Shocking Story

[snapple]

What a horrible situation! My prayers are with you and your husband! I am wondering where your lawyer is in all this. Is he/she searching out expert witnesses on the signs and symptoms of celiac? Has he/she requested from each of the drs who have seen your son their records of those visits? Has a deposition or sworn testimony been gotten from the accusing dr? Sorry about all the questions, but I just want to make sure that your lawyer is a bulldog.

[ravenwoodglass]

That is s great idea, but what do I tell them? I dont think it is that easy to get into them. Our Senator is Hilary Clinton.

I would tell them what you have told us. I would mention right away that you are a diagnosed celiac and the genetic nature of this illness. I would tell them about your son's health problems and the positive blood testing. I would bring into the office any pertinent research I could get my hands on. Don't just go with Hilary contact the representative in both the house and the senate no matter what party they are. If it was me I would also contact the president, it can't hurt and who knows it might help. Go to the web site for the NIH and print out their recent findings and reccomendations on celiac. Print out all you can from this site as it pertains to your son's problems. I would also demand copies of ALL the medical records you have for yourself and your son. You have a legal right to them but they will charge you for copying them. Make sure these records include all test, doctor's notes etc. If needed get your lawyer to demand them, this may be needed becasue the courts have taken custody. This doctor needs to be stopped, I would also contact the AMA and send duplicates of records and note that this has happened to another. I would also contact my insurance company and get records of your own tests and diagnosis. I would also demand that the child be tested genetically immediately. And once you get your children back, and I do think that you will once all the evidence is heard I would insist on a lawsuit against this doctor to cover the long term counseling that your children will need because of her action. I will continue to pray for you and the quick resolution of this criminal activity against you.

[GFBetsy]

I am trying to get into Columbia, thats where I should have went to begin with. The test was done last september do you think it could still be sent?

As I understand things, biopsy samples are supposed to be kept for 7 years . . . is that right? So if the biopsy was done last Sep, they still ought to have the sample available for others to look at.

[GFBetsy]

That is s great idea, but what do I tell them? I dont think it is that easy to get into them. Our Senator is Hilary Clinton.

You know what? This is a fabulous idea, because politicians are always looking for ways to show themselves in good light. That's just part of their job. And, as ravenwoodglass said, I'd tell EVERYONE - house of reps, the president, etc. It just gives you a bigger chance that you will be helped. Also, it could possibly help that Senator Clinton belongs to a different party than the President . . . makes this sort of a "which party can do the right thing fastest" situation. Who knows?

[Gcbec]

Charles (Chuck) Schumer is also a Senator for New York State. You could contact either, or both, of them.

This is good the only thing I was told not to do letters or anyhting in writting becasue they will send it to court and will be used against me. I dont know how but the other girl that went through this her friend sent letter to congressman and it showed up in the court room and not in a good way.

[Guest Robbin]

The more I think about this, the madder I get , Gcbec. It is obvious what is happening here. The original drs. had the tests run checking for anything but celiac. You insisted celiac and when the blood tests showed positive, they were afraid since you have grounds for malpractice and undue suffering for your child. So, they sent you to this dr with probably LOADS of hints about your being unstable and of course, she jumped on it. She wants to look good to her peers. You will be hard-pressed to find one decent dr. to call them on this-they will be branded a whistle -blower to their colleagues. Egos will not allow that. So, you and your child are the sacrificial lambs to the altar of the Ego gods. I would contact a malpractice firm and start the ball rolling on sueing the daylights out of all of them. The attorneys will demand the records and investigate all of it.

btw--why do children's services even take this as fact?! You cannot possibly order a bone marrow test or ANY test!! Only the doctors can!

[Gcbec]

The more I think about this, the madder I get , Gcbec. It is obvious what is happening here. The original drs. had the tests run checking for anything but celiac. You insisted celiac and when the blood tests showed positive, they were afraid since you have grounds for malpractice and undue suffering for your child. So, they sent you to this dr with probably LOADS of hints about your being unstable and of course, she jumped on it. She wants to look good to her peers. You will be hard-pressed to find one decent dr. to call them on this-they will be branded a whistle -blower to their colleagues. Egos will not allow that. So, you and your child are the sacrificial lambs to the altar of the Ego gods. I would contact a malpractice firm and start the ball rolling on sueing the daylights out of all of them. The attorneys will demand the records and investigate all of it.

btw--why do children's services even take this as fact?! You cannot possibly order a bone marrow test or ANY test!! Only the doctors can!

