Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fingers And Hands Sweilling

Felidae

By Felidae
in Related Issues & Disorders

Recommended Posts

Felidae Enthusiast
Felidae
Posted

I don't think this has anything to do with gluten. But , I'm not sure. Twice in the past week out of the blue my fingers and/or hands have swollen up to an uncomfortable level. They were red and warm to the touch. Does anyone know what could have caused this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

heat.

i can't even wear my rings in this heat.

plantime Contributor
plantime
Posted

Water retention. Are you drinking enough water to keep your system cool and flushed? Maybe cut back on sodas, they have sodium.

celiacgirls Apprentice
celiacgirls
Posted

I noticed when I went gluten free, my "short, stubby" fingers became more slender. I think it could be gluten related. Did you have any other glutened symptoms?

eKatherine Apprentice
eKatherine
Posted

Both gluten and casein have that effect on me.

Felidae Enthusiast
Felidae
Posted
  • Author
heat.

i can't even wear my rings in this heat.

Heat wasn't a factor both times. It was 15 and 6 degrees Celsius.

lorka150 Collaborator
lorka150
Posted

my apologies. i hope you figure it out and feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Felidae Enthusiast
Felidae
Posted
  • Author
Water retention. Are you drinking enough water to keep your system cool and flushed? Maybe cut back on sodas, they have sodium.

I don't drink sodas. I do however, work in the bush, physically demanding bush wacking in all weather conditions. So, it could have been a lack of water. But it was cooler weather both times that this happened.

my apologies. i hope you figure it out and feel better.

Don't apologize. I appreciate any ideas because I don't have a clue what caused it. And how would you know it was cold here at that time. LOL.

I was thinking, could a nerve in my back be the cause?

I noticed when I went gluten free, my "short, stubby" fingers became more slender. I think it could be gluten related. Did you have any other glutened symptoms?

No other gluten symptoms. But I did have McDonalds fries (they are safe in Canada) the night before one incident. I rarely eat greasy food.

Guest BERNESES
Guest BERNESES
Posted

i had it this week too, but it was really hot (over 100 degrees). Now my skin almost feels sore. Even my lips hurt. I assumed it was the heat, but I've also been sick (C-Diff). Have you had a fever or joint pain? Should you be checked for lyme disease? Not sure where you're from, but Lyme disease is veery common in New England in the summer.

andrew1234 Newbie
andrew1234
Posted

I've heard of something like this, I think it's called cold agglutinin disease or cold hemagglutinin disease, where the hands get very red, swollen, sometimes even black in cold temperatures. But I think I read it was very rare, like 1/100,000. It caused by antibodies that deposit in the hands (the coldest part of the body) only when the blood cools. You might want to look it up on google.

Michi8 Contributor
Michi8
Posted
I don't think this has anything to do with gluten. But , I'm not sure. Twice in the past week out of the blue my fingers and/or hands have swollen up to an uncomfortable level. They were red and warm to the touch. Does anyone know what could have caused this?

Could it be Open Original Shared Link or Open Original Shared Link?

I end up with painful, red, swollen, itchy fingers and hands upon going indoors after being exposed to outdoor cold. This usually happens in the fall and spring...don't know why it doesn't happen much in winter (it can get extremely cold here), although it may have to do with the winters being much drier. I also have inner ear pain with change in temp and/or cold winds. I have yet to get a diagnosis though.

Michelle

ravenwoodglass Mentor
ravenwoodglass
Posted

For me this can definately be linked to gluten. I also get swollen feet. I have lost almost 2 shoe sizes since diagnosis. I still get a bit of swelling from the heat but nothing like gluten caused.

Felidae Enthusiast
Felidae
Posted
  • Author
i had it this week too, but it was really hot (over 100 degrees). Now my skin almost feels sore. Even my lips hurt. I assumed it was the heat, but I've also been sick (C-Diff). Have you had a fever or joint pain? Should you be checked for lyme disease? Not sure where you're from, but Lyme disease is veery common in New England in the summer.

No fever or joint pain. Yes we have Lyme disease here and I work where the ticks are.

Could it be Open Original Shared Link or Open Original Shared Link?

I end up with painful, red, swollen, itchy fingers and hands upon going indoors after being exposed to outdoor cold. This usually happens in the fall and spring...don't know why it doesn't happen much in winter (it can get extremely cold here), although it may have to do with the winters being much drier. I also have inner ear pain with change in temp and/or cold winds. I have yet to get a diagnosis though.

Michelle

That is really interesting.

For me this can definately be linked to gluten. I also get swollen feet. I have lost almost 2 shoe sizes since diagnosis. I still get a bit of swelling from the heat but nothing like gluten caused.

I'm leaning towards gluten being the culprit because I had McDonalds hash browns or fries both times within a 24 hours of the swelling. And, I never eat McDonalds. Once I had a craving and the other time I was working out of town and I was starving. This is very interesting, maybe a cc thing from McDonalds.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,873
    • Most Online (within 30 mins)
      7,748
    Traconeil
    Newest Member
    Traconeil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find it in like soy sauce and canned tomato soup, just to site two examples. This might help:  
×
×
  • Create New...