Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Bad Joint Pain...


Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie

Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

have you been evaluated for tendonitis, carpal tunnel, and rheumatoid arthritis?

Ursa Major Collaborator

Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't.

Check out this thread, it might be helpful: Open Original Shared Link

sore joints Apprentice
Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Hi Elizabeth,

I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten related or milk related. It is so nice to find someone else who has the same syptoms.

Alison

ravenwoodglass Mentor

For myself this pain and the resulting arthritic joint damage came from gluten. I was diagnosed with fibro and chronic fatigue at one point also. It took a few months for the joint and muscle pain to resolve and of course the joint damage itself is permanent but my rather ugly hands are now fully functioning and pain free. The only time I have joint or muscle pain now is when I injest gluten. I wish I could tell you something that would help, I was on many of the arthritis meds, including celebrex and bextra for years before my celiac diagnosis and none of them really did much for the pain or inflammation.

BRUMI1968 Collaborator

I was getting bad pains in my wrist, forearms, hands, etc., especially as they got cold or as I used the mouse on the computer. I finally realized that four momths earlier, I'd had my arm practically pulled out of the socket by a drunken friend of mine who insisted I swing dance with her. (Why do drunk people weigh ten times more than sober people.) I finally figured out I had pinched a nerve...but for me it was only on one side. You might consider something like that if there is something lurking in the recent past that might've started it for you. Any drunken friend swing dancing?

Elizabeth-Elindel Rookie

No, I haven't been swing dancing with drunk friends. :P Not that I'm aware of at least... ;)

I know that arthritis runs in my family. Perhaps that could be the issue.

Any other ideas tho....?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

I've had bad joint pains all my life, including in my hands and wrists. I was told they were growing pains by my dr. as a child after the RA test was negative. I still had growing pains at 29. I went gluten-free for my celiac daughter whom I was nursing and after a couple months I noticed the pains had stopped. If I eat gluten accidently they come back with a vengence. I used to take typlenol all the time, do heating pads, etc. It was getting to where I was dropping things all the time. All this has improved gluten-free.

are you gluten-free? if so, how long? It took a long time for my pains to go, so be patient if you are new to the diet. If you're not new, you might want to go to a specialist.

Elizabeth-Elindel Rookie

I've been gluten-free for six months. How long did it take for your pain to go away?

TCA Contributor
I've been gluten-free for six months. How long did it take for your pain to go away?

I know it sounds crazy, but I'm not exactly sure. I never thought I had issues with gluten because I didn't have the typical symptoms. I just realized one day that I didn't need the tylenol anymore. It was probably 3-4 mos. I hope you feel better soon!

tarnalberry Community Regular

If you haven't had this checked on by a doctor, please do. Some conditions - including the ones I listed - get worse without proper treatment. It *could* be exacerbated by gluten, but it might also be something else. Gluten isn't the cause of *everything* that goes wrong with us, though I know sometimes we fall into the trap of thinking that's the case. B)

plantime Contributor

Tiffany is right: you need to have your joints looked at and evaluated by a doctor. I had problems with my left hand that turned out to be a pinched off nerve in my elbow. It took surgery to correct it. For the pain and stiffness in my joints, I use warm water, heat packs, and lots of stretching. Keeping moving helps more than anything else.

lonewolf Collaborator

Getting checked out by a rheumatologist would be a good idea to rule some things out. You might also consider that you have other food intolerances. I had horrible arthritis in my hands and most other body parts and it got better after I eliminated wheat/gluten, dairy, eggs, soy, peanuts, all meat except fish and sugar. Just going gluten-free woldn't have done it for me. A little over 10 years out, I still avoid gluten, dairy, eggs and soy and my joints feel fine.

Nancym Enthusiast

There are all kinds of autoimmune arthritises that flare up. Getting evaluated by a good rhumatoligist is a good idea. I found out I have Akylosing Spondylitis and I'm on a med to treat that. It has helped a lot.

Elizabeth-Elindel Rookie

thanks so much for all your help! :)

I shall go see a doctor soon about this stuff.

:)

Elizabeth

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,739
    • Most Online (within 30 mins)
      7,748

    Chef7269
    Newest Member
    Chef7269
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...