Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reality Hits Once Again...


num1habsfan

Recommended Posts

num1habsfan Rising Star

Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

I see the forest through the trees on some days and others all I see is a lot of tall sticks with leaves...

I had to come to terms with the fact that I have more bad days than good. I also removed all "BAD" food from my house. Is this possible for you to do? If not, perhaps you could keep a supply of your absolute favorite, safe foods in the house... I just started to keep gluten-free brownies in the freezer for those special moments. Many people at work eat my favorite, unsafe foods often and I must see this. So in order to keep my head above water... I started to bring to work and keep at home my really favorite, safe foods. I love chocolate and I found a snack bar made with honey and sesame seeds that I love!!!

I hope it helps!!!!!!

jerseyangel Proficient

Aw Lisa--don't be too hard on yourself--it happens to all of us from time to time. It's natural to have feelings like that--experience them, and then let it go. :)

nettiebeads Apprentice
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

Why should you feel like an idiot? You're a very normal human being that has a disease that is so not mainstream. It's frustrating at times. After nearly 10 years of this, I'll still look in the pantry and just want to give up - same ole same ole and I don't want to spend outrageous prices for something yummy or cook from scratch. At least this forum is a safe place to vent and find out you're not alone.

Annette

Lymetoo Contributor

I hear ya, Lisa! I"ve struggled for years with my health. I also have Lyme disease which is so misunderstood by the public. People have no clue how bad it is. Now I found out I'm celiac too and I've had it a LONG time, I'm sure.

I haven't cried yet, but I'm pretty down today as well. Crying is good for the soul and for your emotional well-being. Go for it! :)

Mango04 Enthusiast

Don't feel like an idiot. You can cry over food! Just go make yourself a yummy gluten-free pizza or cake or something :D

Lisa Mentor

Lisa:

I can truely relate. It will be a year in August in my attempt to be gluten free. I have not had the outcome that I wanted to achieve. It is a daunting task.

It has been a crazy year for me and now, life slows....It is now a point in re-evaluation for me.

I think every step of they way, you need to see where you are and make judgements as to where you are today and where you want to go tomorow.

Yeah, I get mad on the inside about what I have to do to eat. And, I get mad about the effort and the research, and the choice not to eat anything that I don't know is safe. I get mad that I can't go to a wondeful resaurant and order what sounds good. Can get really angry. And then what............

So I get pissed, or I can get over it. Those are the days long ago. They are over for me. So.. you adjust. You learn to be a better cook. Which I am. But I want those days, with a date night with my husband and a choice of a menue was not an issue or a hardship or an issue with the server.

sorry do be a downer tonight, just in that mood............what is the topic, by the way.??

Is this revelant to the post?????????? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

I understand how having Celiac Disease seems unreal. Don't feel that way. You are certainly not an idiot. During the first three months, I would not go to any store. When a commerical came on showing my favorite, gluten-containing foods; the television was turned off. I have days too were it all crashes down and feel bad. In time, it will pass.

Wishing for better days for you :)

-Ash

Ursa Major Collaborator

Lisa, don't feel like an idiot! I get those moments, too. It really is hard sometimes, and it's good you can come here and vent, because we actually understand and won't say (like my daughter at times) things like, "What a baby you are, crying over food!" Well, since they can eat all the stuff I want, they don't have a clue what it's like!

So, I say, it's okay to sometimes cry over what you've lost, and then move on. It would only be a problem if you would be upset about it all the time.

num1habsfan Rising Star

Thank you guys for saying that I'm not dumb, and showing that I am not alone. I dont get it -- I have seen this food a zillion times before, and NEVER had a problem with it before ... so why it set me off now, I dont know.

Its not like I dont accept Celiac, maybe its just that everything else today is making me sad lol

~lisa~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,195
    • Most Online (within 30 mins)
      7,748

    peebo
    Newest Member
    peebo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...