Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Year Old

mbg98

Recommended Posts

mbg98 Contributor
mbg98
Posted

My baby had his endoscopy yesterday at the request of Dr fusano and they told me he had a lot of esophogus inflammation that I was told was totally unrelated to his Celiac. we are awaiting the biopsy results. I thought reflux/backwards burps/idegestion were all side affects of celiac that could possible do this kind of damage, Am I crazy? I know for me personally thats how I immediatly tell if there is hidden gluten in something I am eating because it burns my throat and I start getting terrible indegestion. Has anyone else seen or heard of this type of damage? The strangest part is is that they are sure he has celiac due to his off the charts bloodwork but saw no visible damage in the small intestine/stomach (we are waiting for the biopsy) but saw all this visible damage in the esophogus, something we weren't looking for!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Is that "THE" Dr. Fusano that has written a lot on Celiac and has been a speaker at Celiac conventions?

mbg98 Contributor
mbg98
Posted
  • Author

Yes, "THE" Dr.fusano! He is great! Such a nice Dr., another doctor from the Celiac center a doctor Maliki (SP?) preforms the endoscope but dr. Fusano is the Doctor you see and speak with.

mbg98 Contributor
mbg98
Posted
  • Author

So has anyone else seen or heard of esophogus damage?

chrissy Collaborator
chrissy
Posted

my baby's esophagus was getting ulcerated by the time she was 8 months old. she had really bad reflux that could not be controlled by any medication. she was refluxing almost 25% of the time. she does not have celiac.

mbg98 Contributor
mbg98
Posted
  • Author

Both my kids were reflux babies, I was always covered in spit-up! It got better as they got older but my youngest I have noticed always has the backwards burps and swallows really hard, I attributed it to the possibility of Celiac. I didn't consider it would be doing internal damage, or that now I have to consider there be another totally unrelated thing to treat.

chrissy Collaborator
chrissy
Posted

sounds like he probably never outgrew his reflux. was he on meds as a baby? have they recommended he be on a PPI now? sylvia had a fundoplication when she was 10 months old. my twins are both on prevacid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbg98 Contributor
mbg98
Posted
  • Author

He is not on any meds at the moment, We thought the reflux was from the celiac so we were waiting to get the official diagnosis from Dr Fusano, and then he had to go for the endoscope. We were never considering it to be a seperate problem, thought it would go away when on the gluten-free diet. But of course it has taken 2 months to see Dr. fusano and then he couldn't go gluten-free until after the endoscope and now we are waiting until next week for the results.

chrissy Collaborator
chrissy
Posted

i was hoping my twins' reflux would go away when they went gluten free, too, but it didn't. kassie's reflux is pretty bad. we didn't even know tianna had reflux until her scope because she didn't have any symptoms. i'm not sure how we will tell if her's has improved or not.

is he gluten free now? i guess if they feel it is not related to celiac they will be putting him on meds?

mbg98 Contributor
mbg98
Posted
  • Author

No he is not gluten-free yet we are waiting on the biopsy results which should be in on thursday. They also took biopsies from his esophogus so hopefully we will know exactly what it is.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      - dixonpete commented on dixonpete's blog entry in Pete Dixon
      2

      A video with researcher William Parker about Helminthic Therapy

      Parker didn't exactly go out of his way to sell Helminthic Therapy in this video, did he? In other videos online he's very much positive towards HT, especially Inflammatory Bowel Disease and MS. Acetaminophen is on the list of World Health Organization's Essential Medicines, yet according to Wikipedia it also is responsible for thousands of emergency...
    2. knitty kitty
      - knitty kitty replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      What should I do with these test results?

      @Jack Common, You could do a DNA test to see if you have any of the known genes for Celiac Disease. If you don't have any genes for celiac disease, look to another source for your health problems. If you do have celiac disease genes and have improvement on the gluten free diet, you probably have active Celiac. Further testing would be beneficial. ...
    3. trents
      - trents commented on Debado's blog entry in Debado
      3

      Gluten migranes at night

      Go to the main web site home page: celiac.com. You can type "celiac.com" into the internet browser address window and hit enter. That will take you to the web site home page. Then click on the "Forums" tab (I have circled it for you in the attached pic). Scroll down the page and choose a topic appropriate for your issue and click on it. You can create a new...
    4. Debado
      - Debado commented on Debado's blog entry in Debado
      3

      Gluten migranes at night

      I am new here. Don't know how to do that
    5. dirkmatthews
      - dirkmatthews replied to aperlo34's topic in Related Issues & Disorders
      16

      Eye irritation 2.5 months into gluten free diet

      I found out I had celiac because of eye problems. I developed an eye irritation that was sensitive to light, pressure, and red. My eye doctor said I had iritis, an inflammation of the iris. The treatment was prednisone drops. This is a common symptom related to ankylosing spondylitis, a form of arthritis that runs in my family. My doctor wanted to start me...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,781
    • Most Online (within 30 mins)
      7,748
    TxPosh
    Newest Member
    TxPosh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      What should I do with these test results?

      By knitty kitty · Posted

      @Jack Common, You could do a DNA test to see if you have any of the known genes for Celiac Disease.  If you don't have any genes for celiac disease, look to another source for your health problems.  If you do have celiac disease genes and have improvement on the gluten free diet, you probably have active Celiac.  Further testing would be beneficial. Keep in mind that different gluten containing breads have different amounts of gluten.  Think thick chewy pizza crust and artisan breads, and whole wheat breads for the gluten challenge.  Cookies and pastries do not contain as much gluten.   Since your blood tests were inconclusive, continuing with the gluten challenge may be needed to provoke a stronger autoimmune reaction sufficient for antibodies to get into the blood stream.      
    • dirkmatthews
      Eye irritation 2.5 months into gluten free diet

      By dirkmatthews · Posted

      I found out I had celiac because of eye problems. I developed an eye irritation that was sensitive to light, pressure, and red. My eye doctor said I had iritis, an inflammation of the iris. The treatment was prednisone drops. This is a common symptom related to ankylosing spondylitis, a form of arthritis that runs in my family. My doctor wanted to start me on immunosuppressants, but I refused due to side effects. I tried a few anti-inflammatory diets and found the specific carb diet helped, which led my doctor to test me for celiac, which was positive. Now I know when I get glutened because I have a flare up of my iritis. I call it my canary in a coal mine. First the eye, then the arthritis flare up begins.  
    • RMJ
      Importance/Necessity of a gluten-free kitchen??

      By RMJ · Posted

      Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step.
    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      Thank you for your help!
    • trents
      Importance/Necessity of a gluten-free kitchen??

      By trents · Posted

      Eating out at restaurants is the single most risky environment for cross contamination.  Shared oven racks should be thoroughly cleaned after being used for cooking/baking of gluten containing foods. Better yet, purchase a second set of racks that are used only for one or the other.
×
×
  • Create New...