Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Year Old

mbg98

Recommended Posts

mbg98 Contributor
mbg98
Posted

My baby had his endoscopy yesterday at the request of Dr fusano and they told me he had a lot of esophogus inflammation that I was told was totally unrelated to his Celiac. we are awaiting the biopsy results. I thought reflux/backwards burps/idegestion were all side affects of celiac that could possible do this kind of damage, Am I crazy? I know for me personally thats how I immediatly tell if there is hidden gluten in something I am eating because it burns my throat and I start getting terrible indegestion. Has anyone else seen or heard of this type of damage? The strangest part is is that they are sure he has celiac due to his off the charts bloodwork but saw no visible damage in the small intestine/stomach (we are waiting for the biopsy) but saw all this visible damage in the esophogus, something we weren't looking for!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Is that "THE" Dr. Fusano that has written a lot on Celiac and has been a speaker at Celiac conventions?

mbg98 Contributor
mbg98
Posted
  • Author

Yes, "THE" Dr.fusano! He is great! Such a nice Dr., another doctor from the Celiac center a doctor Maliki (SP?) preforms the endoscope but dr. Fusano is the Doctor you see and speak with.

mbg98 Contributor
mbg98
Posted
  • Author

So has anyone else seen or heard of esophogus damage?

chrissy Collaborator
chrissy
Posted

my baby's esophagus was getting ulcerated by the time she was 8 months old. she had really bad reflux that could not be controlled by any medication. she was refluxing almost 25% of the time. she does not have celiac.

mbg98 Contributor
mbg98
Posted
  • Author

Both my kids were reflux babies, I was always covered in spit-up! It got better as they got older but my youngest I have noticed always has the backwards burps and swallows really hard, I attributed it to the possibility of Celiac. I didn't consider it would be doing internal damage, or that now I have to consider there be another totally unrelated thing to treat.

chrissy Collaborator
chrissy
Posted

sounds like he probably never outgrew his reflux. was he on meds as a baby? have they recommended he be on a PPI now? sylvia had a fundoplication when she was 10 months old. my twins are both on prevacid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbg98 Contributor
mbg98
Posted
  • Author

He is not on any meds at the moment, We thought the reflux was from the celiac so we were waiting to get the official diagnosis from Dr Fusano, and then he had to go for the endoscope. We were never considering it to be a seperate problem, thought it would go away when on the gluten-free diet. But of course it has taken 2 months to see Dr. fusano and then he couldn't go gluten-free until after the endoscope and now we are waiting until next week for the results.

chrissy Collaborator
chrissy
Posted

i was hoping my twins' reflux would go away when they went gluten free, too, but it didn't. kassie's reflux is pretty bad. we didn't even know tianna had reflux until her scope because she didn't have any symptoms. i'm not sure how we will tell if her's has improved or not.

is he gluten free now? i guess if they feel it is not related to celiac they will be putting him on meds?

mbg98 Contributor
mbg98
Posted
  • Author

No he is not gluten-free yet we are waiting on the biopsy results which should be in on thursday. They also took biopsies from his esophogus so hopefully we will know exactly what it is.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,117
    • Most Online (within 30 mins)
      7,748
    Violette
    Newest Member
    Violette
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      Hello everyone, I am wondering if anyone has experienced the same thing as me. Literally ever since I went 100% gluten free and started eating the cleanest I have ever ate in my life, I get sick WAY more often than I ever did prior to my diagnosis and being gluten free. I almost dont rememebr ever getting sick before. Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger? Really interested to see if anyone has any insight on this. Thank you!
    • trents
      Help Understanding Test Results

      By trents · Posted

      ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one.
    • Scott Adams
      Help Understanding Test Results

      By Scott Adams · Posted

      Thanks for the update! It’s great that your GI is being thorough with the follow-up testing—hopefully the endoscopy will give you clearer answers. The EPI diagnosis is interesting; I’ve read that celiac can sometimes lead to pancreatic issues like EPI due to long-term malabsorption or autoimmune overlap. Have they mentioned if your EPI might improve with a gluten-free diet if celiac is confirmed? Wishing you smooth sailing with the endoscopy tomorrow—let us know how it goes.
    • Brown42186
      Help Understanding Test Results

      By Brown42186 · Posted

      Hi again! I just wanted to update here that the GI redid my bloodwork and the ome value is still high so I'm having an endoscopy tomorrow. I also got diagnosed with EPI which seems to possibly be linked to celiac according to Google.
    • Liquid lunch
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Liquid lunch · Posted

      Reishi and cordyceps are immune modulators, they stop you reacting so much/producing antibodies to lectins. Uptake is better when taken as a tincture, you can buy it pre made as a tincture, usually vodka based, or make your own which is much cheaper. You can find instructions online, basically powdered mushrooms soaked in strong alcohol for a month, shaking regularly. Then the strained mushrooms are heated gently in water for 8 hours, strained again and the water then combined with the first alcohol extract. Some of the properties are water soluble, others require alcohol for extraction. It’s also prescribed for fatigue which is a side effect I’m happy to put up with.
×
×
  • Create New...