Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Were Right


taz sharratt

Recommended Posts

taz sharratt Enthusiast

im so sorry i didnt listen to you all and the advive you gave me about not going back on gluten to have an endoscopy, as you probab;y can guess im not at all well, its the worst its ever been! been sick all day, blurred vision, dizzy, and my teeth are numb plus all the other usual symptoms of glutening. im still shakeing all over and feeling really scared by it, im frightend as ive never had it this bad before. needless to say i dont think ide cope of another 8 weeks of this. so am not gonna carry on with the test. i couldnt take care of my own kids today, they had chocolate bars for breakfast as i couldnt get out of bed, sorry ifeel like a really bad mum and not looking after them, it really hurts, as youve guessed im am emotional wreck at the mo and am in tears i cant help it. going to doc tommorow to tell her she can stick the endoscope up her bum. i know have celiac for sure i dont need someone else to tell me that. i thought i needed the confirmation but not at this price. thanx all. you tried to warn me and ide wished ide listend to you all. just hope it wont be too long before it gets out of my systym to feel better again, had gluten simnce tuesday lunch so proably looking at a week god i hope its not amy more.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Oh Taz- I'm so sorry. When I did my gluten challenge, I only lasted ten out of the 14 days I was supposed to do it (which wouldn't have done a thing anyway). After the endo, I was so bound up between the gluten and the anesthesia which I think slowed down the time it took me to get over it.

Hang in there.... you WILL get better! Hugs, B

plantime Contributor

You've done a gluten challenge, and now you know for sure. Stop the gluten, and you'll get better. Your kids will survive a day or two of chocolate bars for breakfast!

Ursa Major Collaborator

Tracey, I am sorry you feel so bad. But let's try to look on the bright side: Now you have no more doubts and know you are obviously severely gluten intolerant. That's a good thing. You won't ever be tempted to try gluten again.

Your kids will survive, eating chocolate for breakfast won't kill them. They probably thought it was cool. You're not a bad mom, just sick. They're not going to suffer from malnutrition from you not feeding them right for a few days.

Try to find somebody who can help you with the kids until you come out of the brainfog and feeling ill. Don't be too hard on yourself, just get back on track with the gluten-free diet. I imagine that within a week you'll be fine. One day of gluten won't have caused too much damage.

Hope you feel better soon!

Guest BERNESES

I agree- I loved it when my mom let me eat chocolate cake for breakfast!!!!!!!!!!!! You are NOT a bad mom, you just aren't feeling well. The one thing i always remind myself (could use this reminder right now....this too shall pass. Until it does, let them eat chocolate! Big Hug, B

CarlaB Enthusiast

Oh, gosh, if being so sick you can't take care of your kids is a bad mom, then I'm the worst!!! No, seriously, kids understand. It's good for them to know that you feel good and bad just the same as they do. It's also good for them to see that no one can do it all and no one has to. You're teaching them to do what they can do to get healthy. There are some good lessons in this for them!

I hope you feel better soon. Your mini-challenge sure gave you your answer.

hez Enthusiast

I am so sorry you are not feeling well. I think that you are being a little hard on yourself (I can judge, I do this all the time). You are not a bad mum. You are human and going through a rough spot. You will get better!

Hez


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

((((((Hugs))))) At least now you know for sure. I hope you feel better soon.

TinkerbellSwt Collaborator

I am so sorry that you feel so bad. I often wondered the same about my doctor when they said for me to go off gluten for a challenge. I refused to do it. I knew how sick I was before and I cant be like that again. After what you are going through, it scares me even more to eat gluten.

I hope that you feel better soon!

Aerin328 Apprentice

So sorry to hear about your suffering, it sounds excrutiating! In time you will look back and it will just be another memory added to the "saga of glutendom". At least now you have clear understanding of your gluten intolerance.

Meanwhile I'll say a prayer for you. Good luck, this too shall pass!

jayhawkmom Enthusiast
I agree- I loved it when my mom let me eat chocolate cake for breakfast!!!!!!!!!!!!

TOo funny! I just got a mental pic of "Bill Cosby - Himself" where he's got the microphone in his hand and he's singing, "Dad is great........ he gives us the chocolate cake........."

Yea, giving your kids chocolate for breakfast doesn't come close to qualifying you for a bad mum award.

I'm sorry you are feeling so miserable. And, I think you have all the proof you need. :(

Guest nini

so sorry you are feeling bad. this too shall pass. the kids will be ok just take care of yourself and get better. drink enough water to help your system flush and also some good gluten-free digestive enzymes might help you as well.

taz sharratt Enthusiast

thanx everyone for replying to me, feel better today but still bad. kids didnt have choc for breaky this morn my eldest said he would make it for them so they all had tomatoe sauce sandwhichs for breakfast instead! bless him! blurred vision has gone but still feel sick, im pegging another day or 2 then i be ok.went to my gp this morn told him my plans and i said i guess you think im pretty daft o quit and he said NO not at all you have to do what you feel best is for you, i was relieved about that, made me feel human again. just gotts ring the hospital and cancel the endoscopy!

gfp Enthusiast
You've done a gluten challenge, and now you know for sure. Stop the gluten, and you'll get better. Your kids will survive a day or two of chocolate bars for breakfast!

