Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Health Insurance Denial


bigapplekathleen

Recommended Posts

bigapplekathleen Contributor

Hi everyone,

I would like to know what all of you do about health insurance. I am self-employed, and currently finishing out my COBRA benefits from a previous employer. I applied last month for an independent policy through Blue Cross, who ironically, is my current health provider. I just got a rejection letter today, and the reason stated was 'gluten intolerance'. I am appalled. I have virtually NO medical bills related to gluten intolerance. My blood tests for the celiac gene were negative. The plan I applied for was a high-deductible plan under the new Medical Savings Account plan, where I am responsible for paying the first $2500 of bills and then the insurance kicks in after that. The plan costs about $2400 a year in addition to the $2500 deductible, which is significantly less than the $9000 a year in premiums (plus additional co-pays) I am currently paying through COBRA.

What are your experiences, thoughts, and suggestions? I am tempted to just put money in a savings account and pay as I go, but what about catastrophic coverage? I had some really high medical bills before I was diagnosed with gluten intolerance, but in the past year, my medical bills have dropped to nearly zero.

Thoughts?

Kathleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Wow, you weren't even diagnosed with celiac??? How were you diagnosed with gluten intolerance?

Nancym Enthusiast

What state are you in? In CA we have something called HIPPA which is supposed to force people to insure you if you've been continuously covered. It might be National, but I'm not sure.

I did have to resort to coverage through my state when I was self-employed. It was obscenely expensive though, over $550 a month!

From my own experience, you really need to research and figure this out long before your COBRA runs out because it takes forever.

roxanne40 Newbie
Hi everyone,

I would like to know what all of you do about health insurance. I am self-employed, and currently finishing out my COBRA benefits from a previous employer. I applied last month for an independent policy through Blue Cross, who ironically, is my current health provider. I just got a rejection letter today, and the reason stated was 'gluten intolerance'. I am appalled. I have virtually NO medical bills related to gluten intolerance. My blood tests for the celiac gene were negative. The plan I applied for was a high-deductible plan under the new Medical Savings Account plan, where I am responsible for paying the first $2500 of bills and then the insurance kicks in after that. The plan costs about $2400 a year in addition to the $2500 deductible, which is significantly less than the $9000 a year in premiums (plus additional co-pays) I am currently paying through COBRA.

What are your experiences, thoughts, and suggestions? I am tempted to just put money in a savings account and pay as I go, but what about catastrophic coverage? I had some really high medical bills before I was diagnosed with gluten intolerance, but in the past year, my medical bills have dropped to nearly zero.

Thoughts?

Kathleen

I am so sorry to hear about your experience. Unfortunately, it is probably happening to a lot of people. I was denied life insurance because of my Celiac Disease diagnosis. We appealled the decision and the doctor sent a note explaining the wheat intolerance and that did not help. And how did you get diagnosed with gluten intolerance but not Celiac Disease?

kbtoyssni Contributor

Oh man, that stinks. Sorry you have to deal with this. I don't have any good advise for you, but I think insurance companies are being stupid with celiac disease. Honestly, I am so much healthier now that I have a diagnosis than before. Do they want people like me to go back to weekly doctors visits and several prescription drugs? They are saving so much money now that I'm diagnosed. But I don't think there's any good way to prove this to them.

Guest Evelyn&Ric

We got Blue Shield PPO insurance from Open Original Shared Link in 2002. On the form under health conditions, we put IBS (controlled by diet). Ric has not been officially diagnosed Celiac, but has had several tests. In 2006, we increased our deductible because the premiums went up because I’m now 50.

TIP: If you are married, have the spouse who is younger be the primary so that the premiums will be calculated on the younger person.

codetalker Contributor
What state are you in?

I would like to know that, too. It would be interesting to know which Blue Cross denied you coverage.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bigapplekathleen Contributor

Hi everyone,

Thanks for your replies. I am in the state of Connecticut.

I was diagnosed first with Celiac by some ancient blood tests (IgA or something like that). I consulted one of the top celiac doctors and he said those tests meant nothing. However, I did really well on the gluten-free diet. Nearly all of my health problems went away (and they were extensive...) My biopsy was clear after 18 months gluten-free. (No biopsy was done before I started the diet.) We did the genetic test for celiac (CeliaGene) and it was NEGATIVE. However, my top celiac doc thinks I am gluten intolerant, and unfortunately, that label as well as celiac are all over my medical records. Years of doctor visits, illnesses, and brushes with death left my medical bills pretty high for the insurance companies. In a way, I can't blame them. HOWEVER, now I have virtually no need for medical care. I am never sick and need no medications.

My current COBRA payments are $734 per month. In my humble opinion, even continuing to set aside that much per month should pretty much cover anything I would ever need. My fear is catastophic coverage. What if something big came up?

Any other suggestions out there?

lindalee Enthusiast

Kathleen, that is terrible. I haven't been to the doctor yet but do plan to go and get the routine stuff done-physical, blood work, normal stuff --that is if I can figure out who to go to. The health care industry also seems to need some education. LL

TCA Contributor

I would encourage you to find some form of health coverage. My father was financially ruined by catastrophic circumstances. He had jus started his own business and his insurance was in a probationary period when he had a massive heart attack. He lost his insurance and his business and had 5 more heart attacks with no insurance. Hopefully not going to happen to you, but you never know what might happen.

