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Blisters On Fingers


susiek

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susiek Apprentice

I am learning more and more about this celiac disease! And with 20/20 hindsite am wondering about symptoms I have had my entire life!

I've gotten a rash on and off since my early 20s. In the spring, usually. It itches and oozes.

BUT my blisters seem to be almost under the skin. They aren't on top, so there are no bumps. Almost like the top wall of the blister is flush with the top layer of skin.

My doc and derm have been stumped...Is this DH?


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gf4life Enthusiast

It could be DH. Has the dermatologist done a biopsy on your skin? They can tell if it is DH if they are looking for it...

Ursa Major Collaborator

I get those, sometimes under the skin (and they hurt), or sort of on my skin and visible. If I don't open them and remove the top layer of skin, they become hardened and more painful, and never go away. I get that problem after getting glutened. I KNOW it is connected to gluten, but the dermatologist claimed that I am wrong, and it is just eczema. Whatever.

I find though that a homeopathic eczema cream called 'Execalm' is helpful (after opening those blisters). It also helps on the other rashes I get.

chgomom Enthusiast
I get those, sometimes under the skin (and they hurt), or sort of on my skin and visible. If I don't open them and remove the top layer of skin, they become hardened and more painful, and never go away. I get that problem after getting glutened. I KNOW it is connected to gluten, but the dermatologist claimed that I am wrong, and it is just eczema. Whatever.

I find though that a homeopathic eczema cream called 'Execalm' is helpful (after opening those blisters). It also helps on the other rashes I get.

------------

Right...they kept pumping me full of antibiotics and topical creams saying it was ATYPICAL ECZEMA.

Yeah,,,,naybe cause its not. Sorry if I could snippy...but since going gluten free my skin has cleared up, the blisters on my face gone....although I am still elarning so once in a while I get accidentally glutened and I get some on my head or a spot on my hand and after I feel better they go away.

Try thr diet first before a biopsy....its comes down to what you're comfortable with. I myself...Unless something doesn't make me feel better....I am sick of doctors trying to make me just another procedure.

My GI (now I need to find a new one) said...."Pish posh....I really don't care if the diet has made you feel better, I'm going to tell you to go off it....but that with a blood test don't mean you have celiac"

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    • allis
      Thank you, I’m very happy to be here!! Yes, lately I get rashes and itching when I accidentally use topical skin products with gluten in them. I got a bad rash around my hairline after unknowingly using glutenous hairspray, and a near-full-body rash with a sea salt spray that I guess I rinsed off insufficiently in the shower. Neither looked like typical dermatitis herpetiformis to me based on the posts I’ve read here—both were just large patches, red and slightly raised, with no blisters to speak of. At least yet. The sea salt spray was used yesterday and I noticed the itching this morning, with the rash forming obviously by this afternoon and evening. 
    • Sarah Marie
      Thanks so much for your thorough reply! I was able to schedule with the local pediatric gastroenterologist who specializes in celiac but we have to wait 3 months to see her. 
    • trents
      Sorry, meant to type "or dermatitis herpetiformis for short". What? Every time I try it, the abbreviation for this skin condition is converted to the full length term. I'm trying to type "D" followed by "H". 
    • trents
      Welcome to the forum, allis! By "skin response to gluten products" are you saying you develop a rash when you use lotions, creams, shampoos, etc. that contain gluten? One of the classical symptoms of celiac disease is a skin rash known as dermatitis herpetiformis or "dermatitis herpetiformis" for short. Celiac disease is the only known cause for dermatitis herpetiformis. It has a distinct appearance. It has little blisters or pustules in the bumps. Does this sound like what you experience? Is so, it might be possible to get a punch biopsy done when you are having an outbreak. This would be an alternative to eating gluten. If your skin biopsy was positive for dermatitis herpetiformis you could be diagnosed with celiac disease on that basis alone. Apart from that, I know of no other way to get a diagnosis apart from returning to eating gluten for a period of weeks.
    • allis
      Hi folks, I have type 1 diabetes and was having some serious digestive symptoms about ten years ago, and my endocrinologist (who sees a lot of type 1s with celiac) told me to assume I was celiac and be gluten free from now on. I’ve been doing so since then, but my skin response to gluten products has been getting worse and worse so I was hoping to get a diagnosis. However, my general practitioner and my endo both told me that to get a celiac dx I would have to eat gluten for six weeks for the antibody test to work! That would make me so sick and unable to work! Is there any way to get a celiac dx through a combination of other tests? Should I give up on seeking a dx and just be more careful about skin contact? Thanks in advance ❤️
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