Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Haven't Slept Through The Night In Years!

azmom3

By azmom3
in Related Issues & Disorders

Recommended Posts

azmom3 Contributor
azmom3
Posted

I was actually looking at this site because my baby just tested positive for celiac (blood). I stumbled upon the sleep sectioin, not realizing this was even a celiac symptom.

Over the past several years, I can count the times I slept through the night (6+ hours) on 1 hand. I wake up dozens and dozens of times each night, although I'm not sure why...was thinking my back/joint pain. It takes me hours and hours to fall asleep. My most restful time is probably from 4-6 am, although I'm still waking up, it's easier to fall back asleep. I have had back, neck and hip pain for years which has been attributed to car accidents from 20 years ago. I alternate between diahrrea and constipation, but rarely seem "normal." The fatigue is by far my worst symptom with the back pain being a close second. I can barely function every day. I feel like a zombie. I am bothered by loud stuff...tv, talking, toy noises, etc. I get migraine headaches (I think....I've never been diagnosed with them though). They come on sudenly and get so severe. Tylenol/Ibuprofen do nothing to help. The only way to get rid of them is laying down in a quiet, dark room and sometimes they go away by the next day...although I usually have a "sore" head for several more days. Ice on the back of my neck and forehead help a little during these episodes.

Are all these other things symptoms, too by any chance? Also, I was incredibly ill when I was pregnant with this baby (all my pregnancies were rough, requiring IV hydration due to hyperemesis), but this one was especially bad. I was in bed from very early on (before I even had confirmation I was pregnant) until the day I delivered and had a PICC line through the whole thing for fluids and Zofran. I had home healthcare nurses come about twice a week. Could the fact that he is celiac or maybe that I am celiac have anything to do with this? I've always had gluten in my diet and never even heard about celiac until just a few weeks ago.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


covsooze Enthusiast
covsooze
Posted

Hi there :D The sleep problem may or may not be a symptom of celiac disease, but if your child has a positive diagnosis, you should definitely get tested yourself, as it is hereditary.

Hugs

Susie x

CarlaB Enthusiast
CarlaB
Posted

I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

oceangirl Collaborator
oceangirl
Posted
I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

azmom3 Contributor
azmom3
Posted
  • Author
I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

oceangirl Collaborator
oceangirl
Posted
Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

Thank you, Lucy- the same thoughts to you! I just reread your posts and I have to say, between 4 and 6 AM is my best sleeping time as well!

lisa

rinne Apprentice
rinne
Posted

I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that diet is a valid diagnositic tool, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


azmom3 Contributor
azmom3
Posted
  • Author
I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I have been glutening (I love the made-up words i've been learning here! ) myself for my entire life...never heard of celiac or gluten-free or any of that until just a couple weeks ago, so to answer your question...No, but I am planning to. I'm still trying to get a little more information...this site is incredible..I've learned so much more here so much more quickly than through any of our doctors. I am so ready to get my life back to normal though. This probably sounds strange, but after years and years of problems and not getting any help from doctors and my family thinking I'm a complainer and looking for attention with all my problems, it would be a huge weight lifted off knowing that I had celiac this whole time. Not only can I fix my problems, but I know I'm not crazy. Do you still have any of the symptoms after going gluten-free? Was it really hard to make that transition? Thanks for info!

Rice Cakes Newbie
Rice Cakes
Posted

Insomnia has been a reliable symptom for me. I conclude it is due to the discomfort of this condition, since the rare times when I've gotten rid of the discomfort have been followed quickly by sleep.

Rice Cakes Newbie
Rice Cakes
Posted
Do you still have any of the symptoms after going gluten-free?

Yes, my condition has not improved at all since diagnosis. But I haven't had much time on the diet, and I went undiagnosed for a long time.

Was it really hard to make that transition?

I've only had an easy time because I'm so used to having to change my diet, most people say it's terribly unpleasant. "No pizza?! OMG Ima gonna dieeeeeeeeeeeeeeeee", but see I just want to stop suffering so that's ok. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,142
    • Most Online (within 30 mins)
      7,748
    Emilypw9
    Newest Member
    Emilypw9
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Brianne03
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By Brianne03 · Posted

      My daughter was recently diagnosed with Celiac; my results are questionable and I have an appointment scheduled to see a GI doctor to further discuss. I have so many odd, ongoing symptoms that could possibly be gluten related, although who really knows!! I am considering going gluten-free whether a Celiac diagnosis is confirmed or not, just to see if there are any improvements with my dermatitis, mouth sores, aching and chronically cold hands, tingling in hands and feet, random joint pains, etc.  What are the advantages vs. disadvantages of having an official Celiac diagnosis? For instance, will it affect life insurance policies, medical insurance rates? What have you personally experienced with or without an official diagnosis? I'm almost afraid there will be more hinderances and hardships if an official diagnosis is given, but maybe I am way off base and missing the positives altogether. We are located in the US. Thank you!
    • MHavoc
      On the cusp of facing a new life of managing a life with Celiac Disease

      By MHavoc · Posted

      Thank you all for the reply posts.  Yes, the constipation has abated.  I am not sure whether its due to having changed to a gluten-free diet or not, but I do think that there is a reasonable correlation.  I know that I will get over this eventually, but I am finding it hard not to lament missing all of my favorite foods that contain gluten.  Certainly, my health comes first... I guess I never realized how many things contain some element of wheat.  My sister has been living with celiac disease for most of her life, so I have someone who will share her favorite recipes. The next step for me will be my appointment with a Gastroenterologist for the Celiac Team... I hope everyone has a safe and wonderful Thanksgiving!
    • sh00148
      Poo changes after 2 weeks

      By sh00148 · Posted

      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
×
×
  • Create New...