Gotta say I agree..... its sounds pretty conclusive to me.

Canadian Karen Community Regular

Well, that sounds like pretty conclusive results to me.......

In regards to your children, don't sweat it. You certainly aren't SuperWoman and all moms are allowed to have "we're down for the count" days........ Heck, there were some days when I was up most of the night in MAJOR pain, finally fell asleep just as the kids were waking up, and when I finally got downstairs, they had eaten just about every Fruit Roll-up, Fruit Gushers, chocolate brownie, rice krispie square, etc. etc. that they could get their hands on (well, except Daniel, who is a fruit freak, he goes in the fridge and gets out all the containers that have the cut-up watermelon, cut-up honeydew melon, washed grapes, etc. and he has a Fruit-A-Thon!!!! Gotta luv a kid who loves fruit enough to choose it over junk!!!!

Anyway, I am glad you finally have your answer and you now have the knowledge and power to take it from here.....

Hugs.

Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,235
    • Most Online (within 30 mins)
      7,748

    tkayj
    Newest Member
    tkayj
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      Thanks, Knitty Kitty. No, I'm just taking B12...also a vitamin D3.  For gerd - Pantoprozole. Trents, thanks for the links. There's a lot to digest there (pun intended), I'll have to read those a few times to grasp.
    • knitty kitty
      Because of your anemia, you may not be making sufficient antibodies.  I hope they did a total IgA as well as the tTg IgA, and DGP IgG.  I hope you will share the results with us.  If your body isn't making a large amount of antibodies, then the intestinal damage would be less as well.  The antibodies attacking our own cells is what causes the damage. Anemia, diabetes, and thiamine deficiency can cause false negatives on antibody tests.  Have you been checked for nutritional deficiencies besides the ferritin?  Several vitamins and minerals are needed to correct iron deficiency.  Have you been taking any vitamin supplements? Positive on the genes, I see.  Increases the likelihood...  Good job on ramping up on gluten for the test!
    • ellyelly
      Thanks so much for the link and for your thoughts! I have been on a gluten - containing diet and ramped up my intake in the couple of weeks leading up to the endoscopy, so I’m hopeful that the biopsy is painting an accurate picture.    I don’t quite understand what else might be causing the lymphocytosis and the inflammatory cells/ clusters of plasma cells and struggled to get clarity from the specialist. Perhaps this is common and nothing to be concerned about?!   In case relevant, my mother sister are both celiac, and I have the genes: HLA-DQA1*05:01 = Heterozygous HLA-DQB1*02:01 = Heterozygous Thanks again! 
    • knitty kitty
      Welcome to the forum, @ellyelly! How much gluten were you eating in the weeks prior to the endoscopy?  Many people with indeterminate results had cut down or eliminated gluten from their diet beforehand.  This can lower the autoimmune response and decrease the symptoms (lower antibody levels,  reduced inflammation and intestinal damage may heal).   If you weren't eating a sufficient amount of gluten per day in a minimum of two weeks prior to the endoscopy, you may want to do another gluten challenge with repeat endoscopy. Here's an article that explains, be sure to read the comments.   
    • ellyelly
      Hi all, Such valuable insights shared here - I am so grateful to be able to read along! Thank you all for sharing your wisdom.  I (37yo female) have recently had an endoscopy to screen for celiac given a strong family history and extremely low Ferritin for the past 7 years (not responsive to oral supplements). I am awaiting celiac blood panel results (completed post-endoscopy to provide another piece of the puzzle, I think was just an accidental oversight not doing earlier).  The endoscopy results are as follows: Gastroscopy:  Stomach: Mild gastritis and one 4mm benign appearing inflammatory polyp in the body.  Duodenum: Largely normal but few shallow erosions seen in the duodenal bulb. Microscopy:  1. Sections show specialised and non-specialised gastric mucosa with increased numbers of chronic inflammatory cells within the lamina propria including occasional clusters of plasma cells amounting to mild chronic inflammation. No active inflammation, intestinal metaplasia, dysplasia or malignancy is seen. Immunostains for Helicobacter organisms are negative. 2. Sections show small bowel mucosa with normal villous architecture. A mild non-specific intra-epithelial lymphocytosis is noted at the villous tips of uncertain clinical significance. The lamina propria contains a normal population of chronic inflammatory cells. No granulomas or parasites are seen. There is no dysplasia or malignancy. Conclusion 1. Gastric: Mild chronic inflammation 2. Duodemum: Mild non-specific intraepithelial lymphocytosis with preserved villous architecture.  The GI specialist, assuming blood tests come back normal, feels it is unlikely that it is celiac given the normal villous architecture. Suggested continuing on as usual and monitoring for symptoms etc, screening with blood test if required in the future.  Worth a second opinion or does this seem accurate? Anything else I should be considering? I feel a little lost as to how to best proceed! Thanks again.  
×
×
  • Create New...