This is exactly what we are saying the problem here is WE DO NOT HAVE ANY DR that will come foward and diagnose my son.... I have been on the phone for 2 days trying to get my son's records reviewed by Columbia or even to send a letter so we can get court order to have my son seen. NO ONE seems to be able to help with this. WHY does anyone have a good GI Doc that will review or help Please I will go wherever it takes. I was told they cant review because my son is not a patient there. Please anyone how can I have my son diagnosed when I dont have custody of him, and how can I get a dr to see him when he has never been seen before. If this was a typical patient how would they have handled this?

[CarlaB]

Can you get your lawyer to get a court order for you to be able to take your son to the doctor? Of course, this might be difficult since they think you've had him to the doctor too much already!

I'd try to capitialize on the fact that this ped. has a conflict of interest and has done this to other families.

[Gcbec]

This makes sense.

It will cost nothing for the consultation, and if the case is accepted, she won't have to pay upfront. The law firms have their own doctors, and specialists, who will conduct examinations and testify on her behalf.

Good idea!

Nothing is free especially in NY we have already paid out over 30,000 for our defense. This includes retainer fee for 2 expert witness in psychological feild. My attorney said he would love for a medical dr to review the records and give a answer but there is NONE. I already am having to pay for my dr's to come and testify for me, that is my regular peditrician and ent and phone testimonies from my ped gi dr in NC and peditrician in NC they get around 250 an hour. We are een refinancing our home to come up with the $. I dont know of too many law firms that have there own Dr's and who will go against this acusing dr who really thinks she is GOD. She told me in her office NO ONE tells her NO she has more POWER than anyone and everyone jumps when she tells them. I called her a Liar on thursday and she sent in for my children to be taken on friday becasue they were in Imenent danger... that means she said my kids were going to DIE if they were left in house that day...... Did I tell anyone she is THE DIRECTOR of CPS child protective services.

I am really losing hope I am sorry.. I cant get my kids home unless I can prove my son has a diagnoses, I cant get him diagnosed because no one will get involved and review his records, . I know when I get them back definatly will go after a few dr's I have not even told you what they did to my daughter with cerebral palsy.

Can you get your lawyer to get a court order for you to be able to take your son to the doctor? Of course, this might be difficult since they think you've had him to the doctor too much already!

I'd try to capitialize on the fact that this ped. has a conflict of interest and has done this to other families.

Thats what we are trying to do but to do that we have to have a dr that will comit to seeing him. Also the dr has to send a letter to say why they need to see my son and how seriuos this is. I can not seem to get anyone that wants to get involved. I mean think about it, why should they? I wish I could find a dr to actually listen to the story and take action, I mean if they are able to prove this is celiac they can become famous becasue they will be hero. Why wouldnt they do this?

[CarlaB]

Have you tried Dr. Fine at Enterolab? I don't know if it'd help since it's not the "gold standard" for diagnosis. Didn't someone mention that they had to keep the biopsy for 7 years? What about having that sent to Dr. Greene for analysis?

I'd definately try to get a class action lawsuit against this doctor to get your mortgage paid off! I think that there are too many malpractice cases, but this lady needs to PAY!

[Gcbec]

Have you tried Dr. Fine at Enterolab? I don't know if it'd help since it's not the "gold standard" for diagnosis. Didn't someone mention that they had to keep the biopsy for 7 years? What about having that sent to Dr. Greene for analysis?

I'd definately try to get a class action lawsuit against this doctor to get your mortgage paid off! I think that there are too many malpractice cases, but this lady needs to PAY!

I was trying to get Dr Green but he will not see or get involved with my son because he was not a patient there. How do I walk in and tell a malpracitce attorney I want to sue, when I cant even prove my son has celiac? I never heard of Enterolab (sorry) do you have contact with dr fine? If anyone has contact with w great Pediatric GI even if it is at Columbia.. Would you call and see if they would talk to me and discuss my situation. I am not asking them to commit to anything just talk to me and see if they would be willing to help.

