Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 2 Yr Old Daughter Just Diagnosed Last Week With Celiac

Nikki2003

Recommended Posts

Nikki2003 Contributor
Nikki2003
Posted

Hi everyone, My 2 yr old daughter was just diagnosed last week with Celiac disease via biopsy. When the dr did the endoscopy she said she didn't see anything abnormal but you have to wait for the results. But it came back that she does have it. So we started her on the gluten free diet last saturday. It is tough findind stores here that have a good selection. But were dealing with it.

Anyway that's about it for now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Nikki--welcome to the board! :)

You've come to the right place! There are many moms and dads here who have lots of experience with Celiac and the gluten-free diet.

Be happy that you found out at an early age that your little girl has this. By going on the gluten-free diet now, she will avoid a lot of the complications that can happen with a delayed diagnosis.

AndreaB Contributor
AndreaB
Posted

Welcome Nikki. :D

What area of the country do you live in? There may be people in your state that can suggest stores to find gluten free food at.

happygirl Collaborator
happygirl
Posted

Hey Nikki,

Welcome to the board! This is a great resource. Most people on the board know more than most doctors about Celiac. Unfortunately, Celiac is highly un-diagnosed and often mis-diagnosed, and doctors have very little education about the disease and its effects. Luckily, this board and celiac.com provides a resource for questions and answers about foods, gluten free living, recipes, and current research!!!

Just wanted to give you some of my favorite foods/brands:

Tinkyada gluten free pasta (all kinds, including spag, penne, elbows, etc) Use this to make all our pasta dishes, including mac and cheese (with velveeta-yummy!)

Kinninnicknick (can never spell it right!) pizza crusts and bagels

Many McCormick's brand seasoning packets are gluten free---they are very good about clearly listing any wheat/gluten, barley or malt in their ingredients.

bob's red mill gluten free flour mix

Even if the ingredients are gluten free, you will need to make sure that it is free from cross contamination. For instance, all condiments that are dipped into, like butter, mayo, etc. If someone makes a sandwich and dips the knife back in, the butter/mayo is now contaminated and is not gluten free. We have separate condiments in our fridge. If you are serving a gluten free dip for veggies, and wheat crackers are dipped into it, that is now not gluten free.

Even if symptoms do not immediately (or ever!) appear, that does not mean that an auto-immune reaction is not occurring. Many Celiacs are "silent" Celiacs, meaning they do not have any outward symptoms, yet their intestines are being damaged by gluten. On the other hand, there are Celiacs that are extremely sensitive and have outward reactions to minute amounts of gluten.

Anytime you are looking for something, feel free to ask or PM me. Your daughter is lucky to be diagnosed so early and a caring family to support her with gluten free foods!

Good luck!

Laura

Jodele Apprentice
Jodele
Posted

Hi Nikki

Welcome to the board. Glad you found the site. I found out lots of great info here and such a great support to have with all the loving people here. :wub: My oldest dd has just been dx with glutton intolerent but I know she has celiac but her biopsy came back neg. We are going gh just after myself and the rest of the family gets a blood test done. Emily my oldest is going gluten-free today.

Nancym Enthusiast
Nancym
Posted

I can't help myself...

glutton intolerent
I'm usually tolerant of gluttons, glutens though is another issue! :D But my brother likes to tease me and say I'm a gluten for punishment.
Nikki2003 Contributor
Nikki2003
Posted
  • Author

Sorry I didn't introduce my self. My name is celina and my daughters is nikki. Sorry about that. We live in Massachusetts. She is seeing a pediatric GI doctor out of Children's Hospital in Boston,ma.

Thank you all for the great tips.

I was wondering how likely is it that she can get other autoimmune disorders?

A few weird things have happened in the past few weeks.

I noticed she started with a blushing like rash on her cheeks and across the bridge of her nose,I think it is a malar rash. She has never had this before maybe just on her cheeks but not her nose and only when she was playing outside alot. It first appeared when we were stuck in the house for 4 days with no sun,because of all the rain. It is not dark when we are inside but light pinkish. But when she is outside for about 5 minutes it get's darker,But even when we have been inside for a while it is still there just not as dark. Like I said this started a few weeks ago,nothing before that.

When she gets a bug bit on a joint in her body it swells uncontrollably it gets very swollen and very red,but doesn't hurt her. This has happened on a few occassions. But when she gets a bite on the middle of her arm or a non joint it is fine,It does nothing.

Sorry for all the questions but we are new at this.

Thanks

Celina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,810
    • Most Online (within 30 mins)
      7,748
    Becky103
    Newest Member
    Becky103
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Scott Adams · Posted

      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      Gluten free/ non dairy , low calorie pudding

      By Scott Adams · Posted

      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      Royal Caribbean Only, Please

      By DebJ14 · Posted

      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...