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Kidney Problems


lonewolf

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lonewolf Collaborator

I've posted about this before, but it's been a while and we have lots of new people. I'm wondering if anyone else has had problems with their kidneys, specifically Nephrotic Syndrome or Minimal Change Disease. I was diagnosed about 3 years ago with MCD and discovered that gluten-free made a huge difference and I have been in remission for almost 2-1/2 years. I believe that going totally gluten-free is what's kept me in remission. I also think I might be the only person who has discovered this. My (former) doctor didn't want to hear about it and wouldn't even consider the possibility.


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Canadian Karen Community Regular

I have had three episodes of kidney stones, but that's all......

Karen

tammy Community Regular

I had chronic bladder infections in my early twenties. Now 41, I have chronic health issues but recently the doctor put me on turmeric for several reasons. After one week, my overall bloodwork from my CBC(complete blood count) came down. I think that the turmeric may help your kidneys because of its overall benefit to other bodily functions. Its an anti-inflammatory, anti-cancer, lowers cholesterol etc. Perhaps with the guidance of your doctor, it is worth consideration. I hope that helps!

Guest cassidy

I am 29 and I have 9 kidney stones. I have only passed one so far. My mother also has celiac and has kidney stones. She has something wrong with her kidneys that makes her more prone to stones, but I don't remember what it was called. I never did any more tests because they didn't seem to be able to do anything for it, so I don't know why I have all these stones. I just hope they stay right where they are since they aren't bothering me.

  • 3 months later...
porterpotti Newbie

I was diagnosed with Membraneous Glomerulopathy which is similar to MCD (except harder to treat) at the same time I was diagnosed with Celaic. I have been gluten free for about 6 months and have had two meetings with a kidney specialist since, and so far there has been no change in my disease. My kidney doctor says that there is no known connection, but I can't help but wonder.

celiacgirls Apprentice

I have had a kidney stone and have a kidney cyst that they are watching. I am wondering what will happen with the cyst now that I am gluten-free. I'm hoping it is gluten related and will clear up or at least not get worse.

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    • Rebeccaj
      glutened peoples experience ?via flour airbourne.
    • eKatherine
      Keep in mind that you might also have a dietary sensitivity to something else. Get into the habit of reading ingredients lists.
    • BoiseNic
      I would avoid gluten at all cost. Sometimes there will be no noticeable damage, but it is still causing an autoimmune response that will manifest in some way or another eventually. Throwing up from a macaroon sounds like something other than celiac disease also.
    • pplewis3d
      Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam
    • trents
      Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious damage is still going on in the gut. The only way to tell for sure in your case would be to be retested after going back on gluten for a period of weeks or months such that sufficient time has elapsed for antibody levels in the blood to build up to detectable levels. And I would certainly advise you to do that and not take anything for granted.
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