Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Timing Of Onset Of Symptoms


MrsM

Recommended Posts

MrsM Newbie

I am a long-term lurker, first time poster. I have gotten a lot of valuable information from this site since going gluten-free almost a year ago. After years of unexplained health problems (GI, rash, canker sores, brain fog, etc.), I am finally healthy (most of my symptoms were gone within a few days of going gluten-free). I do not know if I have celiac disease. My question has to do with the timing of the onset of my symptoms. I accidentally ate some gluten recently, but I did not notice any GI symptoms for about 2 days, then I had a burning sensation, cramping, and D. Does anyone else have such a long delay between eating gluten and the start of GI symptoms? It sounds like most people have a reaction right away. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

I can't tell you personally, since I don't yet get clear reactions, but I've certainly read many posts that mention a delayed reaction. Your story definitely indicates Celiac or at the least gluten sensitivity.

Leah

Lisa Mentor

Hello and Welcome:

Reaction widely varies between people. When I was sick, reaction was about a half-hour. I was housebound for about two months.

August 15th is my one years gluten free anniversary. So, now, if I get glutened accidentally or cc, it takes about 24 hours for me to react.

Sorry, this probably wasn't much help. Others will post as well.

Lisa

jerseyangel Proficient

Yes, reaction times vary from person to person. Some get sick immediately, others, hours or days later. 2 days is not unusual at all.

Welcome--glad you deceided to post :)

MrsM Newbie

Hi Leah, Lisa, and Patty, Thanks for responding! Good to know that 2 days is not unusual. -MrsM

oceangirl Collaborator
Hi Leah, Lisa, and Patty, Thanks for responding! Good to know that 2 days is not unusual. -MrsM

I would agree- sometimes it's a few days later, so HARD to pinpoint offending thing! Good luck!

lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,731
    • Most Online (within 30 mins)
      7,748

    synjadanynja
    Newest Member
    synjadanynja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
×
×
  • Create New...