Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Gerd


glen4cindy

Recommended Posts

glen4cindy Apprentice

In 2003 I had surgery for GERD an hoped it was the cure for my heartburn AND my other symptoms which I later learned were gluten intolerance.

I am again having problems with GERD and am seeing a GI dr. next week. My regular MD prepared me for being scoped, probably from both ends!

Since I have never sought nor been given a diagnosis of Celiac, nor have I been checked for any kind of damage, would this be a good time to talk to the Dr. about getting a biopsy while he is "in there"?

I don't even know if this is possible, so, if anyone has any advice, please advise.

Thanks,

Glen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

glen4cindy Apprentice
Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

Actually, my MD did not call it gluten intolerance or Celiac. He suggested I may be allergic to bread. I still ate "breaded" things for awhile until I realized that I was still eating bread. I did my own research and concluded that gluten was possibly the problem instead of just bread.

I have tried to be as gluten free as possible, but, three weeks ago, I made some fried chicken and used corn flakes as part of the coating. I ate this over three days and then ate cereal that I did not see had wheat starch in it. This made me really sick, so, there may still be evidence of damage since I have had recent exposure.

Thanks. I am planning on discussing this with the GI MD.

Guest cassidy

I had a nissen in 1988 (I'm assuming that is what you had). It worked well until 1 1/2 years ago. My heartburn came back like crazy. They told me the wrap was compromised and I needed another one. I was scheduled in February and I called off the surgery 3 days before it was to happen.

My mother was diagnosed (self diagnosed) with celiac in September and in January she told me she thought I had it. I went gluten-free and felt so much better. During that time I had an upper gi, an endoscopy, a 24 hour ph test and several others. I told the doctor I thought it was celiac and he said he didn't think so. That celiac was rare and that wasn't what was wrong with me. I told one doc was I had gone gluten-free and he said, don't you cheat and have a beer or two on the weekends?

Basically, I was supposedly seeing the best gi docs in town and none of them thought I had celiac and they were all willing to do another lap. I'm so glad I didn't trust them. My reflux is totally gone. It does come back when I'm glutened - and lasts for about two weeks. It did take about 2-3 months for it to go away in the beginning. That is probably because I was glutening myself fairly regularly in the beginning.

I don't have any advice on what to ask the doctors because I am fairly bitter about what they put me through and how they never figured out what was wrong with me or believed me when I told them what was making me better. I wouldn't recommend another nissen and I would recommend going gluten-free and seeing if that helps.

tiffjake Enthusiast

I had GERD so bad I was on Nexium and Reglan (nearly throwing up after every meal) and refused a surgery. I knew it had to be food related, and got tested. Found out about Celiac, had those tests, and went gluten-free. No more GERD! Proof for me!

Hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,830
    • Most Online (within 30 mins)
      7,748

    Mary Katherine
    Newest Member
    Mary Katherine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...