[CarlaB]

I was trying to get Dr Green but he will not see or get involved with my son because he was not a patient there. How do I walk in and tell a malpracitce attorney I want to sue, when I cant even prove my son has celiac? I never heard of Enterolab (sorry) do you have contact with dr fine? If anyone has contact with w great Pediatric GI even if it is at Columbia.. Would you call and see if they would talk to me and discuss my situation. I am not asking them to commit to anything just talk to me and see if they would be willing to help.

www.enterolab.com

I don't know if they'd accept this as an official diagnosis or not.

[Gcbec]

www.enterolab.com

I don't know if they'd accept this as an official diagnosis or not.

Do you have contacts there that might be able to help me? What I would be interested in is seeing if he could review my sons records and reviewing his sy,ptoms to see if he can make diagnosis and call for a court order to have andrew tested. By looking at his curricular vitae he is extremly experinced and would be able to classify as expert witness.

[CarlaB]

Do you have contacts there that might be able to help me? What I would be interested in is seeing if he could review my sons records and reviewing his sy,ptoms to see if he can make diagnosis and call for a court order to have andrew tested. By looking at his curricular vitae he is extremly experinced and would be able to classify as expert witness.

I only have their website. I ordered their test off the website. You could call or email to see what they can tell you. They're very helpful. Sorry I don't have more info.

[Guest BERNESES]

Have you gone to court yet? How did they take him away?Were you served with a deposition?

I don't understand how this has happened as YOU can't order any tests? It makes no sense.

my sister had a friend in a similar situation and it AMAZES me how easily a child can be taken from a parent. What have the other doctors you have seen with him said? Are ANY of them willing to testify for you?

[Lymetoo]

I also left a message with for XXXXXXXXXXX, but have gotten no return calls yet. I take that back I just got email response from Dr Greens office, she said it appears the tests were negative?

Here are the names you posted.

[penguin]

Here are the names you posted.

I believe they're both in Dr. Greene's office at Columbia.

[Gcbec]

I believe they're both in Dr. Greene's office at Columbia.

Yes they are but I was told I am not allowed to post names of Dr's sorry I rmoved it

[Gcbec]

Have you gone to court yet? How did they take him away?Were you served with a deposition?

I don't understand how this has happened as YOU can't order any tests? It makes no sense.

my sister had a friend in a similar situation and it AMAZES me how easily a child can be taken from a parent. What have the other doctors you have seen with him said? Are ANY of them willing to testify for you?

We have gone to court, they DENIED any visitation, the also took a order of protection against us. They took both my kids, at 11 am on Sunday morning CPS came in my house without a search warrant, no signed papers or court order. My son was getting ready to go to baseball picnic and my daughter was having music theater picture day. The lady from cps said sometimes I like my job sometimes I dont and said today I dont .. We are taking your kids into protective custody becaseu there is alegation that there life is in danger. My kids ran and hid, my son was hiding under his bed and my daughter was holding her bedroom door shut. She asked the lady am I ever going to see my mommy again and the lady said" I dont know we will see" my son would not let go of me, I screamed and screamed and my mm called the police who could do nothing. Every neighbor came running down and were shocked. I grew up in this neighborhood, they love us , they all know how wrong this is.

We are not able to understand either, and we can do nothing about it really. We are fighting day and night to prepare for court in September, but that is too far away. My daughter will turn 9 on 8/14 and we cant even give her a birthday card.

We do have dr's on our side, but most of the dr's came from the same hospital that specializes in children ,,,, yeah right. they specialize in taking children and ruining families. Anyway we do have a few dr's like our pediatrician, ent and dr's that we had in NC before we moved here. Other than that even the ones on her side have to present the true facts, and the records dont lie. Whatever she said I lied about I have a dr letter stating it is truth. Thats why I cant understand why we cant just show it

[Guest nini]

I really can't understand how they could do this to your family... how any human being with any kind of conscience at all can seriously believe that the children were in danger because you were trying to find out what was wrong with your son? It's absolutely insane, I'm outraged and I agree, September is too far out to wait, you must do something NOW... if you think your attorney is really working hard for you on this, good, but if for one minute you think he puts this on a back burner, find someone else. You mentioned that you are going to a support group meeting tonight? Don't be shy about telling them what is going on, you really need the support, that's for sure. And please keep us posted, if there is anything that we can do, I am sure this group here will find a way to help.

