Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rough Time


Chrisser

Recommended Posts

AshleyE Apprentice

I am not officially hypoglycemic, but I have all the same symptoms when my blood sugar crashes. I always have some kind of gluten-free food on me. I have found that Clif Nectar bars are extremely portable and great for when I start to get hungry. Sharkies are great too, they are kind of like fruit snacks for athletes, but they are gluten-free and contain enough sugar to sustain you until you can get some real food.

As far as regular food goes, I have found that rice and beans are a wonderfully easy staple. They have protein and carbs, and stick with me longer than most foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast
Or do you have post meal (reactive) hypoglycemia? I think for that just glucose tablets would be the best.

I beg to differ with you Andrew.

For long-term maintenance of hypoglycemia, one cannot rely on sugars. They may have their place perhaps if one were about to pass out, but eating sugar causes an insulin rush which too quickly drops the blood sugar level and you are right back where you started from. Usually within 20 minutes.

Being proactive by planning small meals throughout the day, rather than reactive to a drop in blood sugar level is by far the best way to manage hypoglycemia.

I remember the doctor who first diagnosed me with hypoglycemia only told me to eat candy bars when I felt my blood sugar was going low. Thats all. Nothing about a change in diet. This was about the worst advice one can give. After researching on the internet about hypoglycemia I found out about using diet to maintain an adequate blood sugar level - which certainly does not include candy. Protein and high-fiber carbs (i.e.: vegetables) that are not quickly digested and don't trigger an insulin rush.

Chrisser Explorer
I am not officially hypoglycemic, but I have all the same symptoms when my blood sugar crashes. I always have some kind of gluten-free food on me. I have found that Clif Nectar bars are extremely portable and great for when I start to get hungry. Sharkies are great too, they are kind of like fruit snacks for athletes, but they are gluten-free and contain enough sugar to sustain you until you can get some real food.

As far as regular food goes, I have found that rice and beans are a wonderfully easy staple. They have protein and carbs, and stick with me longer than most foods.

I am not officially hypoglycemic either. I start getting symptoms when I hit the high 80's and that is still "normal." According to my endocrinologist hypoglycemia doesn't hit until 60's and 50's. But man, sometimes when I hit low 80's/high 70's I'm ready to throw up and pass out. I'll have to look for those Clif Bars. I've tried Lara bars, but they are so incredibly sweet that it's hard for me to take more than a few bites.

I beg to differ with you Andrew.

For long-term maintenance of hypoglycemia, one cannot rely on sugars. They may have their place perhaps if one were about to pass out, but eating sugar causes an insulin rush which too quickly drops the blood sugar level and you are right back where you started from. Usually within 20 minutes.

Being proactive by planning small meals throughout the day, rather than reactive to a drop in blood sugar level is by far the best way to manage hypoglycemia.

I remember the doctor who first diagnosed me with hypoglycemia only told me to eat candy bars when I felt my blood sugar was going low. Thats all. Nothing about a change in diet. This was about the worst advice one can give. After researching on the internet about hypoglycemia I found out about using diet to maintain an adequate blood sugar level - which certainly does not include candy. Protein and high-fiber carbs (i.e.: vegetables) that are not quickly digested and don't trigger an insulin rush.

Perfect explanation, Artgirl. I really try to avoid anything high in sugar unless I absolutely need it with a bad crash. Right now my problem has been the planning. I've been so weak and tired that spending all day in the kitchen is hard. I'm barely making it one meal at a time. After meals I get excited because my blood sugar is level and I feel better, but then I get so tired that I just end up right back on the couch. Thankfully my mother is coming in town tomorrow to help me get back on my feet. That way all I have to do for the first couple of days is eat and sleep :lol: until I get some strength back. Then hopefully I can follow her lead, learn a few things, and start attacking my to-do list before I start my new job next Monday. I'm definitely terrified that I won't be back in decent enough shape to start work (especially since I've already had to ask once to pust back my start date), but I'm trying not to worry about that just yet.

ArtGirl Enthusiast

Chris - I'm so glad for you that your mother is going to come and stay with you. This should be a great help to you, not only in getting things done and cooking, but a great morale boost, as well.

I got to thinking about your going to work and what I've done in the past, eating wise, while working and thought I'd pass on some of my more helpful methods.

CROCK POT

Let the crock pot do your cooking while you're away all day. Fill with meat, root vegetables, celery, onions --- those vegetables that won't get too soft. Add some sun-dried tomatoes for flavor (I just LOVE these).

FREEZE - FREEZE - FREEZE

---When you cook, cook a lot! Then freeze in individual serving sizes so you can just take something out of the freezer and heat it up for a meal. Meats, soups, stews, etc.

---When you roast meat, add water to make more broth. Then freeze the broth in an ice cube tray. When frozen, remove from tray into a bag. Later you can remove a few cubes at a time to use with a meal.

---Buy large quantities of sliced cold meats. Wrap many individual portions and freeze. They come in mighty handy all the time, even at home, when you need a quick protein fix.

EAT LEFTOVERS FOR BREAKFAST AND LUNCH

A good way to keep from having to constantly be cooking and preparing foods is to plan on eating last night's dinner for breakfast and/or lunch/or snacks. If you freeze what's left, then you won't get too bored with the same food.

COOLER AND ICE PAK

Invest in a small cooler and ice pak. You can take lots of foods with you to work so you have something to eat all day long that's not just crackers.

KEEPING FOOD AT WORK

If your work place has a refrigerator, then you might be able to keep a small Tupperware-type box in it with some raw vegetables and fruit - enough to last the week to reduce the amount of food you need to take with you every day. You will also want to have some non-perishable foods at your desk, like the Laurabars and other bars you can eat, nuts, and some small cans of vegetables that you like. Those 3.5oz cans of tuna (come in a package of six) are good to have on hand (be sure you also keep some utensils in your desk). And, keep some hard candy for emergencies when your blood sugar has dropped before you know what's happened and you need to get it up quickly, then follow up with protein, of course.

Hope this helps and gives you some ideas, too.

If you're real nice, maybe your mother will cook up a storm while she's with you and fill your freezer with enough to last a month or two.

I just thought of something else that's quick and easy to prepare and can be taken with you easily.

Take a cold hard-boiled egg (that you prepared the day before). Cut it in small pieces. Quickly defrost frozen peas in some hot water, then drain. Mix peas, egg, mayo and chopped pickles. This makes a nice salad to take along with you. Make enough so that you can leave half of it at home and have it again in the evening with your dinner (that's been cooking for you in the crock pot all day!!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.