Guest nini

I was also denied health insurance because of Celiac... I challenged that decision and got them to at least say they would insure me but put a waiver on anything Celiac related, that wouldn't be covered for at least a year... after fighting really hard to keep insurance, I still ended up losing it when both hubby and I lost our jobs... I'm on medicaid now but when I have to go off medicaid I'm really nervous about what will happen insurance wise.

debbiewil Rookie

HIPAA is a fedaral law (passed in 1996) which limits insurance companies abilities to deny coverage for pre-existing conditions in most circumstances. You should look into the law, and see if it applies to you. If so, then they can not deny you insurance. You can find more information about HIPAA here Open Original Shared Link

The portability part is mostly overseen by the Dept. of Labor, as it usually (but not always) applies to group insurance. There's more info on that here Open Original Shared Link

Anyway, see if HIPAA applies. If it does, file a complaint and send a copy to the insurance company. In the meantime, check with some other insurance companies. Open Original Shared Link

Debbie

mmaccartney Explorer

I thought HIPPA only applied to group coverage and employers, but that might not be the case:

From Open Original Shared Link

What if I am unable to obtain new group health plan coverage?

You may be able to purchase an individual insurance policy. HIPAA guarantees access to individual policies to eligible individuals. Eligible individuals:

Have had coverage for a least 18 months without a significant break in coverage where the most recent period of coverage was under a group health plan

Did not have their group coverage terminated because of fraud or nonpayment of premiums

Are ineligible for COBRA continuation coverage or if offered COBRA continuation coverage (or continuation coverage under a similar state program), have both elected and exhausted their continuation coverage

Sounds like you might qualify!!

I would call the insurance company back and tell them that you qualify under HIPPA for protection from denial of coverage, and pre-existing condition and see what happens. Sometimes the threat of legal protection is enough to make them move, sometimes it takes a filing with the authorities, or a phone call from an attorney that deals with HIPPA alot.

If I were you I would also call the department of labor and discuss this with them to make sure you are in the right! Their number on the weblink above was 1.866.444.3272

Good luck and keep us posted!

TinkerbellSwt Collaborator

My mother works for an insurance company here. When you have trouble with any insurance company she always tells me to call the Dept of Insurance. The insurance companies really dont like that. But it may help you solve your problem, at least to get some clarity to it.

lindalee Enthusiast
My mother works for an insurance company here. When you have trouble with any insurance company she always tells me to call the Dept of Insurance. The insurance companies really dont like that. But it may help you solve your problem, at least to get some clarity to it.

Would that also apply to something like wind/hurricane coverage? LL

Moongirl Community Regular

I do work for an health insurance co. I do think that some carriers under certian plans can deny you due to pre-exsisting conditions, (especially if its your going under a non-group plan) but i have never heard gluten intolerance being one. Usually it would be something a lot more serious.

My advice, I would shop around to other health carriers. Im not from CT but I am from NE area, we have one of the highest health insurance premiums in the country, so wherever you go try to find a good deal.

jenvan Collaborator

Forgive me if I'm being redundant :) I cked with my mom who is in HR/insurance. She said the following: Protection under HIPAA is for employees who receive health benefits through their employers and who subsequently change jobs. HIPAA applies to most group plans and I am not aware of any protection for individual coverage. My suggestion would be to contact an agency who deals in health insurance and have them look for coverage. They will have access to many companies and will be able to give a much broader overview of possibilities.

mmaccartney Explorer

I too thought it only applied to employees applying for group health coverage, however in my post ( Open Original Shared Link ) I have a direct quote from the US Department of Labor website that indicates differently. Here is the DOL link again Open Original Shared Link Scroll to the bottom of the page, read the second to last FAQ.

It appears that if a person is unable to get group coverage, HIPAA guarentees access to individual policies for eligible indivuduals.

Eligible individuals must have had insurance for 18 months under a group plan, with no significant break in coverage. Their coverage was not terminated for fraud or non-payment. They are ineligible for Cobra, or have elected and exhausted cobra coverage.

It appears that Kathleen had group coverage from her previous employer, and has elected to use and has exhausted the cobra coverage offered. So unless she committed fraud or didn't pay her previous policy (doubtful since employers typically withold from your paycheck) I would say to call the insurance company and talk about HIPAA with them. If they are still denying you I would talk to an attorney.

Alternatively, in Northeast OH we have a group called COSE. I think it is the Council of Small Enterprises. They are a group of small business that use their combined bargaining power for things like group ealth insurance coverage. If you're running your own company, even if you are your only employee, one can sign up with them and obtain discounted group health coverage....HIPAA would protect you here as well.

BTW: Just trying to help, not trying to argue!!!!

zip2play Apprentice

anytime you have a dispute with any insurance company (medical or wind/hail) getting the insurance department involved is a good idea. I used to work for the KS insurance dept and Insurance companies don't like receiving complaints. They are logged at the dept and then that info becomes public record. Sometimes the sweaky wheel does get the attention!

Monica

debmidge Rising Star

My husband just got a standard rate life policy thru MetLife this year despite telling them he had celiac disease. The underwriters there knew what celiac is and weren't afraid of it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...