{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

[tarnalberry]

What has your lawyer had to say about all this? Surely he or she has had suggestions for what path to go down?

[ravenwoodglass]

You need to get in touch with your lawyer and have him set up genetic typing by a court appointed genetic lab. that the court will have to accept. The genetic evidence can be found by any competent lab that does gene typing. Have your lawyer get in to see the judge and have him order this genetic testing done. Courts order gene testing all the time in paternity suits. Is there 'bad blood' for some reason between you and the family members that are in custordy of the kids? If your DS is still having problems in their care it should be apparent that it is not your doing. If they will not come forward to say that he is still having problems try to get your lawyer to insist that he go to a daycare facility, perhaps at a hospital, most have one for staff, where his continued problems can be recorded by a 3rd party.

[Turtle]

This is nuts....I'm a social worker w/ experience in child mental health and DSS/CPS and this is absolutely absurd & the most insane thing i've ever seen. I am so sorry this is happening to you. I'm personally FURIOUS at the no visitation, not even supervised visitation.

If it were me i'd contact congressmen/women, senators, everyone and their brother in my area and voice my situation. I'd also seriously think about the media (Nancy Grace @ CNN, Greta V. at FoxNews, Bill O'Reilly @ Fox News, local stations, newspapers, etc). I also like the idea of contacting other celiac organizations that might be of some help or if nothing else a voice on your behalf. My hope is that the support group you've located will also be helpful.

I can also see if your attorney tells you not to go this route right now...but it makes me angry to watch this unfold and you feel so powerless...there has to be something....

You made reference to NC...are you living in NC or are you living in NY? I was never clear about that. If you are living in NC please PM me. I have a lot of connections in NC. Not guaranteeing they can help but hey, never hurts to try right?

Hang in there and keep us posted....we're behind you.

[Gcbec]

I really can't understand how they could do this to your family... how any human being with any kind of conscience at all can seriously believe that the children were in danger because you were trying to find out what was wrong with your son? It's absolutely insane, I'm outraged and I agree, September is too far out to wait, you must do something NOW... if you think your attorney is really working hard for you on this, good, but if for one minute you think he puts this on a back burner, find someone else. You mentioned that you are going to a support group meeting tonight? Don't be shy about telling them what is going on, you really need the support, that's for sure. And please keep us posted, if there is anything that we can do, I am sure this group here will find a way to help.

{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

This is what we are trying to say.. How do these people put there head on a pillow at night and sleep. We sure cant, I have to take tylenol PM just to get a couple of hours of sleep and I wake up trembling with fear for my children. MY attorney is working hard, BUT, he is an attorney, and they dont like to ruffle feathers and make noise, I keep getting in trouble for voicing my rights, he agrees they have broken the law, but they have my kids and it is there decision whether I get them back or not. You see they are trying to teminate our parental rights, Yes because I was trying to get help for my son....

I am going to support group tonight I am even going to bring my petition and my sons medical records so I can show them how crazy this is, becasue until you actual read and see it in writting you cant imagine how it could be true. My husband is also going, anthough he is reluctant becasue he doesnt understand how a support group will help us. But I am positive and just know it will be ok. Does anyone want to see pictures of me and my family? I have a web site but I have not been there in a while.

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Thanks CIndy

What has your lawyer had to say about all this? Surely he or she has had suggestions for what path to go down?

Yes, originally we were preparing for court and trial in Sept. We hired expert witnesses to review our files and testify on our behalf. You see, they are trying to say I lied about my sons history, yet the things they said I lied about we have letter to confirm. Also, I only did what the dr's told me to do, when they said he need to have this test we did it, when they said he needs to go to this dr we did it. If I didnt I would be charged with neglect, so either way you dont win. It is just sad that my kids are ted up in this court battle for no reason, and we are a very very close family, I dont even get babysitter except for my mom and dad.

[Guest BERNESES]

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This link doesn't work??????