Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help In Foods


balena

Recommended Posts

balena Newbie

:unsure: Hi this is my first time asking a question and being a member.I was diagnosed with celiac about 2 and a half yrs. ago,i was 121 lbs and drastically lost weight,83 lbs. then up to118 and down to 105 now i seem to be there for ever. This is not my normal weight but i guess now maybe it's going to be...lolo. But my question is, does anybody know what other kinds of margerine or butter i can have other than imperial?.When i go out and dine i ask what kinds they use and i can never remember what kinds.I have tried looking in the safe foods for celiac's but it's not there.To this day i am still just surviving on what little i know i can eat.My memory is so bad,i used to carry a list with me but i seemed to have lost it.It gets frustrating as hell when i go out to buy food i can't remember if i can have it or not.Can anyone help me with a simple food list that's not too too....lolol expensive.I am on disability and don't have a car and there is no close store, they are all over the place.This just gets me more depressed and i don't have an appetite,i don't have energy.I don't even have the money to join the celiac assotiation in my city.I am 44 yrs.of age and have 2 girls,25 and 18 yrs old the 18 yr. old lives with me and am a grandma of 1.My 18 yr. old has L.D disabilities and some form of celiac we are still trying to find out what kind,she breaks out in these real bad big sores all over her body and they are scaring her. Her biopsy came back normal but blood test shows that her GI levels are on border line.Can anyone help me there as well.I am hitting a brick wall,i don't know what else to do.help me please if you's can.Desperate in Thunder Bay on.

Thank You

Bonnie B

thyroid disease

seizures grand-petite

degenerative bone disease

fussion needed on cervical 5,6,7

crushed 4th vertibrate

fussion needed on lower lumbar

severe arthritis through out whole body

healing from uterine cancer

2 operations less than 1 mt.

hysterectamy

nerve damage on left foot from operation 3 yrs ago

stomach problems i take pills for

ADHD

bi-polar 1 disorder

post traumatic stress syndrome

angle eye discloser

back and back of right side of head goes numb

loss of memory

I take 25 pills a day now and feel a bit better,i was taking 35

I like the saying The Lord only gives you what you can handle,and boy he sure is testing me ...lolo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

For your daughter's biopsy, did they biopsy the area next to the sores, or her intestine? I would think her sores should be biopsied to see if it's dh.

For eating, just remember, meat, chicken, fish, eggs, fruit, vegetables, potatoes, and rice are gluten-free, depending, of course, on how they're prepared. But if you're cooking them at home you know they're safe. Also butter is safe. I don't know much about margerines, so I'll leave that question for others.

Along with the basic food list, if you can have dairy you can have real cheese (some blue cheese and gorgonzolas are not okay), milk, yogurt, cottage cheese, etc. Nuts and nut butters are fine.

I know there are others on the forum who have great lists, but those are the basics for you.

balena Newbie
For your daughter's biopsy, did they biopsy the area next to the sores, or her intestine? I would think her sores should be biopsied to see if it's dh.

For eating, just remember, meat, chicken, fish, eggs, fruit, vegetables, potatoes, and rice are gluten-free, depending, of course, on how they're prepared. But if you're cooking them at home you know they're safe. Also butter is safe. I don't know much about margerines, so I'll leave that question for others.

Along with the basic food list, if you can have dairy you can have real cheese (some blue cheese and gorgonzolas are not okay), milk, yogurt, cottage cheese, etc. Nuts and nut butters are fine.

I know there are others on the forum who have great lists, but those are the basics for you.

I would like to thank you for the information.As for my daughter they biopsyed her intestines but nothing we are waiting for the dermatoligist next week.This is going on 1 and a half yreas now for her,you sure can't get in to see the doc's fast enough,i mean her legs and body are badly scared.I feel very sorry for because she is so beautiful and this has made her so self conscous and shy.She won't wear skirts or shorts or short sleeve's.She is very tall and was a model.Now she is always depressed and down,i just wish i can help her faster. But i thank you again for your help. Bonnie in ontario

CarlaB Enthusiast
I would like to thank you for the information.As for my daughter they biopsyed her intestines but nothing we are waiting for the dermatoligist next week.This is going on 1 and a half yreas now for her,you sure can't get in to see the doc's fast enough,i mean her legs and body are badly scared.I feel very sorry for because she is so beautiful and this has made her so self conscous and shy.She won't wear skirts or shorts or short sleeve's.She is very tall and was a model.Now she is always depressed and down,i just wish i can help her faster. But i thank you again for your help. Bonnie in ontario

Be sure they biopsy next to the sore, not the sore itself. With so many docs unfamiliar with celiac, you will need to be sure this is done! I feel bad for your daughter.

lorka150 Collaborator

hi there, and welcome to our forums.

your weight journey sounds like mine - i started at 125lbs, got quite ill and down to 78lbs, now am teetering around 105lbs, also.

did you, by any chance, lose a lot of muscle in your weight loss? i did, and that is part of the reason of the non-rapid regain.

that being said, if you're worried about your weight, make sure you are eating a balanced diet with a lot of calorie dense foods. Carla gave you some great suggestions, and if you need help with menus, I am more than happy to help!

I'm also from Ontario, by the way. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,815
    • Most Online (within 30 mins)
      7,748

    lbksunyoga
    Newest Member
    lbksunyoga
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...