Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intol Exaggerated After "quitting" Gluten?


jayhawkmom

Recommended Posts

jayhawkmom Enthusiast

I've always thought I was lactose intolerant. Sometimes I'd be fine, other times... I wouldn't.

(But like a dummy, I'd still consume dairy)

I've been gluten-free for a week now (ok, 5 days), and every time I consume anything with dairy, ohhhh the gas, the bloating, and the PAIN!

I'm wondering... could the lactose issue be exaggerated by the fact that I am removing the gluten from my system? I actually thought (wrongly) that this would get better, not worse.

Anyone have any experiences with this??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

This is very common. Gluten intolerance and lactose intolerance often go hand in hand. Many find after healing on a gluten free diet that they can again consume lactose.

Nancym Enthusiast

I'm not sure why the thought is that lactose intolerance goes away. You actually need an enzyme to break down lactose which generally speaking, lots of adults don't make after they're weaned.

dionnek Enthusiast

I have had the exact same problem - dairy never bothered me before going gluten-free, and the first month gluten-free I was in denial about it, but I am slowly realizing that I need to give up (or at least cut back significantly) on dairy. I've only been gluten-free for 2 months, so I am hoping that after my villi heal I can reintroduce ice cream again :)

Guest southgoingzax

Oh, keep hoping folks! For all of you, I hope you can go back to eating dairy. I have been gluten-free for three years, and dairy-free for 6 months. I found out that I am severly allergic to dairy. Without it I feel so much better, but I miss pizza and ice cream pretty bad sometimes.

nikki-uk Enthusiast
I've always thought I was lactose intolerant. Sometimes I'd be fine, other times... I wouldn't.

(But like a dummy, I'd still consume dairy)

I've been gluten-free for a week now (ok, 5 days), and every time I consume anything with dairy, ohhhh the gas, the bloating, and the PAIN!

I'm wondering... could the lactose issue be exaggerated by the fact that I am removing the gluten from my system? I actually thought (wrongly) that this would get better, not worse.

Anyone have any experiences with this??

It is odd isn't it?

I think the theory behind this is you were lactose intolerant before you went G.F but as you were eating gluten as well you poor body was reacting to so much stuff it was hard to single out what was what?

Lactase enzymes(which help you digest the sugar in milk) are released from the tips of your villi.

If you have celiac disease some if not all of your villi are blunted,so you cannot produce enough enzymes.

It took my husband around 6 months of being G.F before he noticed that milk was bothering him.

He suffered rotten crushing headaches and griping stomach pains.

So he avoided milk products for around 3 months and then starting trying stuff.

He now has found he can tolerate an amount of milk,but there is a limit! and the old symptoms return if he goes over that limit.

Best to cut it out for a while,then slowly try to re-introduce.

Good Luck! :)

Daxin Explorer

Some people seem to tolerate lactose a bit less after going gluten free, but in most instances, they are able to tolerate it again over time, after heling begins to take place.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samking72 Rookie

Hello! I am lactose intolerant as well. My sister recommended "Digestive Advantage" pills. They are not prescription and are common in many food stores. They run about $9 for 32 pills and you take one a day. Some people (like me) need to take 2 a day, but it's worth it if I can have half and half in my coffee again! I still get a little bit of gas and some, minimal bloating and slightly quesy, but I don't spend the morning in the bathroom anymore! You should give it a try.

tiredofdoctors Enthusiast

I don't have the normal "Celiac gut", but my neurologist recommended that I switch to goat's milk . . . much less casein than in cow's milk. I have to admit, I feel much better drinking goat's milk and eating goat's milk products only . . . . (Kind of grosed me out at first -- first had it at my BIL's farm -- had milked the goat myself . . . . EEEEEWWWWWW. Also, my neuro said that pasteurization is "highly over-rated" (?) if you are using the milk from a family farm like we were. Just so no one jumps down my throat for drinking non-pasteurized milk.)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,201
    • Most Online (within 30 mins)
      7,748

    Karen LK
    Newest Member
    Karen LK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.