the kids off-site to swim this year will they? That is what stopped us from going last year. My husband is a security freak and he would not allow the kids to participate in that. He already worries about just having them be in a different area of the conference with out us!

Rikki Tikki Explorer
Rikki Tikki
Posted

Wow I guess there prices are going up. Can one of you stay with the kids it he is that concerned about them? The 2 years I went they had so much food I wasn't hungry for dinner. Of course that never stops kids from eating! :lol:

jayhawkmom Enthusiast
jayhawkmom
Posted

I'm paying for a plane ticket, hotel for 2 nights, car rental...and incidentals. That's how important I felt it was for me to be there. Not to mention, dh has to take some time off of work to stay home with the 3 kids. No way could we afford for all of us to fly to California for a weekend. =)

I really wanted to take my daughter, but she *just* turned 5 and she's way tiny and very behind in maturity level (thanks gluten) so I didn't feel she'd be able to seperate from me and go with the kids program. Next year!!!!

Rachel--24 Collaborator
Rachel--24
Posted

Susan,

I finally checked out this thread and now I really wanna go!! :D

How do I register and how much does it cost?? I got scared after I saw Marianne's post quoting $385. :blink:

If thats what it costs I know I cant go. :(

flagbabyds Collaborator
flagbabyds
Posted

go to www.celiacsprue.org, and click on the conference page.

adult reg is $95, but it is worth it

and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Rachel, Molly's right, it's $95 (plus the cost of gas.....and you're not that far!) I just signed up yesterday to be guaranteed a spot. Can't wait! Just sign yourself up, it'll be such a great day!

:):):)

gf4life Enthusiast
gf4life
Posted
and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.

Was that 2 years ago?? Man time flies. I think last year there was a schedule conflict...

It is $95/adults and $65/kids over 5. I really want my kids to go with me which is why it will cost us so much. I feel it is important that they get to spend time with other kids with the same dietary restrictions. And I really think it would make an impression on them to be able to go somewhere and be able to eat ANYTHING that is being served. It just doesn't happen anywhere but at home.

I am going to buy the tickets this Monday (payday) and then I will have no excuses not to go. My husband wants to go with us too. He isn't gluten free, but he does have gluten intolerance genes, is lactose intolerant and has some health issues that could be gluten related. He is open to learning more about it and I think it would help him to decide if he wants to go ahead and either get tested or just go on the diet with the rest of us. Not to mention that he doesn't like us traveling out of town without him...the safety issue again. I don't mind, I hate traveling alone with the kids anyhow and he feels the need to protect us. :D I think it is sweet.

4getgluten Rookie
4getgluten
Posted

Wow - I've been so busy this week; I haven't had a chance to check the message board. Molly thanks for all the great information! I was hoping to get some info from my sister who works at Stanford, but I can't get a hold of her. I think she is out of town. Anyhow, I just went ahead and registered. I didn't want to leave it too late and have them fill-up. Looks like a great conference. I'm looking forward to it.

Rikki Tikki Explorer
Rikki Tikki
Posted

Ok I am going. Now we have to have a place and time to meet up. :D I am so excited

  • 2 weeks later...
Katja Rookie
Katja
Posted

Hello All,

I am new to this forum - just signed up today - and signed up to attend the Stanford Celiac Conference. Hope to meet some of you there. Still struggling to avoid being "glutened" by accident and can use any advice I can get.

Cheers,

Katja

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,833
    • Most Online (within 30 mins)
      7,748
    Lucy20
    Newest Member
    Lucy20
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really takes is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses!
    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Opinions on my test results/symptoms

      By BIg Nodge · Posted

      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Nandos improper preparion celiac childrens food

      By Scott Adams · Posted

      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
×
×
  